{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,5]],"date-time":"2026-09-05T02:40:00Z","timestamp":1788576000288,"version":"build-2803163510"},"reference-count":49,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2023,5,7]],"date-time":"2023-05-07T00:00:00Z","timestamp":1683417600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100005889","name":"Faculty of Education, Victoria University of Wellington","doi-asserted-by":"publisher","award":["206786"],"award-info":[{"award-number":["206786"]}],"id":[{"id":"10.13039\/501100005889","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Chronic Illness"],"published-print":{"date-parts":[[2024,6]]},"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>This study aimed to explore self-management practices among patients and parents of children with sickle cell disease (SCD).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>The qualitative descriptive design was employed. The study involved 19 participants comprising adult SCD patients \u226516 years, and nine parents of SCD children\u2009\u2264\u200915 years. Purposive sampling was conducted to select participants from a teaching hospital and SCD association. Data was collected using one-on-one interviews, transcribed verbatim, and analysed using qualitative content analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Self-management was reported through four categories including preventive health, self-monitoring, self-diagnosis, and self-treatment. Hydration, nutrition, activity limitation, avoidance of cold temperatures, and supportive medications were the most common preventive health actions. Regarding self-monitoring and self-diagnosis, the parents emphasized objective indicators such as changes in urine and eye colour compared to the adults who utilize subjective indicators such as feeling unwell and easy fatigue. Pharmacological and non-pharmacological measures were reported by both groups for treating painful episodes, fever, leg ulcers, priapism, and unspecified symptoms.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion<\/jats:title>\n                    <jats:p>The participants in this study practice several self-management actions with some differences in application between adults and children. Tailored self-management services may be helpful for adults and children when developing services for SCD patients.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/17423953231172797","type":"journal-article","created":{"date-parts":[[2023,5,8]],"date-time":"2023-05-08T02:26:53Z","timestamp":1683512813000},"page":"233-245","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":7,"title":["Self-management for sickle cell disease among patients and parents: A qualitative study"],"prefix":"10.1177","volume":"20","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1614-6579","authenticated-orcid":false,"given":"Andrews Adjei","family":"Druye","sequence":"first","affiliation":[{"name":"School of Nursing and Midwifery, University of Cape Coast, Cape Coast, Ghana"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katherine","family":"Nelson","sequence":"additional","affiliation":[{"name":"Graduate School of Nursing and Midwifery, Victoria University of Wellington, Wellington, New Zealand"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Brian","family":"Robinson","sequence":"additional","affiliation":[{"name":"Graduate School of Nursing and Midwifery, Victoria University of Wellington, Wellington, New Zealand"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2023,5,7]]},"reference":[{"key":"bibr1-17423953231172797","unstructured":"WHO. Global Epidemiology of haemoglobinopathies. In: Ohene-Frempong (2010). A paper presented at the first global conference on sickle cell disease in Ghana. 2009."},{"key":"bibr2-17423953231172797","doi-asserted-by":"publisher","DOI":"10.2471\/BLT.06.036673"},{"key":"bibr3-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(12)61229-X"},{"key":"bibr4-17423953231172797","unstructured":"WHO. Sickle cell disease: A strategy for the WHO African Region (Sixteenth session), report of the regional director."},{"key":"bibr5-17423953231172797","doi-asserted-by":"crossref","DOI":"10.1542\/peds.2007-2022UUU","volume":"121","author":"Ohene-Frempong K","year":"2008","journal-title":"Pediatrics"},{"key":"bibr6-17423953231172797","volume-title":"The management of sickle cell disease","author":"National Heart Lung &amp; Blood Institute","year":"2002"},{"key":"bibr7-17423953231172797","volume-title":"Evidence-based management of sickle cell disease. Expert panel report","author":"National Heart Lung &amp; Blood Institute","year":"2014"},{"key":"bibr8-17423953231172797","unstructured":"National Heart Lung & Blood Institute. Evidenced-based management of sickle cell disease; Expert panel report. In: US Department of Health and Human Services: National Institute of Health, (ed.). 2014."},{"key":"bibr9-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2013-303773"},{"key":"bibr10-17423953231172797","volume-title":"Report of a summit. The 1st annual crossing the quality chasm summit-A focus on communities. ed","author":"Adams K","year":"2004"},{"key":"bibr11-17423953231172797","unstructured":"McGowan P. Health promotion, chronic disease, self management strategies for nurses, https:\/\/www.youtube.com\/watch?v=8-CCf8KUZtY (2011, accessed 10\/01\/14 2014)."