{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,25]],"date-time":"2026-08-25T12:41:49Z","timestamp":1787661709539,"version":"build-2736575974"},"reference-count":24,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2022,5,18]],"date-time":"2022-05-18T00:00:00Z","timestamp":1652832000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Partial funding received from UCLA Graduate Fellowship Awards, Institute for Nursing and Interprofessional Research (CHLA), and Audrienne H. Moseley Scholarship Fund."}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["World J Pediatr Congenit Heart Surg"],"published-print":{"date-parts":[[2022,7]]},"abstract":"<jats:p>Background: Infants born with single ventricle heart disease require in-home medicalized care during the interstage period (time between the first and second staged heart surgery). These caregivers rely on extended family, friends, and hired caretakers to provide respite time. However, the coronavirus pandemic removed these families\u2019 options due to stay-at-home and social distancing directives. We explored the caregivers\u2019 experiences during the interstage period, including impacts on their lifestyle, as they managed their infants\u2019 critical needs during the coronavirus disease 2019 pandemic. Method: In-person or telephonic interviews of 14 caregivers interviewed once or twice were conducted between November 2019 and July 2020. Constructivist Grounded Theory methodology guided both data collection and analysis for the inductive and abductive exploration of caregivers\u2019 experiences. Results: Data analysis led to the development of 2 concepts: Accepting and adapting to a restrictive home environment and Reconciling what is and what is yet to come. Refinement of the relationship between the 2 concepts led to the development of a theory grounded in the words and experiences of the participants called: A Continuous Process of Compromise. Conclusions: Our findings increase understanding of caregivers\u2019 experiences related to psychosocial and lifestyle impacts and the need for additional support during the interstage period.<\/jats:p>","DOI":"10.1177\/21501351221099945","type":"journal-article","created":{"date-parts":[[2022,5,19]],"date-time":"2022-05-19T00:42:26Z","timestamp":1652920946000},"page":"443-450","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":2,"title":["Caregiving for Interstage Infants: A Continuous Process of Compromise During the Pandemic"],"prefix":"10.1177","volume":"13","author":[{"given":"Flerida","family":"Imperial-Perez","sequence":"first","affiliation":[{"name":"Children\u2019s Hospital Los Angeles, Heart Institute, Section of Cardiothoracic ICU, Los Angeles, CA, USA"},{"name":"University of California Los Angeles School of Nursing, Los Angeles, CA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nancy A.","family":"Pike","sequence":"additional","affiliation":[{"name":"Children\u2019s Hospital Los Angeles, Heart Institute, Section of Cardiothoracic ICU, Los Angeles, CA, USA"},{"name":"University of California Los Angeles School of Nursing, Los Angeles, CA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lynn V.","family":"Doering","sequence":"additional","affiliation":[{"name":"University of California Los Angeles School of Nursing, Los Angeles, CA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jo-Ann","family":"Eastwood","sequence":"additional","affiliation":[{"name":"University of California Los Angeles School of Nursing, Los Angeles, CA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"MarySue V.","family":"Heilemann","sequence":"additional","affiliation":[{"name":"University of California Los Angeles School of Nursing, Los Angeles, CA, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2022,5,18]]},"reference":[{"key":"bibr1-21501351221099945","doi-asserted-by":"publisher","DOI":"10.1161\/CIR.0000000000000659"},{"key":"bibr2-21501351221099945","doi-asserted-by":"publisher","DOI":"10.1007\/s00246-016-1472-x"},{"key":"bibr3-21501351221099945","doi-asserted-by":"publisher","DOI":"10.4037\/ccn2017763"},{"key":"bibr4-21501351221099945","doi-asserted-by":"publisher","DOI":"10.1080\/24694193.2017.1372532"},{"key":"bibr5-21501351221099945","volume-title":"Four-factor index of Social status1975, New Haven, CT.Charmaz K. 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