{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,13]],"date-time":"2026-10-13T12:45:13Z","timestamp":1791895513406,"version":"4.3.4"},"reference-count":29,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,10,10]],"date-time":"2026-10-10T00:00:00Z","timestamp":1791590400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["British Journal of Pain"],"abstract":"<jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>Social media offers a window into how patients with trigeminal neuralgia (TN) discuss and interpret information about treatment. We performed a qualitative analysis of publicly available posts from Reddit to characterize patient perspectives on the platform and identify potential educational gaps in TN management.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Posts published between September 2, 2020, and August 15, 2025, were collected using the Python Reddit API Wrapper and coded manually for treatment, purpose (question or informational), topic, poster perspective (patient or caregiver, pre- or post-treatment), and sentiment.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Among 3,627 posts, 39.3% (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      = 1,424) discussed medications and 60.7% (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      = 2,203) addressed surgical treatment. Surgical discussions focused on microvascular decompression (53.3%) and stereotactic radiosurgery (26.7%), with percutaneous procedures rarely mentioned (8.5%). Carbamazepine (50.4%), oxcarbazepine (16.2%), and gabapentinoids (gabapentin 14.3%; pregabalin 10.8%) were the most frequently referenced medications. Overall, 1,019 posts were questions, primarily about surgery (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      = 703) and commonly by patients prior to intervention (44.2%) inquiring about outcomes (57.6%) and candidacy (28.6%). Medication questions (\n                      <jats:italic toggle=\"yes\">n<\/jats:italic>\n                      = 316) were typically from users already receiving treatment (71.2%) and most often addressed side effects (40.8%) or use (32%), including dosage and drug interactions. Sentiment differed significantly between treatment types, with surgical-related posts having a higher proportion of positive sentiment (\u03c7\n                      <jats:sup>2<\/jats:sup>\n                      <jats:sub>2<\/jats:sub>\n                      = 328.1,\n                      <jats:italic toggle=\"yes\">p<\/jats:italic>\n                      &lt; 0.001).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Overall, patients use social media throughout the course of TN treatment to seek guidance, share experiences, and clarify management options. Limited discussion of percutaneous procedures suggests gaps in public awareness, while uncertainty about surgical eligibility highlights opportunities for improved patient education. Additionally, the predominance of negative sentiment toward medications compared with surgery on social media forums may influence treatment preferences.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/20494637261496487","type":"journal-article","created":{"date-parts":[[2026,10,10]],"date-time":"2026-10-10T09:41:58Z","timestamp":1791625318000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Trigeminal neuralgia management: What are patients saying?"],"prefix":"10.1177","author":[{"given":"Paige","family":"Grafton","sequence":"first","affiliation":[{"name":"University of Arizona College of Medicine"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kylie","family":"Lew","sequence":"additional","affiliation":[{"name":"University of Arizona College of Medicine"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carlotta","family":"Ranalli","sequence":"additional","affiliation":[{"name":"University of Arizona College of Medicine"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Krish","family":"Sharma","sequence":"additional","affiliation":[{"name":"University of Arizona College of Medicine"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marisa","family":"DiMarzio","sequence":"additional","affiliation":[{"name":"University of Arizona College of Medicine"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6488-9692","authenticated-orcid":false,"given":"Julie G.","family":"Pilitsis","sequence":"additional","affiliation":[{"name":"University of Arizona College of Medicine"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,10,10]]},"reference":[{"key":"e_1_3_5_2_2","doi-asserted-by":"publisher","DOI":"10.1038\/s41572-024-00523-z"},{"key":"e_1_3_5_3_2","doi-asserted-by":"publisher","DOI":"10.1177\/0333102417738202"},{"key":"e_1_3_5_4_2","doi-asserted-by":"publisher","DOI":"10.1177\/0333102416687280"},{"key":"e_1_3_5_5_2","doi-asserted-by":"publisher","DOI":"10.1186\/s10194-020-01149-8"},{"key":"e_1_3_5_6_2","doi-asserted-by":"publisher","DOI":"10.1055\/s-0042-1751305"},{"key":"e_1_3_5_7_2","doi-asserted-by":"publisher","DOI":"10.3390\/jpm12050797"},{"key":"e_1_3_5_8_2","doi-asserted-by":"publisher","DOI":"10.1177\/2049463714555438"},{"key":"e_1_3_5_9_2","first-page":"892","article-title":"Determinants of American adults\u2019 use of digital health and willingness to share health data to providers, family, and social media: a cross-sectional study","volume":"41","author":"Tolentino DA","year":"2023","unstructured":"Tolentino DA, Costa DK, Jiang Y. Determinants of American adults\u2019 use of digital health and willingness to share health data to providers, family, and social media: a cross-sectional study. Comput Inform Nurs 2023; 41: 892\u2013902. https:\/\/doi.org\/10.1097\/CIN.0000000000001025","journal-title":"Comput Inform Nurs"},{"key":"e_1_3_5_10_2","doi-asserted-by":"crossref","first-page":"e075645","DOI":"10.1136\/bmj-2023-075645","article-title":"Understanding the complex links between social media and health behaviour","volume":"385","author":"Zollo F","year":"2024","unstructured":"Zollo F, Baronchelli A, Betsch C, et al. Understanding the complex links between social media and health behaviour. BMJ 2024; 385: e075645. https:\/\/doi.org\/10.1136\/bmj-2023-075645","journal-title":"BMJ"},{"key":"e_1_3_5_11_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.wneu.2022.02.054"},{"key":"e_1_3_5_12_2","doi-asserted-by":"publisher","DOI":"10.1080\/02688697.2021.1947978"},{"key":"e_1_3_5_13_2","doi-asserted-by":"publisher","DOI":"10.2196\/55309"},{"key":"e_1_3_5_14_2","unstructured":"Reddit Inc. Q3 2025 shareholder letter. https:\/\/s203.q4cdn.com\/380862485\/files\/doc_financials\/2025\/q3\/Q3-25-Shareholder-Letter.pdf"},{"key":"e_1_3_5_15_2","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-030-14683-2_9"},{"key":"e_1_3_5_16_2","doi-asserted-by":"publisher","DOI":"10.1609\/icwsm.v8i1.14526"},{"key":"e_1_3_5_17_2","doi-asserted-by":"publisher","DOI":"10.1136\/rapm-2024-105935"},{"key":"e_1_3_5_18_2","first-page":"100535","article-title":"Reddit users\u2019 perspectives on radiofrequency ablation: a data analysis","volume":"4","author":"L de Mendon\u00e7a LFP","year":"2024","unstructured":"L de Mendon\u00e7a LFP, Encalada S, Mosquera-Moscoso J, et al. Reddit users\u2019 perspectives on radiofrequency ablation: a data analysis. Interv Pain Med 2024; 4: 100535. https:\/\/doi.org\/10.1016\/j.inpm.2024.100535","journal-title":"Interv Pain Med"},{"key":"e_1_3_5_19_2","unstructured":"US Department of Health and Human Services. 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