{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,18]],"date-time":"2026-06-18T06:56:56Z","timestamp":1781765816440,"version":"3.54.5"},"reference-count":46,"publisher":"SAGE Publications","issue":"3","license":[{"start":{"date-parts":[[2024,3,1]],"date-time":"2024-03-01T00:00:00Z","timestamp":1709251200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100022244","name":"National Institute for Health Research Applied Research Collaboration West","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100022244","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["JRSM Open"],"published-print":{"date-parts":[[2024,3]]},"abstract":"<jats:sec><jats:title\/><jats:p> Patient-reported outcomes (PROs) have potential to support integrated health and social care research and practice; however, evidence of their utilisation has not been synthesised. <\/jats:p><\/jats:sec><jats:sec><jats:title\/><jats:p> To identify PRO measures utilised in integrated care and adult social care research and practice and to chart the evidence of implementation factors influencing their uptake. <\/jats:p><\/jats:sec><jats:sec><jats:title\/><jats:p> Scoping review of peer-reviewed literature. <\/jats:p><\/jats:sec><jats:sec><jats:title\/><jats:p> Six databases (01 January 2010 to 19 May 2023). <\/jats:p><\/jats:sec><jats:sec><jats:title\/><jats:p> Articles reporting PRO use with adults (18+ years) in integrated care or social care settings. <\/jats:p><\/jats:sec><jats:sec><jats:title\/><jats:p> We screened articles against pre-specified eligibility criteria; 36 studies (23%) were extracted in duplicate for verification. We summarised the data using thematic analysis and descriptive statistics. <\/jats:p><\/jats:sec><jats:sec><jats:title\/><jats:p> We identified 159 articles reporting on 216 PRO measures deployed in a social care or integrated care setting. Most articles used PRO measures as research tools. Eight (5.0%) articles used PRO measures as an intervention. Articles focused on community-dwelling participants (35.8%) or long-term care home residents (23.9%), with three articles (1.9%) focussing on integrated care settings. Stakeholders viewed PROs as feasible and acceptable, with benefits for care planning, health and wellbeing monitoring as well as quality assurance. Patient-reported outcome measure selection, administration and PRO data management were perceived implementation barriers. <\/jats:p><\/jats:sec><jats:sec><jats:title\/><jats:p> This scoping review showed increasing utilisation of PROs in adult social care and integrated care. Further research is needed to optimise PROs for care planning, design effective training resources and develop policies and service delivery models that prioritise secure, ethical management of PRO data. <\/jats:p><\/jats:sec>","DOI":"10.1177\/20542704241232866","type":"journal-article","created":{"date-parts":[[2024,3,25]],"date-time":"2024-03-25T06:25:50Z","timestamp":1711347950000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":7,"title":["Patient-reported outcomes in integrated health and social care: A scoping review"],"prefix":"10.1177","volume":"15","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5656-1198","authenticated-orcid":false,"given":"Sarah E","family":"Hughes","sequence":"first","affiliation":[{"name":"Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, University of Birmingham, Birmingham, UK"},{"name":"National Institute for Health and Care Research (NIHR) Applied Research Collaboration West Midlands, Birmingham, UK"},{"name":"Birmingham Health Partners Centre for Regulatory Science and Innovation, University of Birmingham, Birmingham, UK"},{"name":"National Institute for Health and Care Research (NIHR) Blood and Transplant Research Unit in Precision Cellular Therapeutics, University of Birmingham, Birmingham, UK"},{"name":"National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham and University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9122-8251","authenticated-orcid":false,"given":"Olalekan L","family":"Aiyegbusi","sequence":"additional","affiliation":[{"name":"Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, University of Birmingham, Birmingham, UK"},{"name":"National Institute for Health and Care Research (NIHR) Applied Research Collaboration West Midlands, Birmingham, UK"},{"name":"National Institute for Health and Care Research (NIHR) Blood and Transplant Research Unit in Precision Cellular Therapeutics, University of Birmingham, Birmingham, UK"},{"name":"National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham and University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christel","family":"McMullan","sequence":"additional","affiliation":[{"name":"Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, University of Birmingham, Birmingham, UK"},{"name":"Birmingham