{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,12]],"date-time":"2026-09-12T11:06:09Z","timestamp":1789211169704,"version":"build-2803163510"},"reference-count":37,"publisher":"SAGE Publications","issue":"6","license":[{"start":{"date-parts":[[2026,7,10]],"date-time":"2026-07-10T00:00:00Z","timestamp":1783641600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Medical College of Wisconsin\u2019s Department of Psychiatry and Behavioral Medicine","award":["N\/A"],"award-info":[{"award-number":["N\/A"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["LGBT Health"],"published-print":{"date-parts":[[2026,9,1]]},"abstract":"<jats:sec>\n                    <jats:title>Purpose:<\/jats:title>\n                    <jats:p>The objective of this review was to identify perceptions of end-of-life (EOL) care needs among transgender and nonbinary (TNB) individuals.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>A systematic review was conducted following the Preferred Reporting Items for Systematic reviews and Meta-Analyses guidelines. We used PubMed and Web of Science databases to identify EOL care needs, experiences, and preferences related to TNB individuals, with publication dates spanning January 1, 1988, through February 20, 2024. Articles were required to be written or translated in English, focus on EOL care factors, and include TNB individuals in the study sample; all study types were included worldwide. Duplicates across databases were removed and full-text review of all articles was conducted, with subsequent forward and backward citation review. Prominent themes were identified using thematic analysis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Forty-two articles were selected for full-text review during database extraction, including nine articles that ultimately met inclusion criteria. An additional eight articles were identified during forward and backward citation review, resulting in 17 eligible articles included in this systematic review. We identified five major themes during thematic analysis: fear of discrimination in long-term care facilities, fear of loss of independence, maintaining social circles with aging, obstacles to EOL logistics, and what defines successful aging. Additional subthemes included fear about loss of identity, preference for euthanasia versus loss of identity, participation in EOL planning, and advance care plan\/will completion.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Psychosocial aspects were the most substantial barriers to successful EOL planning. Future work is needed to support TNB individual autonomy during EOL planning and care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/23258292261467441","type":"journal-article","created":{"date-parts":[[2026,7,10]],"date-time":"2026-07-10T09:49:54Z","timestamp":1783676994000},"page":"365-374","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Aging and End-of-Life Care Planning Among Transgender and Nonbinary Individuals: A Systematic Review"],"prefix":"10.1177","volume":"13","author":[{"given":"Ginger H.","family":"Kwak","sequence":"first","affiliation":[{"name":"Department of Psychiatry and Behavioral Medicine, Medical College of Wisconsin, Milwaukee, Wisconsin, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"G. Nic","family":"Rider","sequence":"additional","affiliation":[{"name":"Department of Family Medicine and Community Health, Eli Coleman Institute for Sexual and Gender Health, University of Minnesota Medical School, Minneapolis, Minnesota, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emily A.","family":"Paine","sequence":"additional","affiliation":[{"name":"Division of Gender, Sexuality, and Health, New York State Psychiatric Institute, New York, New York, USA."},{"name":"Department of Psychiatry, Columbia University, New York, New York, USA."},{"name":"Department of Sociomedical Sciences, Columbia University, New York, New York, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Walter O.","family":"Bockting","sequence":"additional","affiliation":[{"name":"Division of Gender, Sexuality, and Health, New York State Psychiatric Institute, New York, New York, USA."