{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T02:17:52Z","timestamp":1787019472451,"version":"build-2736575974"},"reference-count":23,"publisher":"SAGE Publications","issue":"3","license":[{"start":{"date-parts":[[2024,4,2]],"date-time":"2024-04-02T00:00:00Z","timestamp":1712016000000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2024,4,2]],"date-time":"2024-04-02T00:00:00Z","timestamp":1712016000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Indigenous Primary Health Care and Policy Research Network","award":["Seed grant"],"award-info":[{"award-number":["Seed grant"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Plast Surg (Oakv)"],"published-print":{"date-parts":[[2025,8]]},"abstract":"<jats:p>\n                    <jats:bold>Purpose:<\/jats:bold>\n                    Our small-scale qualitative study sought to explore the experiences of Indigenous patients receiving care for cleft lip and\/or palate at a multidisciplinary clinic. There currently are no published studies that demonstrate the experiences of cleft lip and\/or palate patients receiving care in multidisciplinary clinics in Canada. This work is foundational to informing future care in a way that is reflective and cognizant of Indigenous ways of life and lived experiences.\n                    <jats:bold>Method:<\/jats:bold>\n                    Participants were recruited via purposive and snowball sampling through community networks and public advertising in relevant healthcare spaces. Semi-structured interviews were completed; transcribed verbatim and descriptive codes were generated using Indigenist research methodologies through the Blackfoot medicine wheel.\n                    <jats:bold>Results:<\/jats:bold>\n                    Five participants that included patients, parents of patients with cleft lip and\/or palate, and Indigenous health liasions were interviewed. Participants indicated a lack of spiritual health, the physical demands of having a cleft lip and\/or palate on a patient and their families, the fear and unknown associated with a new cleft lip and\/or palate diagnosis, and lack of cultural support, awareness and racism may negatively impact mental health.\n                    <jats:bold>Conclusion:<\/jats:bold>\n                    Indigenous patients must receive cleft lip and\/or palate care that is cognizant of both their cultural needs identified in our study but also reflective of the ways in which health may be conceptualized for Indigenous patients. The following models of care suggested in our study must also seek to address historic mandates that include UNDRIP and the Truth and Reconciliation Commission's Calls to Action.\n                  <\/jats:p>","DOI":"10.1177\/22925503241241088","type":"journal-article","created":{"date-parts":[[2024,4,2]],"date-time":"2024-04-02T04:16:21Z","timestamp":1712031381000},"page":"465-470","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":3,"title":["First Nations Patients\u2019 Experience Receiving Care for Cleft Lip and Palate in a Multidisciplinary Clinic Setting"],"prefix":"10.1177","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1126-0855","authenticated-orcid":false,"given":"Haley","family":"Shade","sequence":"first","affiliation":[{"name":"Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Robertson Harrop","sequence":"additional","affiliation":[{"name":"Section of Pediatric Plastic Surgery, Department of Surgery, University of Calgary, Calgary, Alberta, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Donald","family":"McPhalen","sequence":"additional","affiliation":[{"name":"Section of Pediatric Plastic Surgery, Department of Surgery, University of Calgary, Calgary, Alberta, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pamela","family":"Roach","sequence":"additional","affiliation":[{"name":"Department of Family Medicine and Community Health Sciences, University of Calgary, Calgary, Alberta, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,4,2]]},"reference":[{"key":"e_1_3_3_2_2","unstructured":"Public Health Agency of Canada. Congenital Anomalies in Canada: 2022. Public Health Infobase. Ottawa 2022. In. Ottawa."},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1097\/PRS.0b013e318289d045"},{"key":"e_1_3_3_4_2","first-page":"1097","volume-title":"Orthodontics: current principals and techniques","author":"Grabber T","unstructured":"Grabber T, Vanarsdall R, Vig K. Orthodontics: current principals and techniques. 4th ed. Elsevier Mosby, 2005, 1097-1121.","edition":"4"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.bjps.2022.02.009"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1177\/1055665620977271"},{"key":"e_1_3_3_7_2","unstructured":"Canada Go. Indigenous population continues to grow and is much younger than the non-Indigenous population although the pace of growth has slowed. Statistics Canada. https:\/\/www150.statcan.gc.ca\/n1\/daily-quotidien\/220921\/dq220921a-eng.htm?indid=32990-1&indgeo=0. Published 2021. Accessed September 21 2023."},{"issue":"5","key":"e_1_3_3_8_2","first-page":"1","article-title":"Colonial legacies and collaborative action: Improving indigenous peoples\u2019 health care in Canada","volume":"10","author":"Wylie L","year":"2019","unstructured":"Wylie L, McConkey S, Corrado AM. Colonial legacies and collaborative action: Improving indigenous peoples\u2019 health care in Canada. Int Indigenous Policy Journal. 2019;10(5):1-29.","journal-title":"Int Indigenous Policy Journal"},{"issue":"11","key":"e_1_3_3_9_2","first-page":"1569","article-title":"Aboriginal health","volume":"155","author":"MacMillan HL","year":"1996","unstructured":"MacMillan HL, MacMillan AB, Offord DR, Dingle JL. Aboriginal health. CMAJ. 1996;155(11):1569-1578.","journal-title":"CMAJ"},{"key":"e_1_3_3_10_2","unstructured":"Lafond M Johnson H Charles G. In Plain Sight Addressing Indigenous-specific Racism and Discrimination in B.C. Health Care Addressing Racism Review December 2020 Data Report. 2021."},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1503\/cmaj.191682"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1016\/S2214-109X(14)70384-5"},{"key":"e_1_3_3_13_2","article-title":"Policy brief: assessing access, indicators for a healthy surgical system","author":"2030 GS","unstructured":"2030 GS. Policy brief: assessing access, indicators for a healthy surgical system. 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Fernwood Publishing; 2008, \u00a92008; 2008."},{"key":"e_1_3_3_19_2","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"issue":"3","key":"e_1_3_3_20_2","first-page":"22","article-title":"Rising to the challenge in aboriginal health by creating cultural security","volume":"31","author":"Coffin J","year":"2007","unstructured":"Coffin J. Rising to the challenge in aboriginal health by creating cultural security. Aborig Isl Health Work J. 2007;31(3):22-24.","journal-title":"Aborig Isl Health Work J."},{"key":"e_1_3_3_21_2","unstructured":"Services AH. Patient Access to Indigenous Ceremony In:June 2023. https:\/\/www.albertahealthservices.ca\/info\/page18446.aspx#:~:text=There%20are%20no%20restrictions%20on support%20staff%20at%20that%20stie."},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.1089\/acm.2018.0387"},{"key":"e_1_3_3_23_2","unstructured":"Assembly UNG. United Nations Declaration on the Rights of Indigenous Peoples. 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