{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,14]],"date-time":"2026-10-14T04:32:26Z","timestamp":1791952346379,"version":"4.3.4"},"reference-count":14,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2012,12,4]],"date-time":"2012-12-04T00:00:00Z","timestamp":1354579200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Am J Alzheimers Dis Other Demen"],"published-print":{"date-parts":[[2013,2]]},"abstract":"\n Aim:<\/jats:title>\n The burden of early-onset dementia (EOD) is often overshadowed by an ageing population.<\/jats:p>\n <\/jats:sec>\n \n Methods:<\/jats:title>\n A questionnaire comprising 12 items was completed by 18 patients with EOD (15 with Alzheimer\u2019s disease [AD] and 3 with frontotemporal dementia) and 39 caregivers (20 spouses, 8 children, 7 siblings, 2 carers, and 2 health professionals). The onset of patients\u2019 symptoms was prior to the age of 65 years. Caregivers had to be supporting someone who matched these criteria.<\/jats:p>\n <\/jats:sec>\n \n Results:<\/jats:title>\n Early recognition and referral was perceived as the principle area of improvement by both patients (94.4%) and carers (69.2%; P < .0002). Patients evaluated \u201cdiagnosis\u201d as the area of most need (88.9%) compared with caregivers who rated \u201ctreatment\u201d (69.2%) as their principle concern.<\/jats:p>\n <\/jats:sec>\n \n Conclusion:<\/jats:title>\n The perceived concerns of patients with EOD differ from that of the caregivers. Continued consumer involvement is essential in ensuring a tailored approach to young people with dementia.<\/jats:p>\n <\/jats:sec>","DOI":"10.1177\/1533317512466690","type":"journal-article","created":{"date-parts":[[2012,12,5]],"date-time":"2012-12-05T21:30:14Z","timestamp":1354743014000},"page":"42-46","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":28,"title":["The Needs of Patients With Early Onset Dementia"],"prefix":"10.1177","volume":"28","author":[{"given":"Elizabeth","family":"Armari","sequence":"first","affiliation":[{"name":"Neurodegenerative Disorders Research Pty Ltd, Subiaco, Perth, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna","family":"Jarmolowicz","sequence":"additional","affiliation":[{"name":"Neurodegenerative Disorders Research Pty Ltd, Subiaco, Perth, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Peter K.","family":"Panegyres","sequence":"additional","affiliation":[{"name":"Neurodegenerative Disorders Research Pty Ltd, Subiaco, Perth, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2012,12,4]]},"reference":[{"key":"bibr1-1533317512466690","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(10)70159-9"},{"key":"bibr2-1533317512466690","doi-asserted-by":"publisher","DOI":"10.1177\/1533317506295887"},{"key":"bibr3-1533317512466690","doi-asserted-by":"publisher","DOI":"10.1080\/13607861003713224"},{"key":"bibr4-1533317512466690","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.74.9.1206"},{"key":"bibr5-1533317512466690","doi-asserted-by":"publisher","DOI":"10.1002\/(SICI)1099-1166(199805)13:5<323::AID-GPS768>3.0.CO;2-O"},{"key":"bibr6-1533317512466690","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610209009223"},{"key":"bibr7-1533317512466690","doi-asserted-by":"publisher","DOI":"10.1001\/archneur.65.11.1502"},{"key":"bibr8-1533317512466690","doi-asserted-by":"publisher","DOI":"10.1080\/13607860220142396"},{"key":"bibr9-1533317512466690","doi-asserted-by":"publisher","DOI":"10.2190\/Q6J4-R143-P630-KW41"},{"key":"bibr10-1533317512466690","doi-asserted-by":"publisher","DOI":"10.2217\/bmm.09.92"},{"key":"bibr11-1533317512466690","first-page":"1","volume":"28","author":"van Vliet D","year":"2012","journal-title":"Psychol Med"},{"key":"bibr12-1533317512466690","unstructured":"Alzheimer\u2019s Disease International. World Alzheimer\u2019s Report 2011: The benefits of early diagnosis and intervention. United Kingdom, 2011. www.alz.co.uk\/worldreport2011. Accessed 19 May, 2012."},{"key":"bibr13-1533317512466690","doi-asserted-by":"publisher","DOI":"10.1177\/1533317506293259"},{"key":"bibr14-1533317512466690","doi-asserted-by":"publisher","DOI":"10.1177\/1533317510385811"}],"container-title":["American Journal of Alzheimer's Disease & Other Dementias\u00ae"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1533317512466690","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/1533317512466690","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/1533317512466690","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T09:23:10Z","timestamp":1777368190000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/1533317512466690"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2012,12,4]]},"references-count":14,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2013,2]]}},"alternative-id":["10.1177\/1533317512466690"],"URL":"https:\/\/doi.org\/10.1177\/1533317512466690","relation":{},"ISSN":["1533-3175","1938-2731"],"issn-type":[{"value":"1533-3175","type":"print"},{"value":"1938-2731","type":"electronic"}],"subject":[],"published":{"date-parts":[[2012,12,4]]}}}