{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,30]],"date-time":"2026-10-30T16:45:32Z","timestamp":1793378732542,"version":"4.5.0"},"reference-count":22,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,6,26]],"date-time":"2026-06-26T00:00:00Z","timestamp":1782432000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,6,26]],"date-time":"2026-06-26T00:00:00Z","timestamp":1782432000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100000364","name":"Stroke Association","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000364","id-type":"DOI","asserted-by":"publisher"}]},{"name":"CanStroke Recovery Trials group"},{"DOI":"10.13039\/100031936","name":"Moleac","doi-asserted-by":"crossref","id":[{"id":"10.13039\/100031936","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/501100001505","name":"Health Research Council of New Zealand","doi-asserted-by":"crossref","award":["20\/603"],"award-info":[{"award-number":["20\/603"]}],"id":[{"id":"10.13039\/501100001505","id-type":"DOI","asserted-by":"crossref"}]},{"name":"CIHR Foundation","award":["FDN# 143237"],"award-info":[{"award-number":["FDN# 143237"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["International Journal of Stroke"],"abstract":"\n Rationale:<\/jats:title>\n There is a growing recognition of the importance of engaging with people with lived experience (PWLE) to support research relevance and impact. However, there is little specific guidance for stroke recovery and rehabilitation researchers about how best to engage with PWLE of stroke in research, who face additional barriers to engaging due to common post-stroke sequelae including communication and cognitive difficulties, sensory and perceptual impairments, emotional wellbeing, and fatigue. The aim of this roundtable was to develop recommendations to support researchers to engage with PWLE of stroke in primary and secondary research conducted in laboratory, clinical, health system, or community settings.<\/jats:p>\n <\/jats:sec>\n \n Methods:<\/jats:title>\n We convened an interdisciplinary, international taskforce comprising researchers and lived experience experts (n\u2009=\u200916) to create recommendations to support researchers to engage with PWLE of stroke meaningfully and respectfully. Guided by priorities and key gaps identified by taskforce members, and underpinned by gray and published literature, we formed discrete workgroups to develop consensus-based recommendations and guidance documents addressing common barriers to engagement in stroke research. The recommendations and guides were reviewed, and consensus was reached during a 2-day hybrid in-person\/online meeting of the taskforce. These were further refined through consultation with international experts in research engagement.<\/jats:p>\n <\/jats:sec>\n \n Results:<\/jats:title>\n We created the EMBED (Engaging Meaningfully to Build research with people with lived experience to drive improvements in stroke research) framework, consisting of five consensus recommendations: Select the engagement approach; Identify people to engage with; Embed accessible and inclusive ways of working; Support and strengthen accessibility and inclusivity; and Report accessibility and inclusivity. Ten guidance documents provide practical support to researchers to engage with PWLE of stroke in all research settings.<\/jats:p>\n <\/jats:sec>\n \n Conclusions:<\/jats:title>\n The EMBED framework provides researchers with pragmatic and structured support to engage with PWLE in stroke research.<\/jats:p>\n <\/jats:sec>","DOI":"10.1177\/17474930261466091","type":"journal-article","created":{"date-parts":[[2026,6,26]],"date-time":"2026-06-26T11:45:15Z","timestamp":1782474315000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":3,"title":["Advancing engagement of people with lived experience of stroke in recovery and rehabilitation research: Consensus-based core recommendations from the fourth Stroke Recovery and Rehabilitation Roundtable"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8756-1051","authenticated-orcid":false,"given":"Elizabeth A","family":"Lynch","sequence":"first","affiliation":[{"name":"Caring Futures Institute, College of Health and Enablement, Flinders University, Adelaide, SA, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Felicity AS","family":"Bright","sequence":"additional","affiliation":[{"name":"Centre for Person Centred Rehabilitation Research Centre, School of Allied Health, Auckland University of Technology, Auckland, New Zealand"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Saran","family":"Chamberlain","sequence":"additional","affiliation":[{"name":"Caring Futures Institute, College of Health and Enablement, Flinders University, Adelaide, SA, Australia"},{"name":"Lived Experience Expert"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Adewale","family":"Adebajo","sequence":"additional","affiliation":[{"name":"Lived Experience 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University of Newcastle, Callaghan, NSW, Australia"},{"name":"Brain Health Program, Hunter Medical Research Institute, Newcastle, NSW, Australia"},{"name":"Centre of Research Excellence to Accelerate Stroke Trial Innovation and Translation, University of Sydney, Sydney, NSW, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ian D","family":"Graham","sequence":"additional","affiliation":[{"name":"School of Epidemiology and Public Health, University of Ottawa, Ottawa, ON, Canada"},{"name":"Ottawa Hospital Research Institute, Ottawa, ON, Canada"},{"name":"Canadian Institutes of Health Research, Ottawa, ON, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jytte","family":"Isaksen","sequence":"additional","affiliation":[{"name":"Department of Culture and Language, University of Southern Denmark, Odense, Denmark"},{"name":"Neurorehabilitation Research and Knowledge Centre, Copenhagen University Hospital, Copenhagen, Denmark"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Molly X","family":"Manning","sequence":"additional","affiliation":[{"name":"School of Allied Health, Health Research Institute, University of Limerick, Limerick, Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sidhiprada","family":"Mohapatra","sequence":"additional","affiliation":[{"name":"Department of Physiotherapy, Manipal College of Health Professions, Manipal Academy of Higher Education, Manipal, India"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2002-0298","authenticated-orcid":false,"given":"Michelle","family":"Nelson","sequence":"additional","affiliation":[{"name":"School of Epidemiology and Public Health, University of Ottawa, Ottawa, ON, Canada"},{"name":"Bruyere Health Research Institute, Bruyere Health, Ottawa, ON, 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