{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T01:56:47Z","timestamp":1777859807791,"version":"3.51.4"},"reference-count":28,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,2,1]],"date-time":"2026-02-01T00:00:00Z","timestamp":1769904000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,2,1]],"date-time":"2026-02-01T00:00:00Z","timestamp":1769904000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Patient Experience"],"published-print":{"date-parts":[[2026,2]]},"abstract":"<jats:p>\n                    Systemic autoimmune rheumatic diseases (SARDs), like rheumatoid arthritis and systemic lupus erythematosus, impose significant burdens on patients. This cross-sectional survey explores knowledge sources about SARDs, emotional and practical support from family and peers, and willingness to disclose their condition publicly, particularly through social media, among a Middle Eastern population. A descriptive, cross-sectional study was conducted at the University Hospital (Abha), the University Hospital (Makkah), and Alhabib Private Hospital (Jeddah), involving 301 adults aged 18 to 50 with SARDs. A structured questionnaire assessed sociodemographic data, clinical information, support systems, and disclosure practices. Data were analyzed using SPSS v25.0 (\n                    <jats:italic toggle=\"yes\">P<\/jats:italic>\n                    \u2009&lt;\u2009.05). In total, 84.7% of participants received disease information from their treating physicians, while 50.2% turned to social media. Over half (55.1%) felt supported by families, and 49.5% noted workplace cooperation. However, 32.2% cited fear of stigma, and 14.6% felt like a burden as barriers to disclosure. Enhancing patient education, expanding support groups, and raising awareness about autoimmune diseases are vital for improving social support and encouraging disclosure without stigma.\n                  <\/jats:p>","DOI":"10.1177\/23743735261415662","type":"journal-article","created":{"date-parts":[[2026,2,4]],"date-time":"2026-02-04T17:30:39Z","timestamp":1770226239000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Sources of Knowledge, Family and Peer Support, Disclosure, and Posting on Social Media Platforms Among Patients with Systemic Autoimmune Rheumatic Diseases (SARDs): A Survey-Based Cross-Sectional Study"],"prefix":"10.1177","volume":"13","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0833-9274","authenticated-orcid":false,"given":"Hana","family":"Alahmari","sequence":"first","affiliation":[{"name":"Division of Rheumatology, department of Medicine, King Khalid University, Abha, Saudi Arabia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0001-0017-0726","authenticated-orcid":false,"given":"Kholoud","family":"Almaabadi","sequence":"additional","affiliation":[{"name":"National Guard Hospital"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9608-6248","authenticated-orcid":false,"given":"Waleed","family":"Hafiz","sequence":"additional","affiliation":[{"name":"Department of Medicine, College of Medicine, Umm Al-Qura University, Makkah, Saudi Arabia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0005-9613-519X","authenticated-orcid":false,"given":"Abdulaziz","family":"Alqahtani","sequence":"additional","affiliation":[{"name":"King Khalid University"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0004-1633-5670","authenticated-orcid":false,"given":"Mohammed","family":"Alqahtani","sequence":"additional","affiliation":[{"name":"King Khalid University"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0009-0981-7758","authenticated-orcid":false,"given":"Meshal","family":"Alayidh","sequence":"additional","affiliation":[{"name":"King Khalid University"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0007-9770-3712","authenticated-orcid":false,"given":"Anas","family":"Abudasir","sequence":"additional","affiliation":[{"name":"King Khalid University"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0006-0156-2904","authenticated-orcid":false,"given":"Ali","family":"Alhayani","sequence":"additional","affiliation":[{"name":"King Khalid University"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0007-0237-2245","authenticated-orcid":false,"given":"Faisal","family":"Alqahtani","sequence":"additional","affiliation":[{"name":"King Khalid University"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2026,2,4]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1016\/B978-0-7020-6223-0.00009-1"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1111\/1756-185X.13553"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1002\/art.41141"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1108\/18363261011106858"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1111\/hir.12261"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.7759\/cureus.77759"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.4137\/CMAMD.S13849"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12982"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1097\/RHU.0b013e318226a220"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.reuma.2023.05.002"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1007\/s00296-021-05047-3"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1093\/her\/16.6.671"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1055\/s-0041-1742137"},{"key":"e_1_3_3_15_2","doi-asserted-by":"publisher","DOI":"10.2174\/1573397112666160719163145"},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2018.01760"},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.1002\/acr.24620"},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.1037\/0278-6133.24.2.143"},{"key":"e_1_3_3_19_2","first-page":"53B","article-title":"Effects of positive and negative social exchanges with various sources on depressive symptoms in younger and older adults","author":"Okun MA","year":"1998","unstructured":"Okun MA, Keith VM. Effects of positive and negative social exchanges with various sources on depressive symptoms in younger and older adults. J Gerontol Ser B. 1998;53B(1):P4-P20.","journal-title":"J Gerontol Ser B"},{"key":"e_1_3_3_20_2","doi-asserted-by":"publisher","DOI":"10.4081\/reumatismo.2024.1689"},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-015-1200-7"},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.3390\/bs12100355"},{"key":"e_1_3_3_23_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11899-018-0486-2"},{"key":"e_1_3_3_24_2","doi-asserted-by":"publisher","DOI":"10.1007\/s00296-024-05634-0"},{"key":"e_1_3_3_25_2","doi-asserted-by":"publisher","DOI":"10.2478\/rir-2022-0026"},{"key":"e_1_3_3_26_2","first-page":"4575","volume-title":"From practical tips to heartfelt encouragement: how social media can improve quality of life with rheumatic disease","author":"Crow C","year":"2022","unstructured":"Crow C, Rothblatt Z. From practical tips to heartfelt encouragement: how social media can improve quality of life with rheumatic disease. Wiley; 2022: 4575-7."},{"key":"e_1_3_3_27_2","doi-asserted-by":"publisher","DOI":"10.1002\/acr.24868"},{"key":"e_1_3_3_28_2","doi-asserted-by":"publisher","DOI":"10.2147\/PPA.S391396"},{"key":"e_1_3_3_29_2","doi-asserted-by":"publisher","DOI":"10.1007\/s10067-020-04967-y"}],"container-title":["Journal of Patient Experience"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/23743735261415662","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/23743735261415662","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/23743735261415662","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T00:38:04Z","timestamp":1777509484000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/23743735261415662"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,2]]},"references-count":28,"alternative-id":["10.1177\/23743735261415662"],"URL":"https:\/\/doi.org\/10.1177\/23743735261415662","relation":{},"ISSN":["2374-3735","2374-3743"],"issn-type":[{"value":"2374-3735","type":"print"},{"value":"2374-3743","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,2]]},"article-number":"23743735261415662"}}