{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,9]],"date-time":"2026-10-09T23:37:02Z","timestamp":1791589022631,"version":"4.3.4"},"reference-count":55,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2022,2,11]],"date-time":"2022-02-11T00:00:00Z","timestamp":1644537600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Intellect Disabil"],"published-print":{"date-parts":[[2023,3]]},"abstract":"<jats:p>Down syndrome (DS) is a chromosomal condition that is affecting an increasing number of infants born in Saudi Arabia. This study investigates the needs of families with children with DS in Saudi Arabia from mothers\u2019 perspectives and in a cultural and religious context. An exploratory qualitative research design was used, and semi-structured interviews were conducted with 14 mothers of children with DS. Interview data were thematically analyzed. The most important need was found to be financial or tangible support. An increase in benefits or monthly financial allowances and social security insurance would address these concerns. Societal support is also needed; mothers want DS to be perceived differently and require more support, including better rehabilitation and education services. Informational support is needed to improve the conditions of children with DS. Recommendations for improving the quality of life of children with DS are discussed.<\/jats:p>","DOI":"10.1177\/17446295211044406","type":"journal-article","created":{"date-parts":[[2022,2,11]],"date-time":"2022-02-11T04:28:49Z","timestamp":1644553729000},"page":"221-237","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":11,"title":["Maternal perspectives: The needs of Saudi families of children with Down\u2019s syndrome"],"prefix":"10.1177","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0073-0997","authenticated-orcid":false,"given":"Waleed","family":"Alabri","sequence":"first","affiliation":[{"name":"King Faisal University, Saudi Arabia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2022,2,11]]},"reference":[{"key":"bibr1-17446295211044406","unstructured":"Alabri W (2017) The inclusion of children with Down\u2019s syndrome in mainstream primary schools in Saudi Arabia: Understanding the perspective of school principals. PhD Thesis, University of Lincoln, Lincoln."},{"key":"bibr2-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1080\/02673843.2011.649565"},{"issue":"1","key":"bibr3-17446295211044406","first-page":"45","volume":"13","author":"Al-Gain SI","year":"2002","journal-title":"Asia Pacific Disability Rehabilitation Journal"},{"key":"bibr4-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.38982.704931.AE"},{"key":"bibr5-17446295211044406","doi-asserted-by":"publisher","DOI":"10.18297\/etd\/2990"},{"key":"bibr6-17446295211044406","doi-asserted-by":"publisher","DOI":"10.5144\/0256-4947.59374"},{"issue":"3","key":"bibr7-17446295211044406","first-page":"139","volume":"25","author":"Alquraini T","year":"2011","journal-title":"International Journal of Special Education"},{"key":"bibr8-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1111\/cch.12093"},{"key":"bibr9-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1080\/09638280701414087"},{"key":"bibr10-17446295211044406","unstructured":"Al-Sughair S (2016) Down syndrome cases in KSA reach 20,000. Arab News. Available at: https:\/\/www.arabnews.com\/node\/982211\/saudi-arabia (accessed 01 August 2020)."},{"key":"bibr11-17446295211044406","doi-asserted-by":"publisher","DOI":"10.4324\/9780203944769"},{"key":"bibr12-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1136\/jme.2005.015396"},{"key":"bibr13-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1016\/j.socec.2013.02.004"},{"issue":"4","key":"bibr14-17446295211044406","first-page":"926","volume":"16","author":"Barr MD","year":"2016","journal-title":"African Health Sciences"},{"key":"bibr15-17446295211044406","volume-title":"Meeting the Educational Needs of Children with Down\u2019s Syndrome: A Handbook for Teachers","author":"Bird G","year":"1994"},{"key":"bibr16-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1016\/S0010-440X(00)90133-0"},{"issue":"2","key":"bibr17-17446295211044406","first-page":"175","volume":"6","author":"Buzatto LL","year":"2008","journal-title":"Einstein"},{"key":"bibr18-17446295211044406","doi-asserted-by":"publisher","DOI":"10.4324\/9781315739229"},{"issue":"1","key":"bibr19-17446295211044406","first-page":"1","volume":"2","author":"Chong HG","year":"2008","journal-title":"Journal of Business and Public Affairs"},{"key":"bibr20-17446295211044406","doi-asserted-by":"publisher","DOI":"10.4324\/9780203933459"},{"key":"bibr21-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1086\/499755"},{"key":"bibr22-17446295211044406","doi-asserted-by":"publisher","DOI":"10.4135\/9781446287880"},{"issue":"3","key":"bibr23-17446295211044406","first-page":"105","volume":"12","author":"Cuskelly M","year":"2009","journal-title":"Down Syndrome Research and Practice"},{"key":"bibr24-17446295211044406","unstructured":"Down\u2019s Syndrome Association (2020) For families and carers: vision. DSA. Available at: https:\/\/www.downs-syndrome.org.uk\/for-families-and-carers\/health-and-well-being\/vision\/ (accessed 01 June 2020)."