{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,31]],"date-time":"2026-07-31T18:05:46Z","timestamp":1785521146790,"version":"3.56.0"},"reference-count":22,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2025,6,3]],"date-time":"2025-06-03T00:00:00Z","timestamp":1748908800000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2025,6,3]],"date-time":"2025-06-03T00:00:00Z","timestamp":1748908800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Unity Health Toronto","award":["Interprofessional Practice-Based Research Grant"],"award-info":[{"award-number":["Interprofessional Practice-Based Research Grant"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Can J Kidney Health Dis"],"published-print":{"date-parts":[[2025,7]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Much of the literature on kidney transplant education focuses on educating recipients prior to transplant or in the early postoperative period. It is unknown whether the information provided is meaningful to patients or whether the importance of education topics changes with time.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>We sought to identify the learning needs of patients post-kidney transplant.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>Our multidisciplinary team conducted a mixed-method study to better understand the learning needs of patients; what is important to them in the early postoperative period and a year after transplant.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting:<\/jats:title>\n                    <jats:p>One urban academic hospital performing kidney transplant in Ontario, Canada. Data were collected between September 2019 and March 2021, including during the COVID-19 pandemic.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Participants:<\/jats:title>\n                    <jats:p>A convenience sample of 20 participants in the post-kidney transplant clinic. Participants\u2019 mean age was 56 (SD \u00b1 11) with 75% of participants male gender.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>Twenty kidney transplant patients were recruited between 3 and 6 months post-transplant. Participants completed an initial demographic questionnaire. They completed the Learning Needs Inventory (LNI) and a one-on-one semi-structured interview at 2 time points: 3 to 6 months post-transplant and 12 to 18 months post-transplant.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>\n                      Patient interviews revealed that their access to a trustworthy health care team, support system, and reported challenges post-transplant shaped their ability to engage in learning. Patients shared that each aspect influences when and what topics were important to them, which allowed patients to obtain personalized education. A multidisciplinary team extending beyond physicians and nurses to include professionals such as pharmacists, dietitians, and social workers can best address patient-specific education needs post-transplant was highlighted in patients\u2019 comments. Patients revealed that their support system helps to develop self-reliance and support their transition after transplant to allow them to recover and manage challenges after transplant. Support systems varied from family, friends, colleagues and included social media and community organizations were helpful. Our study identified 3 realms of challenges post-transplant including: emotional, physical, and financial. Quantitative data showed significant findings on the level of importance regarding the use of alcohol, demonstrating a shift in median rating of \u201cnot important at all\u201d to \u201cnot very important\u201d (\n                      <jats:italic toggle=\"yes\">P<\/jats:italic>\n                      = .016). A significant effect (\n                      <jats:italic toggle=\"yes\">P<\/jats:italic>\n                      = .031) shifting the median rating of post-transplant dental care from of \u201ca little important\u201d to \u201cvery important.\u201d\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Limitations:<\/jats:title>\n                    <jats:p>The small convenience sample with only English-speaking patients used in this study may have affected our ability for generalizable results. Part of this study was completed during the COVID-19 pandemic, which may have led to individual responses to vary, as priorities may have been different during the pandemic.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Only 2 topics (dental care and use of alcohol) shifted in importance. Most education topics (ie, rejection, infection) covered in 3 to 6 months post-transplant continued to be important for those that have had their transplant for more than a year suggesting the need for ongoing education post-transplant. Multidisciplinary care teams play an important role in providing personalized education to patients and help to address emotional, physical, and financial challenges after transplant. This study showed the importance of social media and community organizations in patients\u2019 education offering an additional avenue of support and to hear others, lived experiences.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Trial registration:<\/jats:title>\n                    <jats:p>Not registered.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/20543581251338462","type":"journal-article","created":{"date-parts":[[2025,6,3]],"date-time":"2025-06-03T23:01:12Z","timestamp":1748991672000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Lessons Learned About the Education Needs of Kidney Transplant Recipients: A Mixed-Method Study"],"prefix":"10.1177","volume":"12","author":[{"given":"Michelle L.","family":"Gabriel","sequence":"first","affiliation":[{"name":"Unity Health Toronto, ON, Canada"},{"name":"Kidney Transplant Program, St. Michael\u2019s Hospital, Toronto, ON, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7173-8094","authenticated-orcid":false,"given":"Lucy","family":"Chen","sequence":"additional","affiliation":[{"name":"Unity Health Toronto, ON, Canada"},{"name":"Kidney Transplant Program, St. Michael\u2019s Hospital, Toronto, ON, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sharon","family":"Lee","sequence":"additional","affiliation":[{"name":"Unity Health Toronto, ON, Canada"},{"name":"Kidney Transplant Program, St. Michael\u2019s Hospital, Toronto, ON, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jenny","family":"Accettura","sequence":"additional","affiliation":[{"name":"Unity Health Toronto, ON, Canada"},{"name":"Kidney Transplant Program, St. Michael\u2019s Hospital, Toronto, ON, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-8939-9179","authenticated-orcid":false,"given":"Emily E.","family":"Campbell","sequence":"additional","affiliation":[{"name":"Unity Health Toronto, ON, Canada"},{"name":"Kidney Transplant Program, St. Michael\u2019s Hospital, Toronto, ON, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Melanie","family":"Dissanayake","sequence":"additional","affiliation":[{"name":"Unity Health Toronto, ON, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Teresa J.","family":"Valenzano-Hacker","sequence":"additional","affiliation":[{"name":"Unity Health Toronto, ON, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michelle","family":"Nash","sequence":"additional","affiliation":[{"name":"Unity Health Toronto, ON, Canada"},{"name":"Kidney Transplant Program, St. Michael\u2019s Hospital, Toronto, ON, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lindita","family":"Rapi","sequence":"additional","affiliation":[{"name":"Unity Health Toronto, ON, Canada"},{"name":"Kidney Transplant Program, St. Michael\u2019s Hospital, Toronto, ON, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Niki","family":"Dacouris","sequence":"additional","affiliation":[{"name":"Unity Health Toronto, ON, Canada"},{"name":"Kidney Transplant Program, St. Michael\u2019s Hospital, Toronto, ON, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Weiqiu","family":"Yuan","sequence":"additional","affiliation":[{"name":"Unity Health Toronto, ON, Canada"},{"name":"Kidney Transplant Program, St. Michael\u2019s Hospital, Toronto, ON, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tiffany","family":"Thai","sequence":"additional","affiliation":[{"name":"Unity Health Toronto, ON, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,6,3]]},"reference":[{"key":"e_1_3_3_2_2","volume-title":"Handbook of Kidney Transplantation","author":"Danovitch GM","year":"2009","unstructured":"Danovitch GM. 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