{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T23:13:46Z","timestamp":1777677226280,"version":"3.51.4"},"reference-count":21,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2013,8,14]],"date-time":"2013-08-14T00:00:00Z","timestamp":1376438400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Health Promotion Practice"],"published-print":{"date-parts":[[2014,3]]},"abstract":"<jats:p>Using funds provided by the Ryan White Care Act, we conducted a statewide needs assessment of persons living with HIV\/AIDS (PLWHA) in Mississippi as required by provisions of the Act. Most published research addressing access to care for PLWHA is based on convenience samples of persons already accessing care in specified clinic locations. For this study of a single state with a well-established mandatory reporting system, we conducted a cross-sectional study interviewing a random sample of PLWHA across the state of Mississippi. The Mississippi State Department of Health has maintained the Mississippi HIV\/AIDS Reporting System since its inception in 1980. The database tracks all reported cases of HIV+ cases and includes name, age, last-known address, and other contact information. The sample was selected from a frame of all recorded PLWHA in Mississippi at that time, regardless of their association with care facilities. The purpose of this article is to describe the design and methodology of this study, difficulties encountered in locating this hard-to-reach population, multimethod recruiting strategies and outcomes, and lessons learned. Locating participants using a truly random sample from a mandatory reporting database was resource intensive. However, data collected as a result of these efforts have provided invaluable information on a number of topics important to PLWHA.<\/jats:p>","DOI":"10.1177\/1524839913498086","type":"journal-article","created":{"date-parts":[[2013,8,15]],"date-time":"2013-08-15T10:04:06Z","timestamp":1376561046000},"page":"189-198","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":3,"title":["Using a Mandatory Reporting Database to Recruit Persons Living With HIV\/AIDS to Study Access to Care in Mississippi"],"prefix":"10.1177","volume":"15","author":[{"given":"Denise D.","family":"Krause","sequence":"first","affiliation":[{"name":"University of Mississippi Medical Center, Jackson, MS, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Warren L.","family":"May","sequence":"additional","affiliation":[{"name":"University of Mississippi Medical Center, Jackson, MS, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2013,8,14]]},"reference":[{"key":"bibr1-1524839913498086","doi-asserted-by":"publisher","DOI":"10.1353\/hpu.2007.0074"},{"key":"bibr2-1524839913498086","doi-asserted-by":"publisher","DOI":"10.1353\/hpu.2007.0075"},{"key":"bibr3-1524839913498086","doi-asserted-by":"publisher","DOI":"10.1016\/S0027-9684(15)30361-8"},{"key":"bibr4-1524839913498086","unstructured":"Connecticut HIV Planning Consortium for the Connecticut Department of Public Health AIDS and Chronic Diseases Section. (2012). The 2012 Statewide Coordinated Statement of Need for Connecticut. Retrieved from http:\/\/www.ct.gov\/dph\/lib\/dph\/aids_and_chronic\/care\/pdf\/scsn_chpc.pdf"},{"key":"bibr5-1524839913498086","doi-asserted-by":"publisher","DOI":"10.1353\/hpu.2007.0080"},{"key":"bibr6-1524839913498086","unstructured":"Health Resources and Services Administration HIV\/AIDS Programs. (2012a). About the Ryan White HIV\/AIDS program. Retrieved from http:\/\/hab.hrsa.gov\/abouthab\/aboutprogram.html"},{"key":"bibr7-1524839913498086","unstructured":"Health Resources and Services Administration HIV\/AIDS Programs. (2012b). Ryan White HIV\/AIDS program. Retrieved from http:\/\/hab.hrsa.gov\/"},{"key":"bibr8-1524839913498086","doi-asserted-by":"publisher","DOI":"10.1353\/hpu.2007.0082"},{"key":"bibr9-1524839913498086","doi-asserted-by":"publisher","DOI":"10.1521\/aeap.2005.17.Supplement B.26"},{"key":"bibr10-1524839913498086","unstructured":"Illinois Department of Public Health. (2009). Ryan White HIV\/AIDS program: Statewide Coordinated Statement of Need and Comprehensive Plan for HIV\/AIDS Services. Retrieved from http:\/\/www.idph.state.il.us\/aids\/materials\/SCSN_Comp_Plan_09.pdf"},{"key":"bibr11-1524839913498086","unstructured":"Kentucky Department for Public Health. (2007). 2007 Kentucky needs assessment. Retrieved from http:\/\/chfs.ky.gov\/nr\/rdonlyres\/005e59b2-4a4e-4d29-8a42-f08598053b90\/0\/hivpreventionneedsassessmentrevisedoct2007.pdf"},{"key":"bibr12-1524839913498086","author":"Krause D. D.","year":"2007","journal-title":"2005-2006 Comprehensive HIV\/AIDS Access to Health Care and Services Needs Assessment final report"},{"key":"bibr13-1524839913498086","doi-asserted-by":"publisher","DOI":"10.1080\/09540121.2012.686596"},{"key":"bibr14-1524839913498086","doi-asserted-by":"publisher","DOI":"10.1080\/09540121.2012.748880"},{"key":"bibr15-1524839913498086","unstructured":"Louisiana Office of Public Health. (2009). Louisiana Statewide Coordinated Statement of Need and HIV Comprehensive Plan. Retrieved from http:\/\/www.hiv411.org\/files\/File\/2011\/Louisiana_2009_Statewide_Coordinated_Statement_of_Need_and_HIV_Comprehensive_Plan.pdf"},{"key":"bibr16-1524839913498086","first-page":"4","volume":"108","author":"McKinney M. M.","year":"1993","journal-title":"Public Health Reports"},{"key":"bibr17-1524839913498086","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0000550"},{"key":"bibr18-1524839913498086","unstructured":"North Carolina Institute for Public Health School of Public Health, University of North Carolina at Chapel Health. (2006). State of North Carolina 2006 HIV\/AIDS Statewide Coordinated Statement of Need\/Comprehensive Care Plan. Retrieved from http:\/\/www.unc.edu\/courses\/2006spring\/pubh\/120\/001\/NC%2006%20SCSN-CP-1.pdf"},{"key":"bibr19-1524839913498086","unstructured":"Oregon Department of Human Services. (2007). Out of Care Study: Summary of study design and findings. Retrieved from http:\/\/public.health.oregon.gov\/DiseasesConditions\/HIVSTDViralHepatitis\/HIVCareTreatment\/Documents\/OutofCareSummary08.pdf"},{"key":"bibr20-1524839913498086","unstructured":"Ryan White CARE Act Amendments of 2000, Pub. L. 106-345, S. 2617b Cong. (2000)."},{"key":"bibr21-1524839913498086","unstructured":"South Carolina Department of Health and Environmental Control. (2012). South Carolina 2012 Rayn White HIV\/AIDS Statewide Coordinated Statement of Need and Comprehensive Plan. Retrieved from http:\/\/www.scdhec.gov\/health\/disease\/stdhiv\/docs\/2012SouthCarolinaSCSNandCompPlan.pdf"}],"container-title":["Health Promotion Practice"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1524839913498086","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/1524839913498086","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1524839913498086","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T08:23:31Z","timestamp":1777451011000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/1524839913498086"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2013,8,14]]},"references-count":21,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2014,3]]}},"alternative-id":["10.1177\/1524839913498086"],"URL":"https:\/\/doi.org\/10.1177\/1524839913498086","relation":{},"ISSN":["1524-8399","1552-6372"],"issn-type":[{"value":"1524-8399","type":"print"},{"value":"1552-6372","type":"electronic"}],"subject":[],"published":{"date-parts":[[2013,8,14]]}}}