{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,27]],"date-time":"2026-09-27T22:33:25Z","timestamp":1790548405926,"version":"4.1.0"},"reference-count":37,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2017,10,31]],"date-time":"2017-10-31T00:00:00Z","timestamp":1509408000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Patient Experience"],"published-print":{"date-parts":[[2018,6]]},"abstract":"<jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>We aimed to describe the experiences of Canadians who seek diagnosis and treatment for Lyme disease outside of the conventional Canadian health-care system.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>Forty-five individuals who had sought treatment for Lyme disease outside of the conventional Canadian health-care system were recruited from Lyme support and advocacy groups across Canada to answer open-ended questions about their experiences.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Respondents sought treatment outside of the conventional medical system due to extensive diagnostic procedures and treatments that did not resolve symptoms. Escalating health concerns, lack of effective treatment, and stigma produced a sense of abandonment and desperation. Respondents accessed alternative forms of care based on the recommendations of peers, yet considerable financial and emotional stress was experienced.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Many individuals with Lyme or Lyme-like diseases are deeply dissatisfied with the care received within the conventional Canadian health-care system and therefore felt both pushed and pulled to seek treatments either from international physicians using different treatment protocols or from alternative medicine providers in Canada.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/2374373517736385","type":"journal-article","created":{"date-parts":[[2017,10,31]],"date-time":"2017-10-31T06:22:50Z","timestamp":1509430970000},"page":"120-126","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":27,"title":["Motivations and Experiences of Canadians Seeking Treatment for Lyme Disease Outside of the Conventional Canadian Health-Care System"],"prefix":"10.1177","volume":"5","author":[{"given":"Corinne R","family":"Boudreau","sequence":"first","affiliation":[{"name":"Department of Biology, Mount Allison University, Sackville, New Brunswick, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vett K","family":"Lloyd","sequence":"additional","affiliation":[{"name":"Department of Biology, Mount Allison University, Sackville, New Brunswick, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Odette N","family":"Gould","sequence":"additional","affiliation":[{"name":"Department of Psychology, Mount Allison University, Sackville, New Brunswick, Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2017,10,31]]},"reference":[{"key":"bibr1-2374373517736385","first-page":"138016","author":"Borgermans L","year":"2014","journal-title":"Int J Family Med"},{"key":"bibr2-2374373517736385","doi-asserted-by":"publisher","DOI":"10.2147\/IDR.S15653"},{"key":"bibr3-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1093\/cid\/ciu397"},{"key":"bibr4-2374373517736385","doi-asserted-by":"publisher","DOI":"10.3201\/eid2109.150417"},{"key":"bibr5-2374373517736385","doi-asserted-by":"publisher","DOI":"10.4039\/n08-CPA04"},{"key":"bibr6-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijpara.2005.08.016"},{"key":"bibr7-2374373517736385","unstructured":"Public Health Agency of Canada. Surveillance of Lyme disease. 2017. Retrieved October 6, 2017 from https:\/\/www.canada.ca\/en\/public-health\/services\/diseases\/lyme-disease\/surveillance-lyme-disease.html."},{"key":"bibr8-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1503\/cmaj.115-0029"},{"key":"bibr9-2374373517736385","unstructured":"Centers for Disease Control and Prevention. Lyme disease. 2015. Retrieved October 6, 2017 from https:\/\/www.cdc.gov\/lyme\/index.html."},{"key":"bibr10-2374373517736385","doi-asserted-by":"publisher","DOI":"10.2174\/1874205X01206010140"},{"key":"bibr11-2374373517736385","unstructured":"Government of Canada. For health professionals: Lyme disease. 2017. Retrieved June 22, 2017 from www.canada.ca\/en\/public-health\/services\/diseases\/lyme-disease\/health-professionals-lyme-disease.html."