{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,5]],"date-time":"2026-05-05T01:22:18Z","timestamp":1777944138723,"version":"3.51.4"},"reference-count":43,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,2,1]],"date-time":"2026-02-01T00:00:00Z","timestamp":1769904000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,2,1]],"date-time":"2026-02-01T00:00:00Z","timestamp":1769904000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Strategic Research Area - Healthcare Science"},{"name":"NEURO Sweden"},{"DOI":"10.13039\/501100004875","name":"Norrbacka-Eugeniastiftelsen","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100004875","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Region Stockholm"},{"DOI":"10.13039\/100009389","name":"Stiftelsen Promobilia","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100009389","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100009750","name":"Familjen Kamprads Stiftelse","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100009750","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Stockholm Sjukhem Foundation"},{"DOI":"10.13039\/501100006636","name":"Forskningsr\u00e5det f\u00f6r H\u00e4lsa, Arbetsliv och V\u00e4lf\u00e4rd","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100006636","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["DIGITAL HEALTH"],"published-print":{"date-parts":[[2026,2]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>The rapid growth in eHealth has opened new possibilities for people with Parkinson\u2019s Disease (PD). However, given the complexity of PD symptoms, the successful adoption of eHealth likely depends on support from family caregivers. While previous research has explored the perspectives of people with PD, insights into family caregivers\u2019 perceptions of eHealth remain limited.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To explore family caregivers\u2019 perceptions of eHealth in formal care and in supporting physical activity and exercise.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A qualitative design was used. Interviews were conducted with 15 family caregivers (mean age 72 years, 12 women) from rural and urban Sweden. Data were analyzed using inductive qualitative content analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Three themes were formed.\n                      <jats:italic toggle=\"yes\">Being the driving force for home, health and technology<\/jats:italic>\n                      described family caregivers\u2019 responsibility for managing technology, balancing confidence with concerns about added burden and emotional strain, and supporting their partner\u2019s engagement.\n                      <jats:italic toggle=\"yes\">A threat to or enabler of quality time<\/jats:italic>\n                      reflected hopes that eHealth could save time and offer greater flexibility to schedule exercise and activities around daily routines, while also raising concerns about isolation and reduced social interaction if digital solutions replaced in-person contact. This theme also emphasized the need for accessible exercise solutions tailored to PD symptoms.\n                      <jats:italic toggle=\"yes\">Bridging the gaps: blending digital and in-person care<\/jats:italic>\n                      highlighted reliance on online information due to limited professional guidance, appreciation for timely access to PD nurses, and a preference for integrated care models combining in-person care and digital follow-up.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>In conclusion, family caregivers highlighted both opportunities and challenges with eHealth in PD care, valuing its potential to ease daily responsibilities and enhance flexibility, while expressing concerns about added burden, reduced social interaction, and limited professional guidance.