{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T02:16:31Z","timestamp":1787019391194,"version":"build-2736575974"},"reference-count":45,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Thomas Pocklington Trust"},{"name":"UKRI Economic and Social Research Council","award":["ES\/W006510\/1"],"award-info":[{"award-number":["ES\/W006510\/1"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["DIGITAL HEALTH"],"published-print":{"date-parts":[[2024,1]]},"abstract":"<jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>To explore the acceptability of an eHealth App for vision-related monitoring and symptom reporting among young people with a visual impairment and their parents.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Qualitative investigation using virtual semi-structured focus groups (via Zoom software) of seven young participants with a genetic eye disorder including inherited retinal disease and structural eye abnormalities (e.g. microphthalmia), and 7 parents; all recruited from ocular genetic clinics at Moorfields Eye Hospital. Audio transcripts were analysed using thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Data were coded into six key themes: (1) increased involvement in care, (2) opportunity for less hospital-centric care, (3) better representation of visual impairment in a real-world setting, (4) trust in a reputable service provider, (5) harnessing data for health purposes and (6) intended purpose of the app. Both young people and their families were accepting of an eHealth app and felt they would be empowered by greater involvement in their care plan, if privacy of the data was retained, and information was managed correctly. While parents endorsed the opportunity for mental health tracking, young people were hesitant towards its inclusion.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>In summary, there was overall acceptability of an eHealth app among young people with a visual impairment and their parents. These findings will help to maximise the effective integration of digital phenotyping when monitoring and supporting young people experiencing sight loss.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/20552076231220804","type":"journal-article","created":{"date-parts":[[2024,1,5]],"date-time":"2024-01-05T04:25:56Z","timestamp":1704428756000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":7,"title":["\u2018It would help people to help me\u2019: Acceptability of digital phenotyping among young people with visual impairment and their families"],"prefix":"10.1177","volume":"10","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4530-6156","authenticated-orcid":false,"given":"Bethany","family":"Higgins","sequence":"first","affiliation":[{"name":"Institute of Ophthalmology, University College London, London, UK"},{"name":"Division of Optometry and Vision Sciences, City, University of London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lee","family":"Jones","sequence":"additional","affiliation":[{"name":"Institute of Ophthalmology, University College London, London, UK"},{"name":"Research Directorate, BRAVO VICTOR, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kishan","family":"Devraj","sequence":"additional","affiliation":[{"name":"Institute of Ophthalmology, University College London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Caroline","family":"Kilduff","sequence":"additional","affiliation":[{"name":"Moorfields Eye Hospital NHS Foundation Trust, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mariya","family":"Moosajee","sequence":"additional","affiliation":[{"name":"Institute of Ophthalmology, University College London, London, UK"},{"name":"Moorfields Eye Hospital NHS Foundation Trust, London, UK"},{"name":"The Francis Crick Institute, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,1,5]]},"reference":[{"key":"bibr1-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2012-303002"},{"key":"bibr2-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(03)14631-4"},{"key":"bibr3-20552076231220804","unstructured":"Simonelli F, Guerreiro AIF. The respect of children\u2019s rights in hospital: An initiative of the International Network on Health Promoting Hospitals and Health Services. Final Report on the implementation process of the self-evaluation model and tool on the respect of children\u2019s rights in hospital. Florence, https:\/\/www.schn.health.nsw.gov.au\/files\/attachments\/task-force_hph-ca_childrens_rights_in_hospital_self_evaluation_model_final_report.pdf (January 2010, accessed 6 January 2023)."},{"key":"bibr4-20552076231220804","volume":"11","author":"Sharpe D","year":"2021","journal-title":"BMJ Open"},{"key":"bibr5-20552076231220804","volume":"2","author":"Chua S","year":"2019","journal-title":"FreseniusCom"},{"key":"bibr6-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1097\/YCO.0b013e32832c9221"},{"key":"bibr7-20552076231220804","unstructured":"Department of Health & Social Care. National Advisory Group on Health Information Technology in England. Making IT work: Harnessing the power of health information technology to improve care in England. 2016, p. 71."},{"key":"bibr8-20552076231220804","unstructured":"Royal College of Nursing. eHealth | Clinical | Royal College of Nursing. Royal College of Nursing, https:\/\/www.rcn.org.uk\/clinical-topics\/ehealth (2021, accessed 22 April 2022)."},{"key":"bibr9-20552076231220804","doi-asserted-by":"crossref","DOI":"10.2196\/mental.5165","volume":"3","author":"Torous J","year":"2016","journal-title":"JMIR Ment Health"},{"key":"bibr10-20552076231220804","unstructured":"Boyle M. Mobile Internet Statistics. https:\/\/www.finder.com\/uk\/mobile-internet-statistics (2020, accessed 22 April 2022)."