},{"key":"bibr25-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1352\/1944-7558-115.4.277"},{"key":"bibr26-17446295211044406","volume-title":"Special Education in Contemporary Society","author":"Gargiulo M","year":"2018","edition":"6"},{"key":"bibr27-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1177\/1525822X05279903"},{"key":"bibr28-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1352\/0047-6765(2006)44[189:SACAAW]2.0.CO;2"},{"issue":"3","key":"bibr29-17446295211044406","first-page":"417","volume":"98","author":"Heller T","year":"1993","journal-title":"American Journal on Mental Retardation"},{"key":"bibr30-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1111\/jppi.12110"},{"key":"bibr31-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1177\/1367493517727131"},{"key":"bibr32-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1108\/03090590610673641"},{"key":"bibr33-17446295211044406","unstructured":"Japan International Cooperation Agency (JICA) (2002) Country profile on disability: Kingdom of Saudi Arabia. JICA. Available at: https:\/\/digitalcommons.ilr.cornell.edu\/cgi\/viewcontent.cgi?article=1233&context=gladnetcollect (accessed 01 July 2020)."},{"key":"bibr34-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1177\/1049732313504828"},{"key":"bibr35-17446295211044406","doi-asserted-by":"publisher","DOI":"10.5014\/ajot.45.3.214"},{"key":"bibr36-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1080\/713663758"},{"key":"bibr37-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1111\/cch.12162"},{"key":"bibr38-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1023\/A:1015388803216"},{"key":"bibr39-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1080\/09687599.2014.886555"},{"issue":"2","key":"bibr40-17446295211044406","first-page":"121","volume":"22","author":"Mulazadeh MA","year":"2016","journal-title":"Journal on Developmental Disabilities"},{"key":"bibr41-17446295211044406","volume-title":"Practitioner-Based Enquiry: Principles for Postgraduate Research","author":"Murray L","year":"2000"},{"key":"bibr42-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1034\/j.1601-183X.2003.00026.x"},{"key":"bibr43-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1037\/a0039840"},{"key":"bibr44-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1159\/000154261"},{"key":"bibr45-17446295211044406","doi-asserted-by":"publisher","DOI":"10.4324\/9780203118436"},{"key":"bibr46-17446295211044406","unstructured":"Raising Children Network (2020) The Australian parenting website. Raising Children Network (Australia) Limited. Available at: https:\/\/raisingchildren.net.au\/ (accessed 01 May 2020)."},{"key":"bibr47-17446295211044406","doi-asserted-by":"publisher","DOI":"10.4135\/9781412986274.n12"},{"key":"bibr48-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1017\/CBO9780511581786.012"},{"key":"bibr49-17446295211044406","unstructured":"Sijeeni A (2016) Understanding the experiences of mothers caring for children with Down Syndrome in Saudi Arabia. PhD Thesis, Queensland University of Technology, Brisbane."},{"key":"bibr50-17446295211044406","doi-asserted-by":"publisher","DOI":"10.4135\/9781446216569"},{"key":"bibr51-17446295211044406","unstructured":"The Voice of Down Syndrome Society (SAUT) (2020) The Voice of Down Syndrome Society. SAUT. Available at: https:\/\/new.saut.org.sa\/about-saut (accessed 01 April 2020)."},{"key":"bibr52-17446295211044406","volume-title":"Inclusive Schooling: National and International Perspectives","author":"Vitello SJ","year":"1999"},{"key":"bibr53-17446295211044406","doi-asserted-by":"publisher","DOI":"10.1080\/09687590500060554"},{"key":"bibr54-17446295211044406","first-page":"81","volume-title":"Special Teaching for Special Children?","author":"Wishart J","year":"2005"},{"key":"bibr55-17446295211044406","doi-asserted-by":"publisher","DOI":"10.5463\/dcid.v26i2.414"}],"container-title":["Journal of Intellectual Disabilities"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/17446295211044406","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/17446295211044406","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/17446295211044406","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T23:19:02Z","timestamp":1777504742000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/17446295211044406"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,2,11]]},"references-count":55,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2023,3]]}},"alternative-id":["10.1177\/17446295211044406"],"URL":"https:\/\/doi.org\/10.1177\/17446295211044406","relation":{},"ISSN":["1744-6295","1744-6309"],"issn-type":[{"value":"1744-6295","type":"print"},{"value":"1744-6309","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,2,11]]}}}