{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,2]],"date-time":"2026-10-02T13:25:49Z","timestamp":1790947549496,"version":"4.1.0"},"reference-count":35,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2022,1,11]],"date-time":"2022-01-11T00:00:00Z","timestamp":1641859200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100023251","name":"VID Specialized University","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100023251","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Intellect Disabil"],"published-print":{"date-parts":[[2023,3]]},"abstract":"<jats:p>People with profound and multiple learning disabilities are often excluded from the processes of knowledge production and face barriers to inclusion in research due to cognitive and communicative challenges. Inclusive research\u2014even when intending to be inclusive\u2014tends to operate within criteria that exclude people with profound and multiple learning disabilities. The aim of this article is to provide a state-of-the-art review of the topic of inclusive research involving people with profound disabilities and thereby challenge traditional assumptions of inclusive research. The review presents themes that will inform a discussion on how to challenge the criteria in ways that make it possible to understand inclusive research for people who communicate in unconventional ways. We argue that a fruitful way of rethinking inclusive research is by applying a sensory-dialogical approach that privileges the dialogical and sensory foundations of the research. We suggest this might be a way to understand inclusive research that regards the person\u2019s communicative and cognitive distinctiveness.<\/jats:p>","DOI":"10.1177\/17446295211062390","type":"journal-article","created":{"date-parts":[[2022,1,11]],"date-time":"2022-01-11T13:18:39Z","timestamp":1641907119000},"page":"40-53","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":39,"title":["Advancing inclusive research with people with profound and multiple learning disabilities through a sensory-dialogical approach"],"prefix":"10.1177","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8686-9265","authenticated-orcid":false,"given":"Anita","family":"Gjermestad","sequence":"first","affiliation":[{"name":"Faculty of Health, Sandnes. VID Specialized University, Sandnes, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Synne N","family":"Skarsaune","sequence":"additional","affiliation":[{"name":"Faculty of Health, Sandnes. VID Specialized University, Sandnes, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ruth L","family":"Bartlett","sequence":"additional","affiliation":[{"name":"Faculty of Health, Oslo. VID Specialized University, Oslo, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2022,1,11]]},"reference":[{"key":"bibr1-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1177\/1461444818755394"},{"key":"bibr2-17446295211062390","volume-title":"The Dialogic Imagination: Four Essays","author":"Bakhtin MM","year":"1981"},{"key":"bibr3-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1177\/1049732319833361"},{"key":"bibr4-17446295211062390","unstructured":"Boxall K (2010) Involving people with profound and multiple learning difficulties in research: Barriers and possibilities. In: Disability Studies Conference, Lancaster, UK, September, 2010."},{"key":"bibr5-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1080\/13668250802688306"},{"key":"bibr6-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1111\/j.1468-3156.2010.00645.x"},{"key":"bibr7-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"bibr9-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1177\/0969733011426818"},{"key":"bibr10-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1111\/bld.12174"},{"key":"bibr11-17446295211062390","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2014.302006"},{"key":"bibr12-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1177\/1077800416655829"},{"key":"bibr13-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1177\/1049732305279078"},{"key":"bibr14-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1111\/j.1471-1842.2009.00848.x"},{"key":"bibr15-17446295211062390","doi-asserted-by":"publisher","DOI":"10.4324\/9780203413371"},{"key":"bibr16-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1177\/1747016117711971"},{"key":"bibr17-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1002\/9781444322781.ch22"},{"key":"bibr18-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1177\/1077800413510871"},{"key":"bibr19-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1177\/1077800417727761"},{"key":"bibr20-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12803"},{"key":"bibr21-17446295211062390","doi-asserted-by":"publisher","DOI":"10.5042\/tldr.2010.0399"},{"key":"bibr22-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1080\/13645579.2017.1287872"},{"key":"bibr23-17446295211062390","author":"Nind M","year":"2013","journal-title":"PMLD Link"},{"key":"bibr24-17446295211062390","doi-asserted-by":"publisher","DOI":"10.5040\/9781849668149"},{"key":"bibr25-17446295211062390","volume-title":"A Practical Guide to Intensive Interaction","author":"Nind M","year":"2001"},{"key":"bibr26-17446295211062390","doi-asserted-by":"publisher","DOI":"10.4324\/9780429260711"},{"key":"bibr27-17446295211062390","doi-asserted-by":"publisher","DOI":"10.4135\/9781473917057"},{"key":"bibr28-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1353\/book.20623"},{"key":"bibr29-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1080\/13575279.2014.976179"},{"key":"bibr30-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1177\/1077800417727763"},{"key":"bibr31-17446295211062390","volume-title":"Convention on the Rights of Persons with Disabilities (CRPD)","author":"United Nations","year":"2006"},{"key":"bibr32-17446295211062390","volume-title":"Giving Voice to Profound Disability: Dignity, Dependence and Human Capabilities","author":"Vorhaus J","year":"2016"},{"key":"bibr33-17446295211062390","volume-title":"Inclusive Research with People with Learning Disabilities: Past, Present and Futures","author":"Walmsley J","year":"2003"},{"key":"bibr34-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12431"},{"key":"bibr35-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1080\/02615479.2016.1239705"},{"key":"bibr36-17446295211062390","doi-asserted-by":"publisher","DOI":"10.1386\/jaac.7.3.167_1"}],"container-title":["Journal of Intellectual Disabilities"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/17446295211062390","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/17446295211062390","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/17446295211062390","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T23:19:03Z","timestamp":1777504743000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/17446295211062390"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,1,11]]},"references-count":35,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2023,3]]}},"alternative-id":["10.1177\/17446295211062390"],"URL":"https:\/\/doi.org\/10.1177\/17446295211062390","relation":{},"ISSN":["1744-6295","1744-6309"],"issn-type":[{"value":"1744-6295","type":"print"},{"value":"1744-6309","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,1,11]]}}}