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An interpretive phenomenological analysis was used to understand the lived experiences of a purposive sample of formal caregivers in caring for people with intellectual disability and dementia. Discussions from 14 individual interviews generated data were analysed. Four key super-ordinate themes emerged which were: (1) recognising early indicators and diagnosis, (2) post diagnostic support, (3) coping with change and (4) need for future development. Themes reflected the experiences, barriers to dementia diagnosis and provide a valuable insight into the challenges faced by formal caregivers in providing aged care services.<\/jats:p>","DOI":"10.1177\/17446295241259076","type":"journal-article","created":{"date-parts":[[2024,5,30]],"date-time":"2024-05-30T23:33:53Z","timestamp":1717112033000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":5,"title":["Exploring the lived experiences and care challenges of formal paid caregivers for people with intellectual disability and dementia"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9989-8225","authenticated-orcid":false,"given":"Daniel James","family":"Acton","sequence":"first","affiliation":[{"name":"Cheshire and Wirral Partnership NHS Foundation Trust - Centre for Autism Neurodevelopmental Disorders and Intellectual Disability (CANDDID), UK"},{"name":"University of Chester, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sujeet","family":"Jaydeokar","sequence":"additional","affiliation":[{"name":"Cheshire and Wirral Partnership NHS Foundation Trust - Centre for Autism Neurodevelopmental Disorders and Intellectual Disability (CANDDID), UK"},{"name":"University of Chester, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6575-0812","authenticated-orcid":false,"given":"Ruth","family":"Taylor","sequence":"additional","affiliation":[{"name":"University of Chester, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Steven","family":"Jones","sequence":"additional","affiliation":[{"name":"University of Chester, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,5,30]]},"reference":[{"key":"bibr1-17446295241259076","doi-asserted-by":"publisher","DOI":"10.1108\/AMHID-08-2022-0027"},{"key":"bibr2-17446295241259076","doi-asserted-by":"publisher","DOI":"10.1108\/AMHID-02-2023-0006"},{"key":"bibr3-17446295241259076","doi-asserted-by":"publisher","DOI":"10.1111\/jir.12338"},{"key":"bibr4-17446295241259076","doi-asserted-by":"publisher","DOI":"10.1097\/WAD.0b013e3181a6bebc"},{"key":"bibr5-17446295241259076","unstructured":"Carling-Jenkins R., Bigby C., Iacono T. 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