{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,10]],"date-time":"2026-09-10T09:25:13Z","timestamp":1789032313231,"version":"build-2803163510"},"reference-count":24,"publisher":"SAGE Publications","issue":"2","license":[{"start":{"date-parts":[[2017,11,8]],"date-time":"2017-11-08T00:00:00Z","timestamp":1510099200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Patient Experience"],"published-print":{"date-parts":[[2018,6]]},"abstract":"<jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>The aim of this study was to assess patient experiences when reporting symptoms of twin\u2013twin transfusion syndrome (TTTS) to their health-care providers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methodology:<\/jats:title>\n                    <jats:p>The study utilized an online, retrospective survey of women, over the age of 18, who were living in the United States at the time of their pregnancy and had completed a TTTS pregnancy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Three hundred sixty-seven cases were included for analysis. Nearly half of the respondents (45.2%) reported experiencing maternal symptoms prior to TTTS diagnosis. The average number of symptoms experienced was 2.85. The average gestational week of symptom onset was 18.2. A total of 76.2% of respondents experiencing symptoms shared these concerns with their health-care provider; however, slightly more than half (51.2%) believed that the provider dismissed their complaints.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Results suggest a disconnect between patients\u2019 reporting TTTS symptoms and health-care providers responding attentively, as perceived by the patient. It would be advantageous for health-care providers to inform women pregnant with a monochorionic\u2013diamniotic pregnancy to immediately report the presence of any symptom described in the present research, which may be associated with any number of twin pregnancy\u2013related complications.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/2374373517736760","type":"journal-article","created":{"date-parts":[[2017,11,9]],"date-time":"2017-11-09T01:36:51Z","timestamp":1510191411000},"page":"134-139","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":6,"title":["Twin\u2013Twin Transfusion Syndrome and Maternal Symptomatology\u2014An Exploratory Analysis of Patient Experiences When Reporting Complaints"],"prefix":"10.1177","volume":"5","author":[{"given":"Lauren","family":"Nicholas","sequence":"first","affiliation":[{"name":"Department of Liberal Arts, D\u2019Youville College, Buffalo, NY, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rebecca","family":"Fischbein","sequence":"additional","affiliation":[{"name":"Department of Family and Community Medicine, Northeast Ohio Medical University, Rootstown, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lynn","family":"Falletta","sequence":"additional","affiliation":[{"name":"College of Public Health, Kent State University, Kent, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kristin","family":"Baughman","sequence":"additional","affiliation":[{"name":"Department of Family and Community Medicine, Northeast Ohio Medical University, Rootstown, OH, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2017,11,8]]},"reference":[{"key":"bibr1-2374373517736760","doi-asserted-by":"publisher","DOI":"10.2350\/13-03-1315-MISC.1"},{"key":"bibr2-2374373517736760","doi-asserted-by":"publisher","DOI":"10.1055\/s-0034-1376184"},{"key":"bibr3-2374373517736760","first-page":"107","volume":"39","author":"Baschat A","year":"2011","journal-title":"J Perinat Med"},{"key":"bibr4-2374373517736760","doi-asserted-by":"publisher","DOI":"10.1016\/j.ajog.2012.10.880"},{"key":"bibr5-2374373517736760","doi-asserted-by":"publisher","DOI":"10.1002\/uog.7974"},{"key":"bibr6-2374373517736760","doi-asserted-by":"publisher","DOI":"10.1017\/thg.2016.34"},{"key":"bibr7-2374373517736760","doi-asserted-by":"publisher","DOI":"10.1016\/j.ajog.2011.02.001"},{"key":"bibr8-2374373517736760","doi-asserted-by":"publisher","DOI":"10.1515\/jpm-2013-0101"},{"key":"bibr9-2374373517736760","doi-asserted-by":"publisher","DOI":"10.1111\/j.1479-828X.1990.tb03211.x"},{"key":"bibr10-2374373517736760","unstructured":"Twin to Twin Transfusion Syndrome Foundation. What are the warning signs of TTTS? Warning signs in the mother include. 1997. 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