{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,3]],"date-time":"2026-08-03T20:33:49Z","timestamp":1785789229212,"version":"3.56.0"},"reference-count":53,"publisher":"SAGE Publications","issue":"3","license":[{"start":{"date-parts":[[2020,10,7]],"date-time":"2020-10-07T00:00:00Z","timestamp":1602028800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["British Journal of Pain"],"published-print":{"date-parts":[[2021,8]]},"abstract":"<jats:sec>\n                    <jats:title>Introduction:<\/jats:title>\n                    <jats:p>Prior research into endometriosis-related pain has focused on specific aspects of the pain experience such as cyclical pain, emotional aspects of pain and certain types of pain such as dysmenorrhea and dyspareunia. However, research has paid less attention to the diversity and complexity of women\u2019s pain experiences, which can lead to failure to recognise some symptoms as part of endometriosis and poor symptom management.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>We conducted qualitative semi-structured face-to-face interviews with 20 women in the United Kingdom recruited from an endometriosis self-help group with a diagnosis of endometriosis via laparoscopy. A topic guide framed questions around experiences of pain. Interviews were audio-recorded and transcribed verbatim. Transcripts were analysed using inductive thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Women experienced multiple types of pain that they felt were caused by endometriosis and affected many different parts of the body including bowel, bladder, lungs, kidneys, nerves, upper body, lower limbs and head. These pains consisted of different conceptual categories: type, pattern and intensity. These categories came together to create a complex, interrelated experience for each individual that we termed \u2018constellations of pain\u2019 because each woman had a complex set of pain categories and no two individuals appeared to have the same pain experience.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>The complexity and diversity of endometriosis-related pain found in this study has implications for improving diagnosis, medical and non-medical pain management and improving the clinical encounter between women and healthcare professionals.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/2049463720961413","type":"journal-article","created":{"date-parts":[[2020,10,7]],"date-time":"2020-10-07T03:06:12Z","timestamp":1602039972000},"page":"345-356","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":29,"title":["Constellations of pain: a qualitative study of the complexity of women\u2019s endometriosis-related pain"],"prefix":"10.1177","volume":"15","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7183-6321","authenticated-orcid":false,"given":"Sarah J","family":"Drabble","sequence":"first","affiliation":[{"name":"School of Health and Related Research (ScHARR), University of Sheffield, Sheffield, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jaqui","family":"Long","sequence":"additional","affiliation":[{"name":"School of Health and Related Research (ScHARR), University of Sheffield, Sheffield, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Blessing","family":"Alele","sequence":"additional","affiliation":[{"name":"School of Health and Related Research (ScHARR), University of Sheffield, Sheffield, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alicia","family":"O\u2019Cathain","sequence":"additional","affiliation":[{"name":"School of Health and Related Research (ScHARR), University of Sheffield, Sheffield, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2020,10,7]]},"reference":[{"key":"bibr1-2049463720961413","unstructured":"Endometriosis UK. Endometriosis Facts and Figures. Endometriosis UK website, https:\/\/www.endometriosis-uk.org\/endometriosis-facts-and-figures (2020, accessed 17 September 2020)."},{"key":"bibr2-2049463720961413","unstructured":"Endometriosis Foundation of America. What Is Endometriosis, https:\/\/www.endofound.org\/endometriosis (2019, accessed 16 July 2019)."},{"key":"bibr3-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1080\/00497878.2015.1078212"},{"key":"bibr4-2049463720961413","unstructured":"Fox L. Endometriosis and being a trans person: beyond gendered reproductive health. 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Guardian Newspaper 2015, http:\/\/www.theguardian.com\/society\/ng-interactive\/2015\/sep\/27\/the-pain-is-paralysing-30-women-describe-living-with-endometriosis (2015, accessed 29 September 2015)."},{"key":"bibr39-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1177\/1750481318771430"},{"key":"bibr40-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1177\/1363459318817943"},{"key":"bibr41-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1177\/13634593030074005"},{"key":"bibr42-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1177\/1049732315576699"},{"key":"bibr43-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"bibr44-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1093\/humupd\/dmu046"},{"key":"bibr45-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1016\/j.jogoh.2017.11.003"},{"key":"bibr46-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2009.01.164"},{"key":"bibr47-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2017.07.016"},{"key":"bibr48-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2018.06.040"},{"key":"bibr49-2049463720961413","doi-asserted-by":"crossref","first-page":"P2096","DOI":"10.1212\/WNL.90.15_supplement.P2.096","volume":"90","author":"Karp B","year":"2018","journal-title":"Neurology"},{"key":"bibr50-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-49022-9_10"},{"key":"bibr51-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-49022-9_7"},{"key":"bibr52-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1111\/j.1471-0528.2008.01878.x"},{"key":"bibr53-2049463720961413","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-49022-9_1"}],"container-title":["British Journal of Pain"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/2049463720961413","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/2049463720961413","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/2049463720961413","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T13:21:25Z","timestamp":1777382485000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/2049463720961413"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,10,7]]},"references-count":53,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2021,8]]}},"alternative-id":["10.1177\/2049463720961413"],"URL":"https:\/\/doi.org\/10.1177\/2049463720961413","relation":{},"ISSN":["2049-4637","2049-4645"],"issn-type":[{"value":"2049-4637","type":"print"},{"value":"2049-4645","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,10,7]]}}}