},{"key":"bibr11-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1136\/ebmental-2020-300180"},{"key":"bibr12-20552076231220804","doi-asserted-by":"crossref","DOI":"10.2196\/41045","volume":"7","author":"Claessens J","year":"2023","journal-title":"JMIR Form Res"},{"key":"bibr13-20552076231220804","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1038\/s41746-018-0076-7","volume":"2","author":"Yeung WK","year":"2019","journal-title":"npj Digit Med"},{"key":"bibr14-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2524.2005.00577.x"},{"key":"bibr15-20552076231220804","doi-asserted-by":"crossref","DOI":"10.2196\/jmir.7154","volume":"19","author":"Griffiths F","year":"2017","journal-title":"J Med Internet Res"},{"key":"bibr16-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1186\/1472-6823-11-1"},{"key":"bibr17-20552076231220804","doi-asserted-by":"crossref","DOI":"10.2196\/jmir.7999","volume":"20","author":"Armoiry X","year":"2018","journal-title":"J Med Internet Res"},{"key":"bibr18-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"bibr19-20552076231220804","unstructured":"NHS Long Term Plan, 2019. https:\/\/www.longtermplan.nhs.uk\/publication\/nhs-long-term-plan\/ (accessed 30 January 2023)."},{"key":"bibr20-20552076231220804","unstructured":"United Nations CRC Convention on the Rights of the Child."},{"key":"bibr21-20552076231220804","volume-title":"The child\u2019s right to be heard in the healthcare setting: Perspectives of children, parents and health professionals.","volume":"95","author":"Kilkelly U","year":"2006"},{"key":"bibr22-20552076231220804","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph17082819"},{"key":"bibr23-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1136\/adc.2007.131516"},{"key":"bibr24-20552076231220804","first-page":"8452840","volume":"2017","author":"McDonald L","journal-title":"J Ophthalmol"},{"key":"bibr25-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1097\/00019442-200503000-00002"},{"key":"bibr26-20552076231220804","volume":"7","author":"Dean G","year":"2017","journal-title":"BMJ Open"},{"key":"bibr27-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1136\/bjo.2007.127092"},{"key":"bibr28-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1097\/OPX.0b013e31828dee0a"},{"key":"bibr29-20552076231220804","unstructured":"Public perceptions of the NHS and social care: performance, policy and expectations \u2013 The Health Foundation, 2022. https:\/\/www.health.org.uk\/publications\/long-reads\/public-perceptions-performance-policy-and-expectations (accessed 10 January 2023)."},{"key":"bibr30-20552076231220804","unstructured":"Hospital Outpatient Activity 2021-22 \u2013 NDRS, https:\/\/digital.nhs.uk\/data-and-information\/publications\/statistical\/hospital-outpatient-activity\/2021-22 (accessed 6 January 2023)."},{"key":"bibr31-20552076231220804","unstructured":"Ipsos Veracity Index, 2022. https:\/\/www.ipsos.com\/en-uk\/ipsos-veracity-index-2022 (accessed 10 January 2023)."},{"key":"bibr32-20552076231220804","unstructured":"The King's Fund. Public satisfaction with the NHS and social care in 2021: Results from the British Social Attitudes survey. https:\/\/www.kingsfund.org.uk\/publications\/public-satisfaction-nhs-social-care-2021 (accessed 10 January 2023)."},{"key":"bibr33-20552076231220804","volume":"24","author":"Stewart E","year":"2022","journal-title":"J Med Internet Res"},{"key":"bibr34-20552076231220804","unstructured":"Gov.uk. Medical devices: software applications (apps), 2023. https:\/\/www.gov.uk\/government\/publications\/medical-devices-software-applications-apps (accessed 24 January 2023)."},{"key":"bibr35-20552076231220804","volume":"24","author":"Mendes JPM","year":"2022","journal-title":"J Med Internet Res"},{"key":"bibr36-20552076231220804","doi-asserted-by":"crossref","DOI":"10.2196\/11988","volume":"1","author":"Jaimini U","year":"2018","journal-title":"JMIR Pediatr Parent"},{"key":"bibr37-20552076231220804","volume":"126","author":"Cote DJ","year":"2019","journal-title":"World Neurosurg"},{"key":"bibr38-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1002\/acn3.770"},{"key":"bibr39-20552076231220804","unstructured":"https:\/\/oversight.health\/ (accessed 30 January 2023)."},{"key":"bibr40-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1111\/j.1467-9566.2007.01022.x"},{"key":"bibr41-20552076231220804","unstructured":"Gov.uk. Young persons behaviour and attitudes survey 2019: Mental health and wellbeing report, 2020, https:\/\/www.gov.uk\/government\/statistics\/young-persons-behaviour-and-attitudes-survey-2019-mental-health-and-wellbeing-report (accessed 10 January 2023)."},{"key":"bibr42-20552076231220804","volume-title":"Mental health & wellbeing modules","author":"Cooke K","year":"2020"},{"key":"bibr43-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1007\/s11414-018-09648-y"},{"key":"bibr44-20552076231220804","volume":"124","author":"Layard R","year":"2014","journal-title":"Econ J (London)"},{"key":"bibr45-20552076231220804","doi-asserted-by":"publisher","DOI":"10.1001\/archpsyc.55.1.56"}],"container-title":["DIGITAL HEALTH"],"original-title":[],"language":"en","link":[{"URL":"http:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/20552076231220804","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/20552076231220804","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"http:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/20552076231220804","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T17:50:05Z","timestamp":1777398605000},"score":1,"resource":{"primary":{"URL":"http:\/\/journals.sagepub.com\/doi\/10.1177\/20552076231220804"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,1]]},"references-count":45,"alternative-id":["10.1177\/20552076231220804"],"URL":"https:\/\/doi.org\/10.1177\/20552076231220804","relation":{},"ISSN":["2055-2076","2055-2076"],"issn-type":[{"value":"2055-2076","type":"print"},{"value":"2055-2076","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,1]]},"article-number":"20552076231220804"}}