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/20552076261447410","type":"journal-article","created":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T12:18:48Z","timestamp":1777465128000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Balancing benefits and challenges of eHealth for family caregivers of people with Parkinson\u2019s disease \u2013 A qualitative study"],"prefix":"10.1177","volume":"12","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3360-5447","authenticated-orcid":false,"given":"Hanna","family":"Johansson","sequence":"first","affiliation":[{"name":"Karolinska Institutet"},{"name":"Karolinska University Hospital"},{"name":"Stockholm Sjukhem Foundation"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2711-0245","authenticated-orcid":false,"given":"Anette","family":"Alvariza","sequence":"additional","affiliation":[{"name":"Stockholm Sjukhem Foundation"},{"name":"Marie Cederschi\u00f6ld University"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9469-6410","authenticated-orcid":false,"given":"Breiffni","family":"Leavy","sequence":"additional","affiliation":[{"name":"Karolinska Institutet"},{"name":"Karolinska University Hospital"},{"name":"Stockholm Sjukhem Foundation"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2026,4,29]]},"reference":[{"key":"e_1_3_8_2_2","doi-asserted-by":"publisher","DOI":"10.1007\/s40520-021-01995-9"},{"key":"e_1_3_8_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(18)30295-3"},{"key":"e_1_3_8_4_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmj-2024-080952"},{"key":"e_1_3_8_5_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(21)00218-X"},{"key":"e_1_3_8_6_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(14)61393-3"},{"key":"e_1_3_8_7_2","doi-asserted-by":"publisher","DOI":"10.1093\/arclin\/acab083"},{"key":"e_1_3_8_8_2","first-page":"Cd013856","article-title":"Physical exercise for people with Parkinson's disease: a systematic review and network meta-analysis","volume":"4","author":"Ernst M","year":"2024","unstructured":"Ernst M, Folkerts AK, Gollan R, et al. Physical exercise for people with Parkinson's disease: a systematic review and network meta-analysis. Cochrane Database Syst Rev 2024; 4: Cd013856. https:\/\/doi.org\/10.1002\/14651858.CD013856.pub3","journal-title":"Cochrane Database Syst Rev"},{"key":"e_1_3_8_9_2","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-230343"},{"key":"e_1_3_8_10_2","doi-asserted-by":"publisher","DOI":"10.1002\/mds.25898"},{"key":"e_1_3_8_11_2","doi-asserted-by":"publisher","DOI":"10.1080\/07317115.2011.539521"},{"key":"e_1_3_8_12_2","first-page":"891988723119521","article-title":"Caregiver Burden in Parkinson Disease: A Scoping Review of the Literature from 2017-2022","volume":"37","author":"Aamodt WW","year":"2023","unstructured":"Aamodt WW, Kluger BM, Mirham M, et al. Caregiver Burden in Parkinson Disease: A Scoping Review of the Literature from 2017-2022. Journal of geriatric psychiatry and neurology 2023; 37: 8919887231195219\u20139919887231195219. https:\/\/doi.org\/10.1177\/08919887231195219","journal-title":"Journal of geriatric psychiatry and neurology"},{"key":"e_1_3_8_13_2","doi-asserted-by":"publisher","DOI":"10.1097\/MD.0000000000041275"},{"key":"e_1_3_8_14_2","first-page":"4483517","article-title":"The Lived Experience of Caregiving and Perception of Service Provision among Family-Caregivers of People with Late-Stage Parkinson's: A Qualitative Study","volume":"2023","author":"Read J","year":"2023","unstructured":"Read J, Cable S, Bartl G, et al. The Lived Experience of Caregiving and Perception of Service Provision among Family-Caregivers of People with Late-Stage Parkinson's: A Qualitative Study. Parkinsons Dis 2023; 2023: 4483517. https:\/\/doi.org\/10.1155\/2023\/4483517","journal-title":"Parkinsons Dis"},{"key":"e_1_3_8_15_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.parkreldis.2015.03.024"},{"key":"e_1_3_8_16_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12916-023-02933-4"},{"key":"e_1_3_8_17_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2702.2012.04146.x"},{"key":"e_1_3_8_18_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12875-023-02176-5"},{"key":"e_1_3_8_19_2","volume-title":"Vision for eHealth","year":"2025","unstructured":"Government Offices of Sweden and Swedish Association of Local Authorities and Regions. Vision for eHealth 2025. Regereingen, 2016."},{"key":"e_1_3_8_20_2","unstructured":"Internetstiftelsen. Svenskarna och internet 2025. 2025. https:\/\/svenskarnaochinternet.se\/rapporter\/svenskarna-och-internet-2025\/english\/ accessed 2026-03-17."