{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,6]],"date-time":"2026-07-06T14:21:19Z","timestamp":1783347679446,"version":"3.54.6"},"reference-count":45,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,7,1]],"date-time":"2026-07-01T00:00:00Z","timestamp":1782864000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,7,1]],"date-time":"2026-07-01T00:00:00Z","timestamp":1782864000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["GTN2015902"],"award-info":[{"award-number":["GTN2015902"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100020265","name":"Stan Perron Charitable Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100020265","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Womens Health (Lond Engl)"],"published-print":{"date-parts":[[2026,7]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Menstruation can be complex and challenging to manage, including for those with intellectual disability. People with intellectual disability experience additional barriers that prevent adequate access to information and support. Parents play an important role in supporting young people with intellectual disability with menstruation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>The aim of this study was to explore parental experiences and identify areas of complexity associated with menstruation for their young people with intellectual disability to guide the development of priority supports.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>A qualitative interview study to deeply explore the rich experiences of parents.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Parents of young people with intellectual disability were interviewed about their experiences of supporting their child\u2019s menstruation, including their decision-making processes and information and management needs. Data were analysed using inductive reflexive thematic analysis with NVivo software.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The sample comprised 16 parents (all mothers) who discussed 17 young people with intellectual disability (10-25 years). Five themes were constructed: (1) Setting up for success (establishing positive menstruation attitudes), (2) Competing priorities (wellbeing, convenience, and inclusion prioritised over menstruation), (3) Support from multiple avenues (support from different people, professions, and organisations was important) (4) Protecting dignity and safety (concerns about sexual abuse, pregnancy, distress, socially unacceptable behaviours, and pain), and (5) There is more to be done (information and attitudes need to be improved).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>It is important to understand the menstruation experiences and needs of parents of young people with intellectual disability because of management uncertainty and complexity. This study contributes to an under-researched field and can inform changes to better support families including much needed information and education.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/17455057261465643","type":"journal-article","created":{"date-parts":[[2026,7,4]],"date-time":"2026-07-04T11:44:21Z","timestamp":1783165461000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Understanding parents\u2019 experiences and needs when managing menstruation with young people with intellectual disability"],"prefix":"10.1177","volume":"22","author":[{"given":"Emily","family":"Kearns","sequence":"first","affiliation":[{"name":"Child Disability, The Kids Research Institute Australia"},{"name":"Curtin University"},{"name":"School of Psychological Sciences, University of Western Australia, Perth, WA Jessica Keeley, University of Western Australia Medical School, University of Western Australia, Perth, WA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lauren J.","family":"Breen","sequence":"additional","affiliation":[{"name":"Curtin University"},{"name":"Curtin University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rachel","family":"Skoss","sequence":"additional","affiliation":[{"name":"Child Disability, The Kids Research Institute Australia"},{"name":"Microboards Australia"},{"name":"University of Western Australia"},{"name":"The University of Notre Dame Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Aasta","family":"Abbott","sequence":"additional","affiliation":[{"name":"University of Western Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Thom","family":"Nevill","sequence":"additional","affiliation":[{"name":"Child Disability, The Kids Research Institute Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7358-9037","authenticated-orcid":false,"given":"Jenny","family":"Downs","sequence":"additional","affiliation":[{"name":"Child Disability, The Kids Research Institute Australia"},{"name":"Curtin University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9613-4713","authenticated-orcid":false,"given":"Jessica","family":"Keeley","sequence":"additional","affiliation":[{"name":"Child Disability, The Kids Research Institute Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,7,4]]},"reference":[{"key":"e_1_3_9_2_2","doi-asserted-by":"publisher","DOI":"10.20884\/1.mhj.2025.5.1.14878"},{"key":"e_1_3_9_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpag.2023.02.005"},{"key":"e_1_3_9_4_2","doi-asserted-by":"publisher","DOI":"10.1080\/2159676X.2019.1704846"},{"key":"e_1_3_9_5_2","volume-title":"Convention on the Rights of Persons with Disabilities","author":"United Nations","year":"2006","unstructured":"United Nations. 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