{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,8]],"date-time":"2026-06-08T12:38:42Z","timestamp":1780922322605,"version":"3.54.1"},"reference-count":20,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Patient Experience"],"published-print":{"date-parts":[[2024,1]]},"abstract":"<jats:p>Atopic dermatitis (AD) is a chronic and fluctuating disease. Optimal management of AD and related comorbidities requires seamless coordination across multiple layers of the healthcare system. The objective of this survey was to explore patients\u2019 experiences with current management of AD. Out of 251 responders to this anonymous survey, 76% reported to have moderate or severe AD. Sixty-nine percent with moderate and 45% with severe AD were followed up at primary care level only. Use of advanced systemic treatment options was rare, and the majority experienced itch (97%), dry skin, rash, negative impact on self-esteem and comorbidities despite ongoing treatment. Only 36% received a treatment plan, more often in secondary (78.3%) than primary care (25.0%). Forty-three percent did not know who was responsible for their follow-up and 54% felt no one was responsible. Treatment options were commonly not known or understood. The survey results demonstrate undertreatment, lack of a holistic approach for management of AD. A national pathway including clear referral criteria and timelines can streamline management of AD across multiple levels of the healthcare system.<\/jats:p>","DOI":"10.1177\/23743735241272206","type":"journal-article","created":{"date-parts":[[2024,8,7]],"date-time":"2024-08-07T07:17:05Z","timestamp":1723015025000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Quality of Care and Management of Atopic Dermatitis Across Different Levels of Healthcare\u2014A Survey-Based Patient Experience"],"prefix":"10.1177","volume":"11","author":[{"given":"Thrasyvoulos","family":"Tzellos","sequence":"first","affiliation":[{"name":"Department of Dermatology, NLSH University Hospital, Bod\u00f8, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-4354-7838","authenticated-orcid":false,"given":"Synne Ildahl","family":"Svendsen","sequence":"additional","affiliation":[{"name":"Inflammation and Immunology, Medical Affairs, Pfizer AS, Lysaker, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mari","family":"\u00d8vergaard","sequence":"additional","affiliation":[{"name":"The Norwegian Psoriasis and Eczema Association, Oslo, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eldrid","family":"Oftestad","sequence":"additional","affiliation":[{"name":"The Norwegian Psoriasis and Eczema Association, Oslo, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mari","family":"Lahelma","sequence":"additional","affiliation":[{"name":"NHG Finland, Nordic Healthcare Group, Helsinki, Finland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna-Kaisa","family":"Asikainen","sequence":"additional","affiliation":[{"name":"NHG Finland, Nordic Healthcare Group, Helsinki, Finland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1365-1331","authenticated-orcid":false,"given":"Randeep","family":"Mandla","sequence":"additional","affiliation":[{"name":"Inflammation and Immunology, Medical Affairs, Pfizer AS, Lysaker, Norway"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2024,8,7]]},"reference":[{"key":"bibr1-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(20)31286-1"},{"key":"bibr2-23743735241272206","doi-asserted-by":"publisher","DOI":"10.2340\/actadv.v104.10321"},{"key":"bibr3-23743735241272206","doi-asserted-by":"publisher","DOI":"10.2500\/aap.2019.40.4202"},{"key":"bibr4-23743735241272206","unstructured":"Hilde O. Veiledende anbefalinger for bruk av biologiske legemidler og JAK-hemmere ved atopisk eksem. Norwegian recommendations for atopic dermatitis. Norwegian Society for Dermatology and Venereology. EMRTRNCLHTLB, Version 06.02.2023. https:\/\/www.legeforeningen.no\/contentassets\/9b5fda44a03743be86b50f4b4d7c394e\/anbefalinger-v-3.0-biologisk-behandling-og-jak-hemmere-ad-150921.pdf"},{"key":"bibr5-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1111\/jdv.18429"},{"key":"bibr6-23743735241272206","doi-asserted-by":"publisher","DOI":"10.3390\/ijms221910381"},{"key":"bibr7-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1016\/j.jdin.2020.10.002"},{"key":"bibr8-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1111\/bjd.19580"},{"key":"bibr9-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1016\/j.anai.2019.04.020"},{"key":"bibr10-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1111\/ijd.14763"},{"key":"bibr11-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1016\/j.jid.2016.07.012"},{"key":"bibr12-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1111\/jdv.17943"},{"issue":"4","key":"bibr13-23743735241272206","first-page":"303","volume":"98","author":"Sinclair W","year":"2008","journal-title":"SAMJ: South African Medical Journal"},{"key":"bibr14-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaad.2015.10.043"},{"key":"bibr15-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaad.2023.04.057"},{"key":"bibr16-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1001\/jamapediatrics.2019.0025"},{"key":"bibr17-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1016\/j.anai.2018.07.006"},{"key":"bibr18-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaci.2006.02.031"},{"key":"bibr19-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1016\/j.jaip.2019.08.030"},{"key":"bibr20-23743735241272206","doi-asserted-by":"publisher","DOI":"10.1111\/ajd.13124"}],"container-title":["Journal of Patient Experience"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/23743735241272206","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/23743735241272206","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/23743735241272206","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T00:37:10Z","timestamp":1777509430000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/23743735241272206"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,1]]},"references-count":20,"alternative-id":["10.1177\/23743735241272206"],"URL":"https:\/\/doi.org\/10.1177\/23743735241272206","relation":{},"ISSN":["2374-3735","2374-3743"],"issn-type":[{"value":"2374-3735","type":"print"},{"value":"2374-3743","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,1]]},"article-number":"23743735241272206"}}