{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,28]],"date-time":"2026-10-28T06:11:56Z","timestamp":1793167916374,"version":"4.5.0"},"reference-count":44,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["DIGITAL HEALTH"],"published-print":{"date-parts":[[2024,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Electronic patient-reported outcomes (ePROMs) enhance symptom management and patients\u2019 engagement in palliative cancer care. However, integrating them into this setting brings challenges, including patients\u2019 familiarity with technological devices and declining health status. Prioritizing the patient's acceptability and feasibility is crucial for their adoption. However, more knowledge is needed about patients\u2019 perspectives on the adoption of ePROMs in the community, especially for home-based palliative care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>Explore patient viewpoints on utilizing ePROMs for symptom reporting in home-based oncology palliative care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>A qualitative interpretative approach was used to evaluate patients\u2019 points of view on using ePROMs in this specific care setting. Semistructured interviews were carried out. Data were analyzed using a reflexive thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting\/participants<\/jats:title>\n                    <jats:p>A total of 25 patients receiving oncological home palliative care from the advanced palliative care unit of the Fondazione IRCCS Istituto Nazionale dei Tumori in Milan, Italy, were invited to participate. Twenty interviews were conducted, as five patients declined due to deteriorating health.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Four themes were identified: (1) strategic value of ePROMs and subjective appreciation; (2) enhancing patient centeredness through ePROMs; (3) exploring and addressing concerns about the use of ePROMs and (4) intersecting factors influencing the efficacy of ePROMs<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Despite initial reticence, home palliative care patients consider ePROMs as potentially valuable allies monitoring symptoms, enhancing their quality of life, and amplifying their voices on less explored aspects of care. Continuous dialog between healthcare professionals and patients is crucial for addressing patient skepticism about ePROMs and their impact on the human aspect of care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/20552076241249962","type":"journal-article","created":{"date-parts":[[2024,4,25]],"date-time":"2024-04-25T02:52:25Z","timestamp":1714013545000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":6,"title":["Exploring patient perspectives on electronic patient-reported outcome measures in home-based cancer palliative care: A qualitative study"],"prefix":"10.1177","volume":"10","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7207-2586","authenticated-orcid":false,"given":"Letteria","family":"Consolo","sequence":"first","affiliation":[{"name":"Department of Biomedicine and Prevention, University of Rome \u201cTor Vergata\u201d, Rome, Italy"},{"name":"Bachelor School of Nursing, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano, Milan, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ilaria","family":"Basile","sequence":"additional","affiliation":[{"name":"High-Complexity Unit of Palliative Care, Pain Therapy and Rehabilitation Fondazione IRCCS Istituto Nazionale dei Tumori di Milano, Milan, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stella","family":"Colombo","sequence":"additional","affiliation":[{"name":"Intensive Care Unit, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano, Milan, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0007-0450-2605","authenticated-orcid":false,"given":"Daniele","family":"Rusconi","sequence":"additional","affiliation":[{"name":"Urologic Oncology Unit, Fondazione IRCCS Istituto Nazionale dei Tumori di Milano, Milan, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Loredana","family":"Pasquot","sequence":"additional","affiliation":[{"name":"Department of Clinical Sciences and Community Health, University of Milan, Milan, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tiziana","family":"Campa","sequence":"additional","affiliation":[{"name":"High-Complexity Unit of Palliative Care, Pain Therapy and Rehabilitation Fondazione IRCCS Istituto Nazionale dei Tumori di Milano, Milan, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Augusto","family":"Caraceni","sequence":"additional","affiliation":[{"name":"High-Complexity Unit of Palliative Care, Pain Therapy and Rehabilitation Fondazione IRCCS Istituto Nazionale dei Tumori di Milano, Milan, Italy"},{"name":"Department of Clinical Sciences and Community Health, University of Milan, Milan, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maura","family":"Lusignani","sequence":"additional","affiliation":[{"name":"Department