{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,28]],"date-time":"2026-06-28T03:46:16Z","timestamp":1782618376415,"version":"3.54.5"},"reference-count":44,"publisher":"SAGE Publications","issue":"4","license":[{"start":{"date-parts":[[2025,12,24]],"date-time":"2025-12-24T00:00:00Z","timestamp":1766534400000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,12,24]],"date-time":"2025-12-24T00:00:00Z","timestamp":1766534400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Neuromuscular Diseases"],"published-print":{"date-parts":[[2026,7]]},"abstract":"<jats:p>\n                    Myasthenia Gravis (MG) is a chronic autoimmune neuromuscular condition that significantly impacts patients\u2019 lives. Whilst psychosocial challenges are increasingly recognised as important in understanding the lived experience of patients, insight into these experiences during periods of clinical stability remains underexplored. This qualitative study explores the psychological and social aspects of living with MG through thematic analysis of semi-structured interviews with eight adults from a specialist MG care clinic in London, all considered clinically stable for at least three months. Data were derived from participants initially interviewed about their day-to-day experience of physical symptoms to inform development of a symptom monitoring tool. As psychosocial themes emerged strongly but remained unanalysed, this paper presents a secondary analysis focusing on psychosocial themes. Three overarching themes emerged: (1)\n                    <jats:italic toggle=\"yes\">coping with adaptation<\/jats:italic>\n                    - including the burden of planning, struggles to accept diagnosis, therapeutic challenges and fear of the future; (2)\n                    <jats:italic toggle=\"yes\">social and identity disruption<\/jats:italic>\n                    - involving changes in self-image, social withdrawal, and occupational challenges; and (3)\n                    <jats:italic toggle=\"yes\">emotional and psychological impact<\/jats:italic>\n                    - highlighting negative emotions and cognitive fatigue. Uncertainty emerged as a meta-theme underpinning all other themes, reflecting, driving, and being created by MG's fluctuating symptoms. Findings suggest that psychological and social challenges underscored by uncertainty persist independently of symptom stability, highlighting the importance of uncertainty-focused interventions and integrated psychosocial support in MG care.\n                  <\/jats:p>","DOI":"10.1177\/22143602251406948","type":"journal-article","created":{"date-parts":[[2025,12,24]],"date-time":"2025-12-24T17:19:46Z","timestamp":1766596786000},"page":"734-747","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Exploring psychosocial experiences in clinically stable generalised Myasthenia Gravis: A thematic analysis"],"prefix":"10.1177","volume":"13","author":[{"ORCID":"https:\/\/orcid.org\/0009-0008-6669-0733","authenticated-orcid":false,"given":"Ellie","family":"Maycock","sequence":"first","affiliation":[{"name":"Institute of Neurology, University College London, London, UK"},{"name":"Department of Psychology, University of York, York, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Victoria","family":"Selby","sequence":"additional","affiliation":[{"name":"Dubowitz Centre for Neuromuscular Diseases, Great Ormond Street Hospital, London, UK"},{"name":"Institute of Child Health, University College London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael","family":"Hanna","sequence":"additional","affiliation":[{"name":"Institute of Neurology, University College London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Francesco","family":"Muntoni","sequence":"additional","affiliation":[{"name":"Institute of Child Health, University College London, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9344-0301","authenticated-orcid":false,"given":"Gita","family":"Ramdharry","sequence":"additional","affiliation":[{"name":"Institute of Neurology, University College London, London, UK"},{"name":"National Hospital for Neurology and Neurosurgery, University College London Hospitals NHS Trust, London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,12,24]]},"reference":[{"key":"e_1_3_4_2_2","doi-asserted-by":"publisher","DOI":"10.1177\/1756285617749134"},{"key":"e_1_3_4_3_2","doi-asserted-by":"publisher","DOI":"10.3389\/fneur.2020.00604"},{"key":"e_1_3_4_4_2","first-page":"1195","article-title":"Burden of disease in myasthenia gravis: a comprehensive review","volume":"267","author":"Ruiter MA","year":"2020","unstructured":"Ruiter MA, et al. 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