{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,21]],"date-time":"2026-10-21T20:31:31Z","timestamp":1792614691811,"version":"4.5.0"},"reference-count":97,"publisher":"Oxford University Press (OUP)","issue":"1","license":[{"start":{"date-parts":[[2025,12,13]],"date-time":"2025-12-13T00:00:00Z","timestamp":1765584000000},"content-version":"vor","delay-in-days":287,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,3,1]],"date-time":"2025-03-01T00:00:00Z","timestamp":1740787200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,3,1]],"date-time":"2025-03-01T00:00:00Z","timestamp":1740787200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"German Federal Ministry of Education and Research","award":["01GY2107"],"award-info":[{"award-number":["01GY2107"]}]},{"name":"German Federal Ministry of Education and Research","award":["01GY2107"],"award-info":[{"award-number":["01GY2107"]}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":[],"published-print":{"date-parts":[[2025,3,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Purpose:<\/jats:title>\n                    <jats:p>We aimed to synthesize the information needs of people with stroke (PwS) in recurrent stroke prevention.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>In this scoping review we searched Medline (via PubMed), CINAHL, and PsycINFO from inception to June 5, 2023, to identify all studies describing the information needs of people 18\u2009years and older who have suffered a stroke or transient ischemic attack within the past 5\u2009years. We included qualitative and quantitative studies from developed countries published in German or English. Data analysis was performed following Arksey and O\u2019Malley\u2019s methodological framework for scoping reviews.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings:<\/jats:title>\n                    <jats:p>We screened 5822 records for eligibility and included 36 articles published between 1993 and 2023. None of the included studies used a comprehensive framework or defined information needs. Based on statements from PwS and their caregivers, PwS needed information on treatment, etiology, effects of stroke, prognosis, rehabilitation, discharge, life changes, care role, support options, information sources, and hospital procedures. The most frequently expressed needs were information on the treatment (77.8%) and stroke etiology (63.9%). The primary information source was healthcare professionals (85.7%), followed by written information (71.4%), family and friends (42.6%), and the internet (35.7%), with information provided directly by healthcare professionals being preferred. The timing of information transfer is often described as too early.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>PwS are primarily interested in clinical information about stroke, for example, treatment and etiology, and less often in information about daily life, for example, rehabilitation, the role of care, or lifestyle changes. PwS prefer to receive information directly from healthcare professionals. Developing a shared understanding of PwS\u2019s information needs is crucial to implement suitable strategies and programs for dealing with these needs in clinical practice.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/23969873241272744","type":"journal-article","created":{"date-parts":[[2024,8,27]],"date-time":"2024-08-27T02:37:35Z","timestamp":1724726255000},"page":"5-21","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":19,"title":["Information needs of people who have suffered a stroke or TIA and their preferred approaches of receiving health information: A scoping review"],"prefix":"10.1093","volume":"10","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-1112-8782","authenticated-orcid":false,"given":"Jasmin","family":"Helbach","sequence":"first","affiliation":[{"name":"Department of Health Services Research, School of Medicine and Health Sciences, Carl von Ossietzky Universit\u00e4t Oldenburg, Oldenburg, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Falk","family":"Hoffmann","sequence":"additional","affiliation":[{"name":"Department of Health Services Research, School of Medicine and Health Sciences, Carl von Ossietzky Universit\u00e4t Oldenburg, Oldenburg, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nina","family":"Hecht","sequence":"additional","affiliation":[{"name":"Nursing Research Unit, Institute of Social Medicine and Epidemiology, University of L\u00fcbeck, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christoph","family":"Heesen","sequence":"additional","affiliation":[{"name":"Institute of Neuroimmunology and Multiple Sclerosis (INIMS), Center for Molecular Neurobiology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"G\u00f6tz","family":"Thomalla","sequence":"additional","affiliation":[{"name":"Department of Neurology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Denise","family":"Wilfling","sequence":"additional","affiliation":[{"name":"Nursing Research Unit, Institute of Social Medicine and Epidemiology, University of L\u00fcbeck, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne Christin","family":"Rahn","sequence":"additional","affiliation":[{"name":"Nursing Research Unit, Institute of Social Medicine and Epidemiology, University of L\u00fcbeck, Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"286","published-online":{"date-parts":[[2025,3,1]]},"reference":[{"key":"2026012113071804200_bibr1-23969873241272744","doi-asserted-by":"crossref","first-page":"795","DOI":"10.1016\/S1474-4422(21)00252-0","article-title":"Global, regional, and national burden of stroke and its risk factors, 1990-2019: a systematic analysis for the global burden of disease study 2019","volume":"20","author":"GBD 2019 Stroke Collaborators","year":"2021","journal-title":"Lancet Neurol"},{"key":"2026012113071804200_bibr2-23969873241272744","first-page":"711","article-title":"The frequency and timing of recurrent stroke: an analysis of routine health insurance data","volume":"116","author":"Stahmeyer","year":"2019","journal-title":"Dtsch Arztebl Int"},{"key":"2026012113071804200_bibr3-23969873241272744","doi-asserted-by":"crossref","first-page":"391","DOI":"10.1016\/j.ncl.2021.02.001","article-title":"Emergency care of patients with acute ischemic stroke","volume":"39","author":"Zubair","year":"2021","journal-title":"Neurol Clin"},{"key":"2026012113071804200_bibr4-23969873241272744","article-title":"Management of acute ischemic 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