of Biomedical Sciences for Health, University of Milan, Milan, Italy"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,4,24]]},"reference":[{"key":"bibr1-20552076241249962","doi-asserted-by":"crossref","DOI":"10.1186\/s12904-019-0452-3","volume":"18","author":"Heydari H","year":"2019","journal-title":"BMC Palliat Care"},{"issue":"5","key":"bibr2-20552076241249962","doi-asserted-by":"crossref","DOI":"10.1007\/s11912-021-01044-8","volume":"23","author":"Brant JM","journal-title":"Curr Oncol Rep"},{"key":"bibr3-20552076241249962","doi-asserted-by":"crossref","first-page":"713","DOI":"10.1017\/S147895151600050X","volume":"14","author":"Nordly M","year":"2016","journal-title":"Palliat Support Care"},{"key":"bibr4-20552076241249962","doi-asserted-by":"crossref","first-page":"1837","DOI":"10.1007\/s00520-020-05677-6","volume":"29","author":"Alawneh A","year":"2021","journal-title":"Support Care Cancer"},{"key":"bibr5-20552076241249962","doi-asserted-by":"crossref","DOI":"10.1111\/nin.12297","volume":"26","author":"H\u00f6gberg C","year":"2019","journal-title":"Nurs Inq"},{"key":"bibr6-20552076241249962","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/s12904-021-00732-3","volume":"20","author":"Aghaei MH","year":"2021","journal-title":"BMC Palliat Care"},{"key":"bibr7-20552076241249962","unstructured":"Chapter 18: Patient-reported outcomes | Cochrane Training, https:\/\/training.cochrane.org\/handbook\/current\/chapter-18 (accessed 8 March 2023)."},{"key":"bibr8-20552076241249962","doi-asserted-by":"crossref","DOI":"10.1016\/S2352-3018(19)30345-5","volume":"7","author":"Kall M","year":"2020","journal-title":"Lancet HIV"},{"issue":"102","key":"bibr9-20552076241249962","volume":"6","author":"Consolo L","year":"2022","journal-title":"J Patient-Reported Outcomes"},{"key":"bibr10-20552076241249962","volume":"7","author":"Antunes B","year":"2018","journal-title":"Ann Palliat Med"},{"key":"bibr11-20552076241249962","doi-asserted-by":"crossref","first-page":"2355","DOI":"10.1016\/j.pec.2021.11.022","volume":"105","author":"Oldenburger E","year":"2022","journal-title":"Patient Educ Couns"},{"key":"bibr12-20552076241249962","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/s41687-022-00536-w","volume":"7","author":"Ito N","year":"2023","journal-title":"J Patient-Reported Outcomes"},{"key":"bibr13-20552076241249962","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0267030","volume":"17","author":"Carfora L","year":"2022","journal-title":"PLoS One"},{"key":"bibr14-20552076241249962","doi-asserted-by":"crossref","DOI":"10.2196\/15588","volume":"3","author":"Meirte J","year":"2020","journal-title":"JMIR Perioper Med"},{"key":"bibr15-20552076241249962","doi-asserted-by":"crossref","first-page":"571","DOI":"10.1089\/tmj.2020.29040.rb","volume":"26","author":"Bashshur R","year":"2020","journal-title":"Telemed J E Health"},{"issue":"12","key":"bibr16-20552076241249962","doi-asserted-by":"crossref","first-page":"751","DOI":"10.1016\/j.clon.2021.04.008","volume":"33","author":"Appleyard SE","year":"2021","journal-title":"Clin Oncol"},{"key":"bibr17-20552076241249962","doi-asserted-by":"crossref","first-page":"405","DOI":"10.1109\/BIBE.2019.00079","author":"Maramis C","year":"2019","journal-title":"Proceedings - 2019 IEEE 19th International Conference on Bioinformatics and Bioengineering, BIBE"},{"issue":"1","key":"bibr18-20552076241249962","volume":"19","author":"Yu JY","year":"2021","journal-title":"Pediatr Rheumatol Online J"},{"key":"bibr19-20552076241249962","doi-asserted-by":"crossref","first-page":"104","DOI":"10.21037\/apm.2017.07.05","volume":"8","author":"Benze G","year":"2019","journal-title":"Ann Palliat Med"},{"key":"bibr20-20552076241249962","doi-asserted-by":"crossref","first-page":"647","DOI":"10.1200\/CCI.20.00015","volume":"4","author":"Karamanidou C","year":"2020","journal-title":"JCO Clin Cancer Informatics"},{"key":"bibr21-20552076241249962","doi-asserted-by":"crossref","first-page":"639","DOI":"10.1016\/j.jpainsymman.2011.10.025","volume":"44","author":"Hjermstad MJ","year":"2012","journal-title":"J Pain Symptom Manage"},{"issue":"1","key":"bibr22-20552076241249962","doi-asserted-by":"crossref","DOI":"10.1186\/s41687-023-00554-2","volume":"7","author":"Glenwright BG","year":"2023","journal-title":"J Patient-Reported Outcomes"},{"key":"bibr23-20552076241249962","doi-asserted-by":"crossref","first-page":"26080","DOI":"10.1136\/bmjopen-2018-026080","volume":"8","author":"Kyte D","year":"2018","journal-title":"BMJ Open"},{"key":"bibr24-20552076241249962","doi-asserted-by":"crossref","first-page":"265","DOI":"10.1177\/02692163221141487","volume":"37","author":"Burner-Fritsch I","year":"2023","journal-title":"Palliat Med"},{"key":"bibr25-20552076241249962","doi-asserted-by":"crossref","first-page":"111","DOI":"10.1186\/s12904-023-01234-0","volume":"22","author":"Consolo