},{"key":"e_1_3_8_21_2","doi-asserted-by":"publisher","DOI":"10.2196\/63288"},{"key":"e_1_3_8_22_2","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-181557"},{"key":"e_1_3_8_23_2","doi-asserted-by":"publisher","DOI":"10.1080\/17483107.2019.1685017"},{"key":"e_1_3_8_24_2","first-page":"806","volume-title":"Qualitative research & evaluation methods: integrating theory and practice","author":"Patton MQ","year":"2015","unstructured":"Patton MQ. Qualitative research & evaluation methods: integrating theory and practice. 4th ed. ed. Sage Publications, Inc, 2015, p xxi, 806 pages.","edition":"4"},{"key":"e_1_3_8_25_2","doi-asserted-by":"publisher","DOI":"10.1177\/1049732315617444"},{"key":"e_1_3_8_26_2","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"e_1_3_8_27_2","doi-asserted-by":"publisher","DOI":"10.1186\/s13012-022-01245-0"},{"key":"e_1_3_8_28_2","doi-asserted-by":"publisher","DOI":"10.1097\/ANS.0b013e318261b1ba"},{"key":"e_1_3_8_29_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.nedt.2003.10.001"},{"key":"e_1_3_8_30_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2020.103632"},{"key":"e_1_3_8_31_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11135-017-0574-8"},{"key":"e_1_3_8_32_2","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2023.2227119"},{"key":"e_1_3_8_33_2","doi-asserted-by":"publisher","DOI":"10.1177\/08919887231168404"},{"key":"e_1_3_8_34_2","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2017.1413427"},{"key":"e_1_3_8_35_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-023-08188-2"},{"key":"e_1_3_8_36_2","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-181456"},{"key":"e_1_3_8_37_2","doi-asserted-by":"publisher","DOI":"10.1111\/jan.14476"},{"key":"e_1_3_8_38_2","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.14522"},{"key":"e_1_3_8_39_2","doi-asserted-by":"publisher","DOI":"10.1017\/BrImp.2015.19"},{"key":"e_1_3_8_40_2","doi-asserted-by":"publisher","DOI":"10.1111\/bjhp.12629"},{"key":"e_1_3_8_41_2","first-page":"47","article-title":"Caregiving as a Process of Changing Identity: Implications for Caregiver Support","volume":"33","author":"Montgomery RJV","year":"2009","unstructured":"Montgomery RJV, Kosloski K. Caregiving as a Process of Changing Identity: Implications for Caregiver Support. Generations (San Francisco, Calif) 2009; 33: 47\u201352.","journal-title":"Generations (San Francisco, Calif)"},{"key":"e_1_3_8_42_2","first-page":"8673087","article-title":"Proactive and Integrated Management and Empowerment in Parkinson's Disease: Designing a New Model of Care","volume":"2020","author":"Tenison E","year":"2020","unstructured":"Tenison E, Smink A, Redwood S, et al. Proactive and Integrated Management and Empowerment in Parkinson's Disease: Designing a New Model of Care. Parkinsons Dis 2020; 2020: 8673087. https:\/\/doi.org\/10.1155\/2020\/8673087","journal-title":"Parkinsons Dis"},{"key":"e_1_3_8_43_2","doi-asserted-by":"publisher","DOI":"10.3390\/jpm12061001"},{"key":"e_1_3_8_44_2","first-page":"390","article-title":"Co-creation in digital health services for older people: a realist review of enabling factors and barriers","volume":"8","author":"H\u00f8iseth M","year":"2024","unstructured":"H\u00f8iseth M, Nakrem S. Co-creation in digital health services for older people: a realist review of enabling factors and barriers. Design for health (Abingdon, England) 2024; 8: 390\u2013408. https:\/\/doi.org\/10.1080\/24735132.2024.2449288","journal-title":"Design for health (Abingdon, England)"}],"container-title":["DIGITAL HEALTH"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/20552076261447410","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/20552076261447410","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/20552076261447410","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,2]],"date-time":"2026-05-02T07:50:15Z","timestamp":1777708215000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/20552076261447410"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,2]]},"references-count":43,"alternative-id":["10.1177\/20552076261447410"],"URL":"https:\/\/doi.org\/10.1177\/20552076261447410","relation":{},"ISSN":["2055-2076","2055-2076"],"issn-type":[{"value":"2055-2076","type":"print"},{"value":"2055-2076","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,2]]},"article-number":"20552076261447410"}}