{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T06:57:46Z","timestamp":1777532266709,"version":"3.51.4"},"reference-count":30,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["GNT1116371"],"award-info":[{"award-number":["GNT1116371"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Chron Respir Dis"],"published-print":{"date-parts":[[2024,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>People with interstitial lung disease (ILD) were deemed more vulnerable to the SARS-CoV-2 virus and isolated as a means of reducing risk of infection. This study examined the impact of the pandemic on daily life, psychological wellbeing and access to healthcare and identified approaches undertaken to remain safe.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Four specialist clinics in tertiary centres in Australia (Victoria: two sites; New South Wales: one site; Western Australia: one site) recruited patients with ILD during an 8-week period from March 2021. Semi-structured telephone interviews were conducted with transcripts analysed using principles of grounded theory.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Ninety participants were interviewed between April and December 2021. Participants were predominantly female, former smokers with an average age of 66\u00a0years. IPF and connective tissue-ILD being the most common subtypes. Five main themes were identified: vulnerability reduced social interaction and isolation, access to healthcare services and support, staying active, emotional and psychological impact. Self-management strategies included staying active both physically and mentally.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion<\/jats:title>\n                    <jats:p>Self-management was key to managing the impact of the pandemic. In combination with advances in technology, implementation of strategies for monitoring wellbeing and support for self-management provides an opportunity to leverage the lessons learnt to ensure a more individualised model of care for people with ILD.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/14799731231226236","type":"journal-article","created":{"date-parts":[[2024,1,9]],"date-time":"2024-01-09T07:17:55Z","timestamp":1704784675000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":5,"title":["Navigating the COVID-19 pandemic: Experiences and self-management approaches adopted by people with interstitial lung disease"],"prefix":"10.1177","volume":"21","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5154-6658","authenticated-orcid":false,"given":"Gabriella","family":"Tikellis","sequence":"first","affiliation":[{"name":"Department of Immunology and Pathology, Central Clinical School, Monash University, Melbourne, VIC, Australia"},{"name":"NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, NSW, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tamera","family":"Corte","sequence":"additional","affiliation":[{"name":"NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, NSW, Australia"},{"name":"Respiratory Medicine, Royal Prince Alfred Hospital, Sydney, NSW, Australia"},{"name":"Central Clinical School, The University of Sydney, Sydney, NSW, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ian N","family":"Glaspole","sequence":"additional","affiliation":[{"name":"Department of Immunology and Pathology, Central Clinical School, Monash University, Melbourne, VIC, Australia"},{"name":"NHMRC Centre of Research Excellence in Pulmonary Fibrosis, Sydney, NSW, Australia"},{"name":"Department of Respiratory Medicine, Alfred Health, Melbourne, VIC, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nicole S L","family":"Goh","sequence":"additional","affiliation":[{"name":"Department of Respiratory Medicine, Alfred Health, Melbourne, VIC, Australia"},{"name":"Department of Respiratory and Sleep Medicine, Austin Health, Melbourne, VIC, Australia"},{"name":"Institute for Breathing and Sleep, Melbourne, VIC, Australia"},{"name":"Faculty of Medicine, University of Melbourne, Melbourne, VIC, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yet H","family":"Khor","sequence":"additional","affiliation":[{"name":"Department of Immunology and Pathology, Central Clinical School, Monash University, Melbourne, VIC, Australia"},{"name":"Department of Respiratory Medicine, Alfred Health, Melbourne, VIC, Australia"},{"name":"Department of Respiratory and Sleep Medicine, Austin Health, Melbourne, VIC, Australia"},{"name":"Institute for Breathing and Sleep, Melbourne, VIC, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jeremy","family":"Wrobel","sequence":"additional","affiliation":[{"name":"Advanced Lung Disease Unit, Fiona Stanley Hospital, Perth, WA, Australia"},{"name":"School of Medicine, University of Notre Dame Australia, Fremantle, WA, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karen","family":"Symons","sequence":"additional","affiliation":[{"name":"Department of Respiratory Medicine, Alfred Health, Melbourne, VIC, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lisa","family":"Fuhrmeister","sequence":"additional","affiliation":[{"name":"Department of Respiratory and Sleep Medicine, Austin Health, Melbourne, VIC, Australia"},{"name":"Institute for Breathing and Sleep, Melbourne, VIC, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laura","family":"Glenn","sequence":"additional","affiliation":[{"name":"Respiratory Medicine, Royal 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