L","year":"2023","journal-title":"BMC Palliat Care"},{"key":"bibr26-20552076241249962","doi-asserted-by":"crossref","DOI":"10.1016\/S1470-2045(18)30061-5","volume":"19","author":"Kaasa S","year":"2018","journal-title":"Lancet Oncol"},{"key":"bibr27-20552076241249962","doi-asserted-by":"crossref","first-page":"1058","DOI":"10.1177\/0269216319854154","volume":"33","author":"De Wolf-Linder S","year":"2019","journal-title":"Palliat Med"},{"key":"bibr28-20552076241249962","doi-asserted-by":"crossref","first-page":"575","DOI":"10.1377\/hlthaff.2015.1362","volume":"35","author":"Lavallee DC","year":"2017","journal-title":"Health Aff"},{"key":"bibr29-20552076241249962","doi-asserted-by":"crossref","first-page":"1247","DOI":"10.1016\/j.healthpol.2021.07.001","volume":"125","author":"Amini M","year":"2021","journal-title":"Health Policy"},{"key":"bibr30-20552076241249962","doi-asserted-by":"crossref","first-page":"704","DOI":"10.1111\/1754-9485.13048","volume":"64","author":"Nguyen H","year":"2020","journal-title":"J Med Imaging Radiat Oncol"},{"issue":"1","key":"bibr31-20552076241249962","volume":"22","author":"M\u00fcller E","year":"2023","journal-title":"BMC Palliat Care"},{"issue":"8","key":"bibr32-20552076241249962","doi-asserted-by":"crossref","first-page":"1210","DOI":"10.1016\/j.jval.2023.04.009","volume":"26","author":"de Jel DVC","year":"2023","journal-title":"Value Heal"},{"key":"bibr33-20552076241249962","doi-asserted-by":"crossref","first-page":"1391","DOI":"10.1007\/s11135-021-01182-y","volume":"56","author":"Byrne D","year":"2022","journal-title":"Qual Quant"},{"key":"bibr34-20552076241249962","doi-asserted-by":"crossref","first-page":"37","DOI":"10.1002\/capr.12360","volume":"21","author":"Braun V","year":"2021","journal-title":"Couns Psychother Res"},{"key":"bibr35-20552076241249962","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1191\/1478088706qp063oa","volume":"3","author":"Braun V","year":"2006","journal-title":"Qual Res Psychol"},{"key":"bibr36-20552076241249962","doi-asserted-by":"crossref","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","volume":"19","author":"Tong A","year":"2007","journal-title":"Int J Qual Heal Care J"},{"key":"bibr37-20552076241249962","doi-asserted-by":"crossref","first-page":"1","DOI":"10.11648\/j.ajtas.20160501.11","volume":"5","author":"Etikan I","year":"2016","journal-title":"Am J Theor Appl Stat"},{"key":"bibr38-20552076241249962","doi-asserted-by":"crossref","first-page":"1045","DOI":"10.1177\/0269216319854264","volume":"33","author":"Murtagh FE","year":"2019","journal-title":"Palliat Med"},{"key":"bibr39-20552076241249962","unstructured":"VERONESE Fondazione FARO S.\n                      La versione italiana di OACC: dalla valutazione dei bisogni alla pianificazione delle cure palliative\n                      , www.salute.gov.it\/portale\/temi\/p2_6.jsp?lingua=italiano&id (accessed 10 April 2021)."},{"key":"bibr40-20552076241249962","doi-asserted-by":"crossref","first-page":"630","DOI":"10.1016\/j.jpainsymman.2016.10.370","volume":"53","author":"Hui D","year":"2017","journal-title":"J Pain Symptom Manage"},{"key":"bibr41-20552076241249962","doi-asserted-by":"crossref","first-page":"201","DOI":"10.1080\/2159676X.2019.1704846","volume":"13","author":"Braun V","year":"2021","journal-title":"Qual Res Sport Exerc Heal"},{"key":"bibr42-20552076241249962","doi-asserted-by":"crossref","first-page":"70","DOI":"10.5195\/jmla.2022.1271","volume":"110","author":"Dhakal K","year":"2022","journal-title":"J Med Libr Assoc"},{"key":"bibr43-20552076241249962","unstructured":"Interpretive Description: Qualitative Research for Applied Practice - Sally Thorne - Google Books, https:\/\/books.google.it\/books?hl=en&lr=&id=QRsFDAAAQBAJ&oi=fnd&pg=PP1&ots=KcCNu6ojwx&sig=ysM5Xlf9VJe-p1IsFdhL2_2l1gw&redir_esc=y#v=onepage&q&f=false (accessed 28 November 2023)."},{"key":"bibr44-20552076241249962","doi-asserted-by":"crossref","first-page":"878","DOI":"10.1016\/j.annonc.2022.04.007","volume":"33","author":"Di Maio M","year":"2022","journal-title":"Ann Oncol Off J Eur Soc Med Oncol"}],"container-title":["DIGITAL HEALTH"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/20552076241249962","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/20552076241249962","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/20552076241249962","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T17:51:05Z","timestamp":1777398665000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/20552076241249962"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,1]]},"references-count":44,"alternative-id":["10.1177\/20552076241249962"],"URL":"https:\/\/doi.org\/10.1177\/20552076241249962","relation":{},"ISSN":["2055-2076","2055-2076"],"issn-type":[{"value":"2055-2076","type":"print"},{"value":"2055-2076","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,1]]},"article-number":"20552076241249962"}}