{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,23]],"date-time":"2026-10-23T23:28:06Z","timestamp":1792798086208,"version":"4.5.0"},"reference-count":23,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2017,7,26]],"date-time":"2017-07-26T00:00:00Z","timestamp":1501027200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Patient Experience"],"published-print":{"date-parts":[[2018,3]]},"abstract":"<jats:sec>\n                    <jats:title>Purpose:<\/jats:title>\n                    <jats:p>To describe the unmet informational, psychological, emotional, social, practical, and physical needs and preferences for posttreatment survivorship care of individuals living with multiple myeloma to inform the development of relevant, person-centered, survivorship services.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>An exploratory, descriptive study using 2 focus groups with 14 participants, 6 to 49 months postdiagnosis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Thematic analysis revealed 7 key themes: information needs, experience with health-care professionals, coping with side effects, communicating with family and friends, dealing with emotions, support needs, and living with the chronicity of myeloma. Participants described key characteristics of survivorship care relevant to their needs and indicated they would like a more whole of person approach to follow-up when the main treatment phases had completed.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Participants in this study described unmet needs across a breadth of domains that varied over time. The development of flexible, person-centered approaches to comprehensive survivorship care is needed to address the considerable quality-of-life issues experienced by people living with multiple myeloma. Nurse-led care may offer 1 viable model to deliver enhanced patient experience\u2014providing the vital \u201clink\u201d that people described as missing from their survivorship care.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/2374373517715011","type":"journal-article","created":{"date-parts":[[2017,7,26]],"date-time":"2017-07-26T09:27:45Z","timestamp":1501061265000},"page":"6-15","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":28,"title":["Living With Multiple Myeloma"],"prefix":"10.1177","volume":"5","author":[{"given":"Leanne","family":"Monterosso","sequence":"first","affiliation":[{"name":"Centre for Nursing and Midwifery Research, School of Nursing and Midwifery, University of Notre Dame Australia, Fremantle, Western Australia, Australia"},{"name":"St John of God Murdoch Hospital, Western Australia, Australia"},{"name":"School of Nursing, Edith Cowan University, Joondalup, Western Australia, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karen","family":"Taylor","sequence":"additional","affiliation":[{"name":"Centre for Nursing and Midwifery Research, School of Nursing and Midwifery, University of Notre Dame Australia, Fremantle, Western Australia, Australia"},{"name":"Western Australia Cancer and Palliative Care Network, Perth, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Violet","family":"Platt","sequence":"additional","affiliation":[{"name":"Centre for Nursing and Midwifery Research, School of Nursing and Midwifery, University of Notre Dame Australia, Fremantle, Western Australia, Australia"},{"name":"Western Australia Cancer and Palliative Care Network, Perth, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth","family":"Lobb","sequence":"additional","affiliation":[{"name":"Calvary Health Care Kogarah, New South Wales and Cunningham Centre for Palliative Care, Darlinghurst, New South Wales, Australia"},{"name":"School of Medicine, The University of Notre Dame, Darlinghurst, New South Wales, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Toni","family":"Musiello","sequence":"additional","affiliation":[{"name":"School of Surgery, University of Western Australia, Crawley, Western Australia, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Caroline","family":"Bulsara","sequence":"additional","affiliation":[{"name":"Centre for Nursing and Midwifery Research, School of Nursing and Midwifery, University of Notre Dame Australia, Fremantle, Western Australia, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kendall","family":"Stratton","sequence":"additional","affiliation":[{"name":"Centre for Nursing and Midwifery Research, School of Nursing and Midwifery, University of Notre Dame Australia, Fremantle, Western Australia, Australia"},{"name":"WA Youth Cancer Service, Sir Charles Gairdner Hospital, Nedlands, Western Australia, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David","family":"Joske","sequence":"additional","affiliation":[{"name":"Sir Charles Gairdner Hospital, Nedlands, Western Australia, Australia"},{"name":"School of Medicine, University of Western Australia, Crawley, Western Australia, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Meinir","family":"Krishnasamy","sequence":"additional","affiliation":[{"name":"Department of Cancer Experiences Research, Peter MacCallum Cancer Centre, University of Melbourne, Victoria, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2017,7,26]]},"reference":[{"key":"bibr1-2374373517715011","unstructured":"Australian Institute of Health and Welfare.\n                      Cancer in Australia: An Overview, 2014\n                      . 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