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Diagnostic features and adulthood health outcomes were compared between those with and without adulthood follow\u2010up.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Of paediatric patients, 92% were followed up 6\u201324\u00a0months after diagnosis. A total of 235 adults responded to the questionnaires a median of 18 years after diagnosis, and 25% of them reported regular follow\u2010up. They were diagnosed more recently than those without follow\u2010up (median year 2001 vs 1995, <jats:italic>p<\/jats:italic> \u2009=\u20090.001), being otherwise comparable at diagnosis. Those with follow\u2010up were less often smokers (5% vs 16%, <jats:italic>p<\/jats:italic> \u2009=\u20090.042) and relatives of coeliac patients (48% vs 66%, <jats:italic>p<\/jats:italic> \u2009=\u20090.018), and more often students (48% vs 28%, <jats:italic>p<\/jats:italic> \u2009=\u20090.005) and type 1 diabetics (19% vs 4%, <jats:italic>p<\/jats:italic> \u2009=\u20090.001). Lack of follow\u2010up was not associated with complications, ongoing symptoms, poorer general health or dietary adherence. All completely non\u2010adherent patients were without follow\u2010up.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Most coeliac disease patients diagnosed in childhood were not followed up according to recommendations in adulthood. The individual effect of this on long\u2010term treatment outcomes varied markedly.<\/jats:p><\/jats:sec>","DOI":"10.1177\/2050640619900077","type":"journal-article","created":{"date-parts":[[2020,1,10]],"date-time":"2020-01-10T06:03:10Z","timestamp":1578636190000},"page":"157-166","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":21,"title":["Lack of long\u2010term follow\u2010up after paediatric\u2010adult transition in coeliac disease is not associated with complications, ongoing symptoms or dietary adherence"],"prefix":"10.1002","volume":"8","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7959-7628","authenticated-orcid":false,"given":"Laura","family":"Kivel\u00e4","sequence":"first","affiliation":[{"name":"Tampere Center for Child Health Research Tampere University and Department of Paediatrics Tampere University Hospital Tampere Finland"},{"name":"University of Helsinki and Helsinki University Hospital 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