{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,14]],"date-time":"2026-09-14T12:06:45Z","timestamp":1789387605977,"version":"build-2803163510"},"reference-count":35,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100001691","name":"Japan Society for the Promotion of Science KAKENHI","doi-asserted-by":"crossref","award":["JP23K16431"],"award-info":[{"award-number":["JP23K16431"]}],"id":[{"id":"10.13039\/501100001691","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Global Qualitative Nursing Research"],"published-print":{"date-parts":[[2026,9]]},"abstract":"<jats:p>This study aimed to develop an interpretive understanding of the experiences of family members of patients with refractory cancer across the diagnosis and treatment stages and daily life, and explore implications for nursing support. Semi-structured interviews were conducted with family members of patients with refractory cancer, and the data were analyzed using interpretive description. Participants included three men and six women, consisting of eight spouses and one adult child. The patients\u2019 cancer types included pancreatic cancer (n = 6), scirrhous gastric cancer (n = 1), intrahepatic cholangiocarcinoma (n = 1), and ovarian tumor (n = 1). Data analysis resulted in the construction of six themes: confronting the reality of refractoriness; struggling with the desire to support the patient; reorganizing daily life and managing multiple burdens; emotional fluctuations and isolation; experiencing support and distress within relationships; and unmet support needs. Overall, the family experience was interpreted as a process of navigating the realities of refractoriness while seeking support and readjustment. The findings indicate that family members\u2019 experiences constitute a distinct and dynamic process characterized by anticipatory grief, emotional burden, and the reorganization of daily life, thereby underscoring the importance of sustained, family-centered nursing support throughout refractory cancer care.<\/jats:p>","DOI":"10.1177\/23333936261489258","type":"journal-article","created":{"date-parts":[[2026,9,12]],"date-time":"2026-09-12T09:32:18Z","timestamp":1789205538000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Experiences of Families Supporting Patients With Refractory Cancer: An Interpretive Descriptive Study"],"prefix":"10.1177","volume":"13","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4802-6635","authenticated-orcid":false,"given":"Junko","family":"Morishita","sequence":"first","affiliation":[{"name":"Japan Institute for Health Security"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5854-1430","authenticated-orcid":false,"given":"Rika","family":"Tamura","sequence":"additional","affiliation":[{"name":"Japan Institute for Health Security"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0005-8644-8977","authenticated-orcid":false,"given":"Reiko","family":"Shigeta","sequence":"additional","affiliation":[{"name":"Japan Institute for Health Security"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-6590-5129","authenticated-orcid":false,"given":"Yumiko","family":"Yatomi","sequence":"additional","affiliation":[{"name":"Japan Institute for Health Security"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,9,12]]},"reference":[{"key":"e_1_3_7_2_1","doi-asserted-by":"publisher","DOI":"10.1007\/s41030-023-00229-9"},{"key":"e_1_3_7_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-022-07468-7"},{"key":"e_1_3_7_4_1","doi-asserted-by":"publisher","DOI":"10.1080\/14796694.2024.2387526"},{"key":"e_1_3_7_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pan.2015.05.471"},{"issue":"5","key":"e_1_3_7_6_1","first-page":"494","article-title":"Cancer care: Supporting underserved and financially burdened family caregivers","volume":"8","author":"Ferrell B. 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Nanchi gan shinry\u014d handbook [Handbook for clinical practice of rare and refractory cancers]. Nankodo."},{"key":"e_1_3_7_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pan.2017.01.008"},{"key":"e_1_3_7_13_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00520-021-06793-7"},{"key":"e_1_3_7_14_1","doi-asserted-by":"publisher","DOI":"10.14701\/ahbps.22-084"},{"issue":"10","key":"e_1_3_7_15_1","first-page":"233339362312114","article-title":"The relationship between critical social theory and interpretive description in nursing research","volume":"10","author":"McCall J.","year":"2023","unstructured":"McCall J., Phillips J. C., Estefan A., Caine V. (2023). The relationship between critical social theory and interpretive description in nursing research. 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