},{"name":"Program for the Study of LGBTQ+ Health, Columbia Psychiatry and the Columbia School of Nursing, New York, New York, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1316-3920","authenticated-orcid":false,"given":"Steven A.","family":"John","sequence":"additional","affiliation":[{"name":"Department of Family Medicine and Community Health, Eli Coleman Institute for Sexual and Gender Health, University of Minnesota Medical School, Minneapolis, Minnesota, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,7,10]]},"reference":[{"key":"e_1_3_3_2_1","doi-asserted-by":"publisher","DOI":"10.1177\/26323524211039234"},{"key":"e_1_3_3_3_1","unstructured":"2.Resneck J. Everyone deserves quality medical care delivered without bias. American Medical Association: Chicago IL https:\/\/www.ama-assn.org\/about\/leadership\/everyone-deserves-quality-medical-care-delivered-without-bias (2022 accessed 12 September 2025)."},{"key":"e_1_3_3_4_1","unstructured":"3.American Psychological Association. APA policy statement on affirming evidence-based inclusive care for transgender gender diverse and non-binary individuals addressing misinformation and the role of psychological practice and science. Washington DC https:\/\/www.apa.org\/about\/policy\/transgender-nonbinary-inclusive-care (2024 accessed 6 April 2025)."},{"key":"e_1_3_3_5_1","unstructured":"4.American Medical Association. Clarification of evidence-based gender-affirming care H-185.927. Chicago IL https:\/\/policysearch.ama-assn.org\/policyfinder\/detail\/%22Clarification%20of%20Evidence-Based%20Gender-Affirming%20Care%22?uri=%2FAMADoc%2FHOD-185.927.xml (2024 accessed 12 September 2025)."},{"key":"e_1_3_3_6_1","doi-asserted-by":"publisher","DOI":"10.1080\/26895269.2022.2100644"},{"key":"e_1_3_3_7_1","unstructured":"6.Grant JM Mottet LA Tanis J et al. Injustice at every turn: A report of the national transgender discrimination survey. National Center for Transgender Equality and National Gay and Lesbian Task Force: Washington DC https:\/\/transequality.org\/sites\/default\/files\/docs\/resources\/NTDS_Report.pdf (2011 accessed 12 September 2025)."},{"key":"e_1_3_3_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2018.06.039"},{"key":"e_1_3_3_9_1","unstructured":"8.Rastogi A Menard L Miller GH et al. Health and wellbeing: A report of the 2022 U.S. transgender survey. Advocates for Transgender Equality: Washington DC https:\/\/ustranssurvey.org\/download-reports\/ (2025 accessed 12 September 2025)."},{"key":"e_1_3_3_10_1","doi-asserted-by":"publisher","DOI":"10.1089\/trgh.2016.0024"},{"key":"e_1_3_3_11_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.300.14.1665"},{"key":"e_1_3_3_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.amepre.2013.09.008"},{"key":"e_1_3_3_13_1","doi-asserted-by":"publisher","DOI":"10.1177\/13591053221089726"},{"key":"e_1_3_3_14_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.n71"},{"key":"e_1_3_3_15_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_3_3_16_1","doi-asserted-by":"publisher","DOI":"10.1080\/15524256.2013.877864"},{"key":"e_1_3_3_17_1","doi-asserted-by":"publisher","DOI":"10.1089\/trgh.2020.0098"},{"key":"e_1_3_3_18_1","doi-asserted-by":"publisher","DOI":"10.1089\/lgbt.2013.0017"},{"key":"e_1_3_3_19_1","doi-asserted-by":"publisher","DOI":"10.1080\/15524256.2018.1487364"},{"key":"e_1_3_3_20_1","doi-asserted-by":"publisher","DOI":"10.1080\/10894160.2015.959876"},{"key":"e_1_3_3_21_1","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2012.18.1.29"},{"key":"e_1_3_3_22_1","doi-asserted-by":"publisher","DOI":"10.1177\/23333936231161128"},{"key":"e_1_3_3_23_1","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.14024"},{"key":"e_1_3_3_24_1","doi-asserted-by":"publisher","DOI":"10.1080\/15532739.2019.1690612"},{"key":"e_1_3_3_25_1","doi-asserted-by":"publisher","DOI":"10.1080\/15524256.2017.1387214"},{"key":"e_1_3_3_26_1","doi-asserted-by":"publisher","DOI":"10.1177\/0091415019843520"},{"key":"e_1_3_3_27_1","doi-asserted-by":"publisher","DOI":"10.1097\/NJH.0000000000000377"},{"key":"e_1_3_3_28_1","doi-asserted-by":"publisher","DOI":"10.1177\/0733464821992919"},{"key":"e_1_3_3_29_1","unstructured":"28.The Metlife Mature Market Institute and The American Society on Aging. 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