{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T11:35:07Z","timestamp":1777462507079,"version":"3.51.4"},"reference-count":47,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2025,4,16]],"date-time":"2025-04-16T00:00:00Z","timestamp":1744761600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["British Journal of Pain"],"published-print":{"date-parts":[[2025,8]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Complex Regional Pain Syndrome (CRPS) is a rare, chronic pain disorder that can have a devastating impact. Its cause remains unclear and debate over treatment strategies continues. The aim of the study was to utilise patient-reported outcomes to aid in the further evaluation of treatment options.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Method<\/jats:title>\n                    <jats:p>An online survey was distributed with ethical approval to members of a CRPS charity. The Checklist for Reporting Results of Internet E-Surveys was implemented. Adults who met the patient-reported aspect of the Budapest Criteria were included (non-validated). Functional scores were reported using the shortened Disabilities of the Arm, Shoulder and Hand outcome measurement tool (QuickDASH) and Lower Extremity Functional Scale (LEFS). Participants completed a pre-injury score, a score related to injury and a score related specifically to CRPS symptoms. Respondents were also asked to rate a number of pharmacological and non-pharmacological treatments for CRPS.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Respondents were mostly female (87%, 447\/514) with a mean age of 49\u00a0years (SD 13). 69% (354\/514) reported trauma as the inciting event. Anxiety (55%, 283\/514) was the most commonly reported co-morbidity. Opioids (72%, 258\/358) and Physical Therapy\/Rehabilitation (63%, 281\/444) were reported as the most beneficial (used by &gt;10% of respondents) pharmacological and non-pharmacological therapies respectively. Median CRPS functional scores were significantly worse than scores relating to the injury alone, for both QuickDASH (56 (IQR 36\u201377) versus 77 (IQR 61\u201391),\n                      <jats:italic>p<\/jats:italic>\n                      &lt; .001) and LEFS (20 (IQR 8\u201340) versus 7 (IQR 3\u201317),\n                      <jats:italic>p<\/jats:italic>\n                      &lt; .001).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>We present the first study using validated patient-reported outcome measures of limb-specific function in a solely CRPS population. These data quantify the devastating impact of CRPS and help make its prevention and treatment a priority amongst those who encounter it. The treatment data should inform future research, especially in successful therapies that were less commonly utilised.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/20494637251336636","type":"journal-article","created":{"date-parts":[[2025,4,16]],"date-time":"2025-04-16T15:32:08Z","timestamp":1744817528000},"page":"274-284","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Lived experience perspectives of persons with complex regional pain syndrome: a survey study of the history of their condition, treatments and functional outcomes"],"prefix":"10.1177","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3990-9866","authenticated-orcid":false,"given":"Alexander CD","family":"Smith","sequence":"first","affiliation":[{"name":"St Andrew\u2019s Centre for Plastic Surgery &amp; Burns, Broomfield Hospital, Chelmsford, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Benjamin H","family":"Miranda","sequence":"additional","affiliation":[{"name":"St Andrew\u2019s Anglia Ruskin (StAAR) Research Group, Faculty of Health Education Medicine and Social Care, Anglia Ruskin University, Chelmsford, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2025,4,16]]},"reference":[{"key":"e_1_3_5_2_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.h2730"},{"key":"e_1_3_5_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.pain.2008.07.002"},{"key":"e_1_3_5_4_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.bja.2019.03.030"},{"key":"e_1_3_5_5_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.pain.2010.04.030"},{"key":"e_1_3_5_6_2","unstructured":"Nights B. 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