Health Partners Centre for Regulatory Science and Innovation, University of Birmingham, Birmingham, UK"},{"name":"National Institute for Health and Care Research (NIHR) Blood and Transplant Research Unit in Precision Cellular Therapeutics, University of Birmingham, Birmingham, UK"},{"name":"National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham and University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK"},{"name":"National Institute for Health and Care Research (NIHR) Surgical Reconstruction and Microbiology Centre, University of Birmingham and University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Grace M","family":"Turner","sequence":"additional","affiliation":[{"name":"Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, University of Birmingham, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nicola","family":"Anderson","sequence":"additional","affiliation":[{"name":"Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, University of Birmingham, Birmingham, UK"},{"name":"National Institute for Health and Care Research (NIHR) Applied Research Collaboration West Midlands, Birmingham, UK"},{"name":"National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham and University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Samantha","family":"Cruz Rivera","sequence":"additional","affiliation":[{"name":"Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, University of Birmingham, Birmingham, UK"},{"name":"Birmingham Health Partners Centre for Regulatory Science and Innovation, University of Birmingham, Birmingham, UK"},{"name":"DEMAND Hub, University of Birmingham, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Philip","family":"Collis","sequence":"additional","affiliation":[{"name":"Patient partner, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jon","family":"Glasby","sequence":"additional","affiliation":[{"name":"School of Social Policy, University of Birmingham, Birmingham, UK"},{"name":"IMPACT (Improving Adult Social Care Together), University of Birmingham, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniel","family":"Lasserson","sequence":"additional","affiliation":[{"name":"National Institute for Health and Care Research (NIHR) Applied Research Collaboration West Midlands, Birmingham, UK"},{"name":"Warwick Medical School, University of Warwick, Coventry, UK"},{"name":"Department of Geriatric Medicine, Oxford University Hospitals NHS Foundation Trust, Oxford, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1856-837X","authenticated-orcid":false,"given":"Melanie","family":"Calvert","sequence":"additional","affiliation":[{"name":"Centre for Patient Reported Outcomes Research, Institute of Applied Health Research, University of Birmingham, Birmingham, UK"},{"name":"National Institute for Health and Care Research (NIHR) Applied Research Collaboration West Midlands, Birmingham, UK"},{"name":"Birmingham Health Partners Centre for Regulatory Science and Innovation, University of Birmingham, Birmingham, UK"},{"name":"National Institute for Health and Care Research (NIHR) Blood and Transplant Research Unit in Precision Cellular Therapeutics, University of Birmingham, Birmingham, UK"},{"name":"National Institute for Health and Care Research (NIHR) Birmingham Biomedical Research Centre, University of Birmingham and University Hospitals Birmingham NHS Foundation Trust, Birmingham, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,3,24]]},"reference":[{"key":"bibr1-20542704241232866","unstructured":"The Health Foundation. Integrated care systems: what do they look like? \u2013 The Health Foundation, https:\/\/www.health.org.uk\/publications\/long-reads\/integrated-care-systems-what-do-they-look-like (accessed 28 July 2023)."},{"key":"bibr2-20542704241232866","unstructured":"The Hewitt Report: An independent review of integrated care systems, https:\/\/www.gov.uk\/government\/publications\/the-hewitt-review-an-independent-review-of-integrated-care-systems (4 April 2023, accessed 28 December 2023)."},{"key":"bibr3-20542704241232866","unstructured":"Health and social care integration: joining up care for people, places and populations. GOV.UK, https:\/\/www.gov.uk\/government\/publications\/health-and-social-care-integration-joining-up-care-for-people-places-and-populations\/health-and-social-care-integration-joining-up-care-for-people-places-and-populations (accessed 30 July 2023)."},{"key":"bibr4-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1177\/01410768211014048"},{"key":"bibr5-20542704241232866","doi-asserted-by":"publisher","DOI":"10.3390\/app10217507"},{"key":"bibr6-20542704241232866","first-page":"715","volume":"46","author":"Brant JM","year":"2019","journal-title":"Number 6 \/ November"},{"key":"bibr7-20542704241232866","unstructured":"Adult social care outcomes framework 2023 to 2024: draft handbook of definitions. GOV.UK, https:\/\/www.gov.uk\/government\/publications\/adult-social-care-outcomes-framework-handbook-of-definitions\/adult-social-care-outcomes-framework-2023-to-2024-draft-handbook-of-definitions (accessed 24 July 2023)."