},{"key":"bibr12-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1177\/0193945910386194"},{"key":"bibr13-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1016\/j.jnma.2018.08.001"},{"key":"bibr14-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1016\/j.pmn.2014.07.003"},{"key":"bibr15-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1111\/j.1745-7599.2012.00754.x"},{"key":"bibr16-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2458-13-1141"},{"key":"bibr17-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1097\/MLR.0b013e3182a95dd1"},{"key":"bibr18-17423953231172797","unstructured":"Brady T, Murphy L, Beauchesne D. Sorting through the evidence for the Arthritis Self-Management Program and the Chronic Disease Self-Management Program: executive summary of ASMP\/CDSMP meta-analyses [Internet]. Atlanta (GA): Centers for Disease Control and Prevention; 2011 May [cited 2012 Nov 5]. Joint publication of the Department of Health and Human Services, Washington (DC)."},{"key":"bibr19-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1016\/j.outlook.2008.10.004"},{"key":"bibr20-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1055\/s-0035-1556059"},{"key":"bibr21-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.26177"},{"key":"bibr22-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1016\/j.cct.2018.10.006"},{"key":"bibr23-17423953231172797","volume":"20","author":"Turner RM","year":"2018","journal-title":"J Med Internet Res"},{"key":"bibr24-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.20162"},{"key":"bibr25-17423953231172797","first-page":"61","volume":"33","author":"Yoon SL","journal-title":"Pediatric Nursing"},{"key":"bibr26-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1016\/j.jadohealth.2016.08.022"},{"key":"bibr27-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1097\/MPH.0b013e318257a13c"},{"key":"bibr28-17423953231172797","doi-asserted-by":"crossref","DOI":"10.17795\/jjcdc-21702","volume":"3","author":"Ahmadi M","year":"2014","journal-title":"Jundishapur Journal of Chronic Disease Care"},{"key":"bibr29-17423953231172797","first-page":"18","volume":"5","author":"Ahmadi M","year":"2015","journal-title":"Iran J Ped Hematol Oncol"},{"key":"bibr30-17423953231172797","first-page":"29","volume":"4","author":"Ahmadi M","year":"2015","journal-title":"Journal of Clinical Nursing and Midwifery"},{"key":"bibr31-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1177\/0193945919878821"},{"key":"bibr32-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1155\/2011\/270594"},{"key":"bibr33-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1016\/S0027-9684(15)30730-6"},{"key":"bibr34-17423953231172797","first-page":"76","volume":"2017","author":"Matthie N","year":"2017","journal-title":"J Sick Cell Dis Hemoglobinopathies"},{"key":"bibr35-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1002\/nur.21768"},{"key":"bibr36-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1177\/1049732305276687"},{"key":"bibr37-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2648.2007.04569.x"},{"key":"bibr38-17423953231172797","first-page":"16","volume":"12","author":"Jenerette CM","year":"2008","journal-title":"J Theory Constr Test"},{"key":"bibr39-17423953231172797","doi-asserted-by":"crossref","DOI":"10.1002\/hsr2.88","volume":"1","author":"Druye A","year":"2018","journal-title":"Health Science Reports"},{"key":"bibr40-17423953231172797","first-page":"1042","volume":"102","author":"Ballas SK","year":"2010","journal-title":"J Natl Med Assoc"},{"key":"bibr41-17423953231172797","volume-title":"Nursing adults with long term conditions","author":"Nicol J","year":"2011"},{"key":"bibr42-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1089\/acm.2006.12.995"},{"key":"bibr43-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1186\/s12906-017-1812-2"},{"key":"bibr44-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1007\/s10900-014-9922-y"},{"key":"bibr45-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1080\/10550490701525434"},{"key":"bibr46-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2141.2005.05723.x"},{"key":"bibr47-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1089\/can.2019.0036"},{"key":"bibr48-17423953231172797","doi-asserted-by":"publisher","DOI":"10.1089\/can.2018.0001"},{"key":"bibr49-17423953231172797","doi-asserted-by":"publisher","DOI":"10.9734\/IJTDH\/2015\/18336"}],"container-title":["Chronic Illness"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/17423953231172797","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/17423953231172797","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/17423953231172797","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T15:01:20Z","timestamp":1777388480000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/17423953231172797"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,5,7]]},"references-count":49,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2024,6]]}},"alternative-id":["10.1177\/17423953231172797"],"URL":"https:\/\/doi.org\/10.1177\/17423953231172797","relation":{},"ISSN":["1742-3953","1745-9206"],"issn-type":[{"value":"1742-3953","type":"print"},{"value":"1745-9206","type":"electronic"}],"subject":[],"published":{"date-parts":[[2023,5,7]]}}}