{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,4]],"date-time":"2026-09-04T18:13:52Z","timestamp":1788545632110,"version":"build-2803163510"},"reference-count":19,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T00:00:00Z","timestamp":1788307200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Adolescent and Young Adult Oncology"],"abstract":"<jats:p>The Gustave Roussy Institute (IGR) is considered the leading cancer center in Europe. Since 2012, a multidisciplinary team dedicated to adolescents and young adults (AYAs)\u2014known as SPIAJA\u2014has been developing a comprehensive care model for patients in this age group treated at the IGR. This mobile unit, integrated into the pediatrics department, collaborates with several adult care departments and offers a wide range of specialized services. Based on both interviews and observations, this qualitative study highlights the role of leadership as a catalyst for overcoming barriers and improving interprofessional collaboration, which appears to have a positive impact on the quality of life of AYA patients. However, the identified barriers and challenges highlight certain performance limitations when this \u201cmanagerial culture\u201d is not implemented at all levels of the institution.<\/jats:p>","DOI":"10.1177\/21565333261483392","type":"journal-article","created":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T09:22:21Z","timestamp":1788340941000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Quality of Life of Adolescents and Young Adults with Cancer at Gustave Roussy Institute: The Role of Management in Enhancing Care and Ensuring Performance"],"prefix":"10.1177","author":[{"given":"Morgane","family":"Cousin","sequence":"first","affiliation":[{"name":"Healthcare Organization Management Consulting, Nouvelle Aquitaine, France."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nathalie","family":"Sanquirgo","sequence":"additional","affiliation":[{"name":"Foundation ITSRS, Montrouge, France."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lucy","family":"Metayer","sequence":"additional","affiliation":[{"name":"Department of Oncology for Child and Adolescent, Gustave Roussy, Villejuif, France."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Miguel","family":"Maiz","sequence":"additional","affiliation":[{"name":"Department of Oncology for Child and Adolescent, Gustave Roussy, Villejuif, France."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Benjamin","family":"Verret","sequence":"additional","affiliation":[{"name":"Specific Interdisciplinary Care Program for Adolescents and Young Adults and Department of Medical Oncology, Gustave Roussy, Villejuif, France."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nathalie","family":"Gaspar","sequence":"additional","affiliation":[{"name":"Department of Pediatric Oncology, Specific Interdisciplinary Care Program for Adolescents and Young Adults, Gustave Roussy, Villejuif, France."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,9,2]]},"reference":[{"key":"e_1_3_4_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.esmoop.2021.100096"},{"key":"e_1_3_4_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.26528"},{"key":"e_1_3_4_4_1","doi-asserted-by":"publisher","DOI":"10.1093\/jnci\/84.8.575"},{"key":"e_1_3_4_5_1","volume-title":"Qualit\u00e9 des soins per\u00e7ue par le patient\u2014Indicateurs PROMs et PREMs: panorama d\u2019exp\u00e9riences \u00e9trang\u00e8res et principaux enseignements","author":"Haute Autorit\u00e9 de Sant\u00e9","year":"2021","unstructured":"4.Haute Autorit\u00e9 de Sant\u00e9. Qualit\u00e9 des soins per\u00e7ue par le patient\u2014Indicateurs PROMs et PREMs: panorama d\u2019exp\u00e9riences \u00e9trang\u00e8res et principaux enseignements. HAS: Saint-Denis La Plaine; 2021."},{"key":"e_1_3_4_6_1","doi-asserted-by":"publisher","DOI":"10.2147\/PROM.S51658"},{"key":"e_1_3_4_7_1","doi-asserted-by":"publisher","DOI":"10.2147\/CMAR.S284439"},{"key":"e_1_3_4_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.bulcan.2018.10.012"},{"key":"e_1_3_4_9_1","unstructured":"8.Gustave Roussy [Internet]. Adolescents et Jeunes Adultes\u2014Education th\u00e9rapeutique. Gustave Roussy: Villejuif France; 2015. Available from: https:\/\/www.gustaveroussy.fr\/fr\/adolescents-jeunes-adultes-education-therapeutique [Last accessed: November29 2024]."},{"key":"e_1_3_4_10_1","first-page":"91","volume-title":"Performance et innovation dans les \u00e9tablissements de sant\u00e9","author":"Fermon B","year":"2015","unstructured":"9.Fermon B, , Grandjean P. 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