{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,26]],"date-time":"2026-10-26T12:29:24Z","timestamp":1793017764856,"version":"4.5.0"},"reference-count":23,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2019,1,1]],"date-time":"2019-01-01T00:00:00Z","timestamp":1546300800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Global Pediatric Health"],"published-print":{"date-parts":[[2019,1]]},"abstract":"<jats:p>Aim. To determine the social, physical, and emotional impact of living with Perthes\u2019 disease on affected children and their family (caregivers). Patients and Methods. Through a mixed methods approach, we interviewed 18 parents and explored the perspectives of 12 children affected by Perthes\u2019 disease (mean = 7.1 years, SD = \u00b14.1 years) using a survey tool. Thematic analysis of parents\u2019 interviews provided an insight into disease-specific factors influencing patients and family\u2019s daily life activities. Using the childhood survey tool, good and bad day scores were analyzed using MANOVA (multivariate analysis of variance). Results. Thematic analysis of the parent interviews (main themes n = 4) identified a marked effect of the disease on many facets of the child\u2019s life, particularly pain and the impact on sleep, play, and school attendance. In addition, the interviews identified a negative effect on the family life of the parents and siblings. Children indicated that activities of daily living were affected even during \u201cgood days\u201d ( P &lt; .05), but pain was the key limiting factor. Conclusion. Perthes\u2019 disease negatively affects the social, physical, and emotional well-being of children and their family. These findings provide outcome domains that are important to measure in day-to-day care and add in-depth insight into the challenges caused by this disease for health care professionals involved in clinical management.<\/jats:p>","DOI":"10.1177\/2333794x19835235","type":"journal-article","created":{"date-parts":[[2019,4,4]],"date-time":"2019-04-04T05:19:07Z","timestamp":1554355147000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":15,"title":["Perspectives on the Social, Physical, and Emotional Impact of Living With Perthes\u2019 Disease in Children and Their Family: A Mixed Methods Study"],"prefix":"10.1177","volume":"6","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0709-3073","authenticated-orcid":false,"given":"Donato Giuseppe","family":"Leo","sequence":"first","affiliation":[{"name":"Liverpool John Moores University, Liverpool, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rebecca","family":"Murphy","sequence":"additional","affiliation":[{"name":"Liverpool John Moores University, Liverpool, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tina","family":"Gambling","sequence":"additional","affiliation":[{"name":"Cardiff University, Cardiff, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew","family":"Long","sequence":"additional","affiliation":[{"name":"University of Leeds, Leeds, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Helen","family":"Jones","sequence":"additional","affiliation":[{"name":"Liverpool John Moores University, Liverpool, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniel C.","family":"Perry","sequence":"additional","affiliation":[{"name":"University of Liverpool, Liverpool, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2019,4,4]]},"reference":[{"key":"bibr1-2333794X19835235","first-page":"181","volume":"29","author":"Perry DC","year":"2011","journal-title":"Surgery"},{"key":"bibr2-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1016\/j.ocl.2011.03.002"},{"key":"bibr3-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1002\/art.34316"},{"key":"bibr4-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1093\/aje\/kwr293"},{"key":"bibr5-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1080\/17453690610046594"},{"key":"bibr6-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1007\/s11832-007-0010-z"},{"key":"bibr7-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1016\/j.otsr.2017.04.012"},{"key":"bibr8-2333794X19835235","first-page":"90","volume":"1","author":"Moghadam MH","year":"2013","journal-title":"Arch Bone Jt Surg"},{"key":"bibr9-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1007\/s00402-011-1264-y"},{"key":"bibr10-2333794X19835235","first-page":"140","volume":"268","author":"Stulberg BN","year":"1991","journal-title":"Clin Orthop Relat Res"},{"key":"bibr11-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1097\/BPO.0000000000000157"},{"key":"bibr12-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.4081\/or.2014.5567"},{"key":"bibr13-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1590\/1413-785220182604174253"},{"key":"bibr14-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1177\/1059840515615401"},{"key":"bibr15-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"bibr16-2333794X19835235","volume-title":"Qualitative Research Methods in Sport, Exercise, and -Health: From Process to Product","author":"Sparkes AC","year":"2014"},{"key":"bibr17-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1002\/1096-8652(200102)66:2<155::AID-AJH1038>3.0.CO;2-D"},{"key":"bibr18-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1186\/s12888-015-0461-6"},{"key":"bibr19-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.5402\/2013\/737356"},{"key":"bibr20-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-005-4327-0"},{"key":"bibr21-2333794X19835235","doi-asserted-by":"publisher","DOI":"10.1177\/0009922815586051"},{"key":"bibr22-2333794X19835235","unstructured":"COMET Initiative. 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