},{"key":"bibr8-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1097\/BRS.0000000000002499"},{"key":"bibr9-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-008-9430-6"},{"key":"bibr10-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2020-045206"},{"key":"bibr11-20542704241232866","doi-asserted-by":"publisher","DOI":"10.7326\/M18-0850"},{"key":"bibr12-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1186\/1748-5908-5-69"},{"key":"bibr13-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2288-13-117"},{"key":"bibr14-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1080\/14780887.2015.1119228"},{"key":"bibr15-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-021-02099-9"},{"key":"bibr16-20542704241232866","unstructured":"What is functional status? https:\/\/psychologydictionary.org\/functional-status\/ (2013, accessed 29 December 2022)."},{"key":"bibr17-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1177\/0733464816675423"},{"key":"bibr18-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1186\/s12955-018-0918-7"},{"key":"bibr19-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-016-1763-1"},{"key":"bibr20-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1080\/01634372.2016.1197354"},{"key":"bibr21-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.12591"},{"key":"bibr22-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-017-0211-2"},{"key":"bibr23-20542704241232866","doi-asserted-by":"publisher","DOI":"10.4276\/030802213X13861576675240"},{"key":"bibr24-20542704241232866","volume":"23","author":"Valdovinos C","year":"2021","journal-title":"J Med Internet Res"},{"key":"bibr25-20542704241232866","doi-asserted-by":"publisher","DOI":"10.5334\/ijic.3961"},{"key":"bibr26-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1016\/j.maturitas.2019.07.023"},{"key":"bibr27-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1177\/1049909117749467"},{"key":"bibr28-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1016\/S2666-7568(22)00010-1"},{"key":"bibr29-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1111\/ajag.12377"},{"key":"bibr30-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1007\/s10198-016-0816-z"},{"key":"bibr31-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-015-0942-9"},{"key":"bibr32-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1111\/jar.12294"},{"key":"bibr33-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2021-050892"},{"key":"bibr34-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1002\/gps.4895"},{"key":"bibr35-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1332\/239788220X16002700913659"},{"key":"bibr36-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-021-06676-x"},{"key":"bibr37-20542704241232866","doi-asserted-by":"publisher","DOI":"10.3399\/bjgpopen20X101135"},{"key":"bibr38-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1186\/s12875-019-1077-6"},{"key":"bibr39-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1177\/20406223211015958"},{"key":"bibr40-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1038\/s41591-022-01781-8"},{"key":"bibr41-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1186\/s41687-022-00428-z"},{"key":"bibr42-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1016\/j.healthpol.2021.07.001"},{"key":"bibr43-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2022.6421"},{"key":"bibr44-20542704241232866","volume":"382","author":"Glasby J","year":"2023","journal-title":"Br Med J"},{"key":"bibr45-20542704241232866","doi-asserted-by":"publisher","DOI":"10.31389\/jltc.98"},{"key":"bibr46-20542704241232866","doi-asserted-by":"publisher","DOI":"10.1186\/s13063-018-2584-9"}],"container-title":["JRSM Open"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/20542704241232866","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/20542704241232866","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/20542704241232866","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,3,3]],"date-time":"2025-03-03T20:03:29Z","timestamp":1741032209000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/20542704241232866"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,3]]},"references-count":46,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2024,3]]}},"alternative-id":["10.1177\/20542704241232866"],"URL":"https:\/\/doi.org\/10.1177\/20542704241232866","relation":{},"ISSN":["2054-2704","2054-2704"],"issn-type":[{"value":"2054-2704","type":"print"},{"value":"2054-2704","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,3]]},"article-number":"20542704241232866"}}