{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,23]],"date-time":"2026-10-23T20:35:10Z","timestamp":1792787710614,"version":"4.5.0"},"reference-count":25,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,10,13]],"date-time":"2026-10-13T00:00:00Z","timestamp":1791849600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,10,13]],"date-time":"2026-10-13T00:00:00Z","timestamp":1791849600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"European Union","award":["grant no. 101137270"],"award-info":[{"award-number":["grant no. 101137270"]}],"id":[{"id":"https:\/\/ror.org\/019w4f821","id-type":"ROR","asserted-by":"crossref"}]},{"name":"ParkinsonNL","award":["P2021-04"],"award-info":[{"award-number":["P2021-04"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Parkinson\u2019s Disease"],"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Advance Care Planning (ACP) enables people with progressive diseases to document and communicate future treatment preferences. For Parkinson's disease (PD) and atypical parkinsonism (AP), ACP is particularly important\u00a0because of disease complexity, symptom burden, the progressive nature of the disease, and cognitive decline, yet its implementation across care settings remains unclear.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted a medical chart review of 189 deceased patients with PD or AP who died in nursing homes (n\u2009=\u200991), hospitals (n\u2009=\u200958), or at home (n\u2009=\u200940) in the Netherlands. For patients who died at home, data were obtained from their general practice records. Data on treatment preferences, care discussions and palliative care goals were extracted at one year and six weeks before death.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Documentation of treatment preferences increased towards death but differed markedly between settings. Nursing homes recorded resuscitation and ICU limitations early and comprehensively, whereas hospitals made major updates only in the final weeks of life. In general practices, ACP documentation was limited. Nursing homes and hospitals more frequently addressed disease-specific scenarios, palliative sedation and end-of-life issues, while general practices more often reported preferred place of death and euthanasia. Palliative care goals in nursing homes covered all domains, while in hospitals and general practices they mainly related to physical aspects.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>ACP remains inconsistently documented and frequently delayed until the final weeks of life, when crises or cognitive decline may hinder meaningful participation. Earlier, iterative ACP\u2014supported by clinician training, PD-specific guidance, and system-level measures such as ACP prompts in electronic medical records\u2014could foster a more proactive and person-centered palliative approach aligned with patient values throughout the disease trajectory.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/1877718x261495736","type":"journal-article","created":{"date-parts":[[2026,10,13]],"date-time":"2026-10-13T17:17:16Z","timestamp":1791911836000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Charting the future: A multi-setting medical chart study of advance care planning in Parkinson's disease and atypical Parkinsonism"],"prefix":"10.1177","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1182-8300","authenticated-orcid":false,"given":"Herma","family":"Lennaerts-Kats","sequence":"first","affiliation":[{"name":"Radboud university medical center"},{"name":"Department of Donders Institute for Brain, Cognition and Behaviour; Department of Neurology, Center of Expertise for Parkinson &amp; Movement Disorders; Radboudumc, Nijmegen, the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6921-482X","authenticated-orcid":false,"given":"Bauke W.","family":"Dijkstra","sequence":"additional","affiliation":[{"name":"Rotterdam University of Applied sciences"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anke","family":"Elbers","sequence":"additional","affiliation":[{"name":"Rotterdam University of Applied sciences"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bastiaan R.","family":"Bloem","sequence":"additional","affiliation":[{"name":"Rotterdam University of Applied sciences"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marieke C.","family":"Groot","sequence":"additional","affiliation":[{"name":"Department of Donders Institute for Brain, Cognition and Behaviour; Department of Neurology, Center of Expertise for Parkinson &amp; Movement Disorders; Radboudumc, Nijmegen, the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jenny T.","family":"van der Steen","sequence":"additional","affiliation":[{"name":"Radboud university medical center"},{"name":"Leiden University Medical Center"},{"name":"Cicely Saunders Institute, King's College London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6491-7035","authenticated-orcid":false,"given":"Marjan J.","family":"Meinders","sequence":"additional","affiliation":[{"name":"Rotterdam University of Applied sciences"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,10,13]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1016\/S1470-2045(17)30582-X"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1007\/s00702-025-02989-x"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1097\/JNN.0000000000000776"},{"key":"e_1_3_3_5_2","unstructured":"Lennaerts H Ebenau A Steppe M et al. \u201cHow long can I carry on?\u201d \u2013 Experiences with palliative care for people with Parkinson\u2019s disease: a qualitative study with bereaved family caregivers. 2019."},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1001\/jamainternmed.2015.1679"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216314526272"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216318809571"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMoa1000678"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1177\/02692163251344428"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.3109\/02813432.2013.854590"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12875-020-01265-z"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1177\/0891988720988917"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2024-097655"},{"key":"e_1_3_3_15_2","doi-asserted-by":"publisher","DOI":"10.1093\/fampra\/cmy124"},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-223539"},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.1080\/13814780802436028"},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-020-02002-y"},{"key":"e_1_3_3_19_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-022-00907-6"},{"key":"e_1_3_3_20_2","first-page":"2107821","article-title":"Advance directives of German people with Parkinson\u2019s disease are unspecific in regard to typical complications","volume":"2019","author":"Klietz M","year":"2019","unstructured":"Klietz M, \u00d6calan \u00d6, Schneider N, et al. Advance directives of German people with Parkinson\u2019s disease are unspecific in regard to typical complications. Parkinsons Dis 2019; 2019: 2107821. 20190804.","journal-title":"Parkinsons Dis"},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.3390\/jcm9020449"},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.1177\/02692163211068692"},{"key":"e_1_3_3_23_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-022-01052-w"},{"key":"e_1_3_3_24_2","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0230611"},{"key":"e_1_3_3_25_2","first-page":"20240315","article-title":"Situation, education, innovation, and recommendation: a large-scale systematic review of advance care planning in the age of COVID-19","volume":"12","author":"Mayers T","year":"2024","unstructured":"Mayers T, Sakamoto A, Inokuchi R, et al. Situation, education, innovation, and recommendation: a large-scale systematic review of advance care planning in the age of COVID-19. 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