},{"key":"bibr12-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1186\/1756-3305-7-183"},{"key":"bibr13-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1016\/j.diagmicrobio.2016.06.015"},{"key":"bibr14-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1016\/S0025-7125(03)00090-7"},{"key":"bibr15-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1111\/j.0737-1209.2006.230104.x"},{"key":"bibr16-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2296-15-79"},{"key":"bibr17-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1177\/1049732315619380"},{"key":"bibr18-2374373517736385","unstructured":"The Lyme maze: navigating Lyme disease in Canada. 2016. Retrieved October 6, 2017 from http:\/\/thelymemaze.blogspot.ca\/p\/find-lyme-literate-doctor.html."},{"key":"bibr19-2374373517736385","unstructured":"HealingWell.com Forum, Diseases & Conditions, Lyme Disease_ Help! Do not know what to do. 2015. Retrieved October 6, 2017 from http:\/\/www.healingwell.com\/community\/default.aspx?f=30&m=3382389."},{"key":"bibr20-2374373517736385","unstructured":"Park J. Use of alternative health care. Health Rep. 2005; 16. Statistics Canada, Catalogue 82\u2013003. Retrieved October 6, 2017 from http:\/\/www.statcan.gc.ca\/pub\/82-003-x\/2004002\/article\/7789-eng.pdf."},{"key":"bibr21-2374373517736385","unstructured":"Millar WJ. Patterns of use\u2014alternative health care practitioners. Health Rep. 2001; 13. Statistics Canada, Catalogue 82\u2013003. Retrieved from June 22, 2017 http:\/\/www.statcan.gc.ca\/pub\/82-003-x\/2001001\/article\/6021-eng.pdf."},{"key":"bibr22-2374373517736385","unstructured":"Ren F, Labrie Y. Leaving Canada for medical care 2017. Fraser Institute Research Bulletin; 2017. Calgary, Alberta: Fraser Institute. Retrieved October 6, 2017 from https:\/\/www.fraserinstitute.org\/sites\/default\/files\/leaving-canada-for-medical-care-2017.pdf."},{"key":"bibr23-2374373517736385","first-page":"E139","volume":"5","author":"Snyder J","year":"2011","journal-title":"Open Med"},{"key":"bibr24-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1289\/ehp.0901766"},{"key":"bibr25-2374373517736385","doi-asserted-by":"publisher","DOI":"10.2174\/1874205X01206010094"},{"key":"bibr26-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1177\/146879410100100307"},{"key":"bibr27-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2004.02.010"},{"key":"bibr28-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2005.06.018"},{"key":"bibr29-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1177\/0022146510383495"},{"key":"bibr30-2374373517736385","first-page":"209","volume":"7","author":"Edwards TM","year":"2010","journal-title":"Ment Health Fam Med"},{"key":"bibr31-2374373517736385","first-page":"67","volume":"10","author":"Nunes J","year":"2013","journal-title":"Ment Health Fam Med"},{"key":"bibr32-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-006-0094-z"},{"key":"bibr33-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1016\/j.healthpol.2011.05.007"},{"key":"bibr34-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-012-0126-6"},{"key":"bibr35-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1371\/journal.ppat.1004976"},{"key":"bibr36-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1128\/JCM.01584-10"},{"key":"bibr37-2374373517736385","doi-asserted-by":"publisher","DOI":"10.1586\/14787210.2014.940900"}],"container-title":["Journal of Patient Experience"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/2374373517736385","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/2374373517736385","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/2374373517736385","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T00:38:29Z","timestamp":1777509509000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/2374373517736385"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,10,31]]},"references-count":37,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2018,6]]}},"alternative-id":["10.1177\/2374373517736385"],"URL":"https:\/\/doi.org\/10.1177\/2374373517736385","relation":{},"ISSN":["2374-3735","2374-3743"],"issn-type":[{"value":"2374-3735","type":"print"},{"value":"2374-3743","type":"electronic"}],"subject":[],"published":{"date-parts":[[2017,10,31]]}}}