{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T23:27:52Z","timestamp":1790810872667,"version":"4.1.0"},"reference-count":21,"publisher":"SAGE Publications","issue":"3","license":[{"start":{"date-parts":[[2010,9,1]],"date-time":"2010-09-01T00:00:00Z","timestamp":1283299200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["J Intellect Disabil"],"published-print":{"date-parts":[[2010,9]]},"abstract":"<jats:p>This study aimed to define the term \u2018profound and multiple learning disabilities\u2019 (PMLD). A shared understanding of terminology or diagnostic terms describing groups of individuals is important for the purposes of strategic development, service planning, and the provision and equity of service delivery. A literature review provided different definitions and meanings associated with the term. The meaning attributed to the definitions was explored in focus groups and individual interviews (face to face and telephone) with service managers, commissioners, practitioners, frontline healthcare staff and family carers who provide services, support and care for people with PMLD. Further iterative discussions were held with a smaller group over the precise wording of the chosen definition to ensure there was a shared and common understanding. Personal characteristics for the purpose of this study are defined as diagnoses, disabilities, impairments, activity restrictions and other characteristics which represent a person with PMLD.<\/jats:p>","DOI":"10.1177\/1744629510386290","type":"journal-article","created":{"date-parts":[[2010,11,9]],"date-time":"2010-11-09T07:13:01Z","timestamp":1289286781000},"page":"221-235","source":"Crossref","is-referenced-by-count":77,"title":["A study to define: profound and multiple learning disabilities (PMLD)"],"prefix":"10.1177","volume":"14","author":[{"given":"Gary","family":"Bellamy","sequence":"first","affiliation":[{"name":"University of Sheffield, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Liz","family":"Croot","sequence":"additional","affiliation":[{"name":"University of Sheffield, UK,"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alick","family":"Bush","sequence":"additional","affiliation":[{"name":"Sheffield Health and Social Care NHS Foundation Trust, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hilary","family":"Berry","sequence":"additional","affiliation":[{"name":"Sheffield Health and Social Care NHS Foundation Trust, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Antoin","family":"Smith","sequence":"additional","affiliation":[{"name":"Sheffield Health and Social Care NHS Foundation Trust, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2010,11,9]]},"reference":[{"key":"atypb1","volume-title":"\u2018Pressures on Learning Disability Services: The Case for Review by Government of Current Funding\u2019","author":"Adss","year":"2005"},{"key":"atypb2","volume-title":"Social Theory and the Politics of Identity","author":"Calhoun, C.","year":"1994"},{"key":"atypb3","volume-title":"Valuing People: A New Strategy for Learning Disability for the 21st Century","author":"Department of Health","year":"2001"},{"key":"atypb4","volume-title":"Valuing People Now: From Progress to Transformation","author":"Department of Health","year":"2009"},{"key":"atypb5","volume-title":"Raising Our Sights: Services for Adults with Profound Intellectual and Multiple Disabilities","author":"Department of Health","year":"2010"},{"key":"atypb6","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3156.2007.00480.x"},{"key":"atypb7","author":"Hogg, J.","year":"2004","journal-title":"Practice in Intellectual Disabilities\u2019"},{"key":"atypb8","unstructured":"Lacey, P. 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