{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T18:04:51Z","timestamp":1777658691161,"version":"3.51.4"},"reference-count":28,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2025,7,8]],"date-time":"2025-07-08T00:00:00Z","timestamp":1751932800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2025,7,8]],"date-time":"2025-07-08T00:00:00Z","timestamp":1751932800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100007028","name":"The Leona M. and Harry B. Helmsley Charitable Trust","doi-asserted-by":"crossref","award":["2207-05386"],"award-info":[{"award-number":["2207-05386"]}],"id":[{"id":"10.13039\/100007028","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Global Spine Journal"],"published-print":{"date-parts":[[2026,1]]},"abstract":"<jats:sec>\n                    <jats:title>Study Design<\/jats:title>\n                    <jats:p>Ambispective study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>To determine the long-term natural history of non-surgically treated patients with myopathy and spinal deformity.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Data were analyzed from 118 files from a children\u2019s rehabilitation hospital. Seventeen patients were operated on; the remaining 101 patients (86%) were managed conservatively. Retrospective data included demographics, medical history, respiratory and mobility status, Cobb angle (CA), and pelvic obliquity (PO). Prospective data were obtained via telephone interviews and included the Scoliosis Research Society (SRS-22r), World Health Organization Quality of Life (QoL) (WHO-QoL) and Functional Independence Measure for Children (WeeFIM).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>One hundred and one patients with myopathy and scoliosis did not have surgery and were followed for up to 33\u00a0years. Their mean age at first visit was 5.45 \u00b1 5.27\u00a0years. CA and PO at the first visit were 27.05 \u00b1 27.07 and 7.74 \u00b1 9.81\u00b0, worsening to 46.95 \u00b1 39.26 and 15.61 \u00b1 8.57\u00b0 at last visit. Respiratory data for 67 patients showed 45 who remained stable and 14 who worsened moderately and 5 severely. Mobility status worsened but not significantly. Of the 24 participants who responded to the survey (mean age 17.41 \u00b1 10.84\u00a0years), 92% are single or divorced. They reported being generally satisfied with their QoL, although their functional scores indicated limited independence.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Despite worsening of scoliosis and limited independence, participants were generally satisfied with their QoL.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/21925682251356914","type":"journal-article","created":{"date-parts":[[2025,7,8]],"date-time":"2025-07-08T06:50:51Z","timestamp":1751957451000},"page":"661-669","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Patients With Myopathy and Scoliosis Treated Conservatively: Retrospective Long-Term Follow-Up and Prospective Outcomes"],"prefix":"10.1177","volume":"16","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2614-8084","authenticated-orcid":false,"given":"Sharon","family":"Eylon","sequence":"first","affiliation":[{"name":"ALYN Pediatric and Adolescent Rehabilitation Center"},{"name":"ALYN Hospital"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Patrice L.","family":"Weiss","sequence":"additional","affiliation":[{"name":"ALYN Hospital"},{"name":"University of Haifa"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0048-2850","authenticated-orcid":false,"given":"Amihai","family":"Rigbi","sequence":"additional","affiliation":[{"name":"Beit Berl Academic College"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rana","family":"Hanna","sequence":"additional","affiliation":[{"name":"Rambam Health Care Campus"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0238-6248","authenticated-orcid":false,"given":"Joshua E","family":"Schroeder","sequence":"additional","affiliation":[{"name":"Hadassah Hebrew University Medical Center"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alexandra","family":"Satanovsky","sequence":"additional","affiliation":[{"name":"Hadassah Hebrew University Medical Center"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2025,7,8]]},"reference":[{"key":"e_1_3_6_2_2","doi-asserted-by":"publisher","DOI":"10.1016\/B978-0-323-62539-5.00042-4"},{"key":"e_1_3_6_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0030-5898(05)70096-1"},{"key":"e_1_3_6_4_2","doi-asserted-by":"publisher","DOI":"10.21037\/jss.2016.09.04"},{"key":"e_1_3_6_5_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.pmr.2021.02.007"},{"issue":"1","key":"e_1_3_6_6_2","first-page":"35","article-title":"Scoliosis and the impact in neuromuscular disease","volume":"16","author":"Mayer OH","year":"2015","unstructured":"Mayer OH. 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