{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T20:45:37Z","timestamp":1777495537220,"version":"3.51.4"},"reference-count":34,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2022,4,25]],"date-time":"2022-04-25T00:00:00Z","timestamp":1650844800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100001411","name":"Indian Council of Medical Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100001411","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Chronic Illness"],"published-print":{"date-parts":[[2023,6]]},"abstract":"<jats:p>Motor Neuron Disease (MND) leads to significant psychosocial distress for the person with the illness and caregivers. Psychosocial factors influence the management and quality of life to a significant degree.<\/jats:p>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To develop individualised psychosocial intervention program for people with MND and their families in India.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>People with MND and healthcare staff were constructively involved in co-designing the intervention program in four phases adapted from the MRC framework: 1. A detailed need assessment phase where 30 participants shared their perceptions of psychosocial needs 2. Developing the intervention module (synthesis of narrative review, identified needs); 3. Feasibility testing of the intervention program among seven participants; 4. Feedback from participants on the feasibility (acceptance, practicality adaptation). The study adopted an exploratory research design.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Intervention program of nine sessions, addressing psychosocial challenges through the different stages of progression of the illness and ways to handle the challenges, specific to the low resource settings, was developed and was found to be feasible. People with MND and families who participated in the feasibility study shared the perceived benefit through feedback interviews.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>MND has changing needs and challenges. Intervention programme was found to be feasible to be implemented among larger group to establish efficacy.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/17423953221097076","type":"journal-article","created":{"date-parts":[[2022,4,26]],"date-time":"2022-04-26T02:49:07Z","timestamp":1650941347000},"page":"458-471","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["An individualised psychosocial intervention program for persons with MND\/ALS and their families in low resource settings"],"prefix":"10.1177","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2421-7303","authenticated-orcid":false,"given":"Priya Treesa","family":"Thomas","sequence":"first","affiliation":[{"name":"Department of Psychiatric Social Work, National Institute of Mental Health and Neuro Sciences, Bangalore, India"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Manjusha G","family":"Warrier","sequence":"additional","affiliation":[{"name":"Department of Psychology, CHRIST (Deemed to be University), Bangalore"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"S","family":"Arun","sequence":"additional","affiliation":[{"name":"Department of Counselling Psychology, Montfort College, Bangalore"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"B","family":"Bhuvaneshwari","sequence":"additional","affiliation":[{"name":"Department of Psychiatry, St John\u2019s Medical college and hospital, Bangalore, India"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Seena","family":"Vengalil","sequence":"additional","affiliation":[{"name":"Department of Neurology, National Institute of Mental Health and Neuro Sciences, Bangalore, India"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Saraswati","family":"Nashi","sequence":"additional","affiliation":[{"name":"Department of Neurology, National Institute of Mental 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