{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,2]],"date-time":"2026-11-02T21:08:54Z","timestamp":1793653734484,"version":"4.5.1"},"reference-count":25,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2019,1,1]],"date-time":"2019-01-01T00:00:00Z","timestamp":1546300800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100000133","name":"Children\u2019s Heart Association of Cincinnati","doi-asserted-by":"publisher","award":["#HS016957"],"award-info":[{"award-number":["#HS016957"]}],"id":[{"id":"10.13039\/100000133","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["World J Pediatr Congenit Heart Surg"],"published-print":{"date-parts":[[2019,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>The National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) formed to improve outcomes in infants with hypoplastic left heart syndrome. The collaborative sought to (1) decrease mortality, (2) reduce growth failure, and (3) reduce hospital readmissions due to major medical problems during the interstage period between discharge following stage 1 palliation (S1P) and admission for stage 2 palliation (S2P).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>The NPC-QIC is a learning network, coproduced by parents and clinicians, of 65 pediatric cardiology centers that contribute clinical data on care processes and outcomes to a shared registry. The adapted Breakthrough Series Model structure brings teams together regularly to review data, share lessons, and plan improvements. Outcomes are monitored using statistical process control methods.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Between 2008 and 2016, interstage mortality decreased by &gt;40%, from 9.5% to 5.3%. Identification and use of a nutrition bundle led to improved infant growth, with a 28% reduction in interstage growth failure. The rate of serious hospital readmissions was low and did not significantly change. Importantly, a formed partnership with the parent group Sisters by Heart fostered the coproduction of tools and strategies and an emphasis on data transparency and outcomes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>The NPC-QIC\u2019s initial efforts led to improvements in interstage growth and mortality. The NPC-QIC has modeled the use of data for improvement and research, the value of coproduction with parents, and the concept \u201call teach, all learn,\u201d demonstrating the power of the learning network model.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/2150135118815023","type":"journal-article","created":{"date-parts":[[2019,1,9]],"date-time":"2019-01-09T14:43:15Z","timestamp":1547044995000},"page":"66-71","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":38,"title":["Power of a Learning Network in Congenital Heart Disease"],"prefix":"10.1177","volume":"10","author":[{"given":"Jeffrey B.","family":"Anderson","sequence":"first","affiliation":[{"name":"The Heart Institute, Cincinnati Children\u2019s Hospital Medical Center, Department of Pediatrics, University of Cincinnati, College of Medicine, Cincinnati, OH, USA"},{"name":"The James M. Anderson Center for Health Systems Excellence, Cincinnati Children\u2019s Hospital Medical Center, Cincinnati, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David W.","family":"Brown","sequence":"additional","affiliation":[{"name":"Boston Children\u2019s Hospital, Department of Pediatrics, Harvard Medical School, Boston, MA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stacy","family":"Lihn","sequence":"additional","affiliation":[{"name":"The James M. Anderson Center for Health Systems Excellence, Cincinnati Children\u2019s Hospital Medical Center, Cincinnati, OH, USA"},{"name":"Sisters by Heart, Phoenix, AZ, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Colleen","family":"Mangeot","sequence":"additional","affiliation":[{"name":"Division of Biostatistics and Epidemiology, Cincinnati Children\u2019s Hospital Medical Center, Cincinnati, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katherine E.","family":"Bates","sequence":"additional","affiliation":[{"name":"Congenital Heart Center, C.S. Mott Children\u2019s Hospital, University of Michigan Medical School, Ann Arbor, MI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4934-7577","authenticated-orcid":false,"given":"Andrew H.","family":"Van Bergen","sequence":"additional","affiliation":[{"name":"Advocate Children\u2019s Heart Institute, Advocate Children\u2019s Hospital, Oak Lawn, IL, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nancy A.","family":"Rudd","sequence":"additional","affiliation":[{"name":"Children\u2019s Hospital of Wisconsin, Milwaukee, WI, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Samuel","family":"Hanke","sequence":"additional","affiliation":[{"name":"The Heart Institute, Cincinnati Children\u2019s Hospital Medical Center, Department of Pediatrics, University of Cincinnati, College of Medicine, Cincinnati, OH, USA"},{"name":"The James M. Anderson Center for Health Systems Excellence, Cincinnati Children\u2019s Hospital Medical Center, Cincinnati, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jim","family":"Tweddell","sequence":"additional","affiliation":[{"name":"The Heart Institute, Cincinnati Children\u2019s Hospital Medical Center, Department of Pediatrics, University of Cincinnati, College of Medicine, Cincinnati, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carole","family":"Lannon","sequence":"additional","affiliation":[{"name":"The James M. Anderson Center for Health Systems Excellence, Cincinnati Children\u2019s Hospital Medical Center, Cincinnati, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2019,1,8]]},"reference":[{"key":"bibr1-2150135118815023","doi-asserted-by":"publisher","DOI":"10.1161\/CIRCULATIONAHA.117.029375"},{"key":"bibr2-2150135118815023","volume-title":"Institute of Medicine Roundtable on Evidence-based Medicine. The Learning Healthcare System: Workshop Summary","author":"Olsen LA","year":"2007"},{"key":"bibr3-2150135118815023","unstructured":"Institute for Healthcare Improvement. The Breakthrough Series: IHI\u2019s Collaborative Model for Achieving Breakthrough Improvement. IHI Innovation Series White Paper. 2003. www.IHI.org. 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