{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,29]],"date-time":"2026-10-29T00:29:34Z","timestamp":1793233774822,"version":"4.5.0"},"reference-count":45,"publisher":"Oxford University Press (OUP)","issue":"3","license":[{"start":{"date-parts":[[2025,12,13]],"date-time":"2025-12-13T00:00:00Z","timestamp":1765584000000},"content-version":"vor","delay-in-days":103,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,9,1]],"date-time":"2025-09-01T00:00:00Z","timestamp":1756684800000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,9,1]],"date-time":"2025-09-01T00:00:00Z","timestamp":1756684800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":[],"published-print":{"date-parts":[[2025,9,1]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>National stroke clinical quality registries\/audits support improvements in stroke care. In a 2016 systematic review, 28 registries were identified. Since 2016 there have been important advances in stroke care, including the development of thrombectomy services. Therefore, we sought to understand whether registries have evolved with these advances in care. The aim of this systematic review was to identify current, hospital-based national stroke registries\/audits and describe variables (processes, outcome), methods, funding and governance).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We searched four databases (21st May 2015 to 1st February 2024), grey literature and stroke organisations\u2019 websites. Initially two reviewers screened each citation; when agreement was satisfactory, one of four reviewers screened each citation. The same process was applied to full texts. If there were no new publications from registries identified in the original 2016 review, we contacted the registry leads. We extracted data using predefined categories on country (including income level), clinical\/process variables, methods, funding and governance.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>We found 37 registries from 31 countries (28 high income, four upper-middle income, five lower-middle income) of which 16 had been identified in 2016 and 21 were new. Twenty-two of the same variables were collected by &amp;gt;50% of registries\/audits (mostly acute care, including thrombectomy, and secondary prevention), compared with only four variables in 2016. Descriptions of funding, management, methods of consent and data privacy, follow-up, feedback to hospitals, linkage to other datasets and alignment of variables with guidelines were variably reported. Reasons for apparent termination of some registries was unclear.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>The total number of stroke registries has increased since 2016, and the number of variables collected has increased, reflecting advances in stroke care. However, some registries appeared to have ceased; the reasons are unclear.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/23969873241311821","type":"journal-article","created":{"date-parts":[[2025,1,21]],"date-time":"2025-01-21T05:48:59Z","timestamp":1737438539000},"page":"646-654","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":10,"title":["A systematic review of current national hospital-based stroke registries monitoring access to evidence-based care and patient outcomes"],"prefix":"10.1093","volume":"10","author":[{"given":"Chloe","family":"Leigh","sequence":"first","affiliation":[{"name":"University of Edinburgh, Edinburgh, UK 1"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jodie","family":"Gill","sequence":"additional","affiliation":[{"name":"University of Edinburgh, Edinburgh, UK 1"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0000-0390-9314","authenticated-orcid":false,"given":"Zainab","family":"Razak","sequence":"additional","affiliation":[{"name":"University of Edinburgh, Edinburgh, UK 1"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shirsho","family":"Shreyan","sequence":"additional","affiliation":[{"name":"Rajshahi Medical College, Laxmipur Rajpara, Bangladesh 2"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8162-682X","authenticated-orcid":false,"given":"Dominique A","family":"Cadilhac","sequence":"additional","affiliation":[{"name":"Department of Medicine, School of Clinical Sciences at Monash Health, Monash University, Victorian Heart Hospital, Clayton, VIC, Australia 3"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4079-0428","authenticated-orcid":false,"given":"Joosup","family":"Kim","sequence":"additional","affiliation":[{"name":"Department of Medicine, School of Clinical Sciences at Monash Health, Monash University, Victorian Heart Hospital, Clayton, VIC, Australia 3"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2066-8345","authenticated-orcid":false,"given":"Natasha A","family":"Lannin","sequence":"additional","affiliation":[{"name":"Brain Recovery and Rehabilitation Group, Department of Neuroscience, School of Translational Medicine, Monash University, Melbourne, VIC, Australia 4"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Martin","family":"Dennis","sequence":"additional","affiliation":[{"name":"Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK 5"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Moira","family":"Kapral","sequence":"additional","affiliation":[{"name":"Department of Medicine, University of Toronto, Toronto, ON, Canada 6"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0028-1968","authenticated-orcid":false,"given":"Jeyaraj","family":"Pandian","sequence":"additional","affiliation":[{"name":"Christian Medical College, Ludhiana, Punjab, India 7"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yudi","family":"Hardianto","sequence":"additional","affiliation":[{"name":"Department of Medicine, School of Clinical Sciences at Monash Health, Monash University, Victorian Heart Hospital, Clayton, VIC, Australia 3"},{"name":"Faculty of Nursing, Hasanuddin University, Makassar, Indonesia 8"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Beilei","family":"Lin","sequence":"additional","affiliation":[{"name":"School of Nursing and Health, Zhengzhou University, Zhengzhou, Henan, China 9"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Atte","family":"Meretoja","sequence":"additional","affiliation":[{"name":"Helsinki University Hospital, Helsinki, Finland 10"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Noor Azah Abd","family":"Aziz","sequence":"additional","affiliation":[{"name":"Department of Family Medicine, Medical Faculty, National University of Malaysia, UKM Medical Centre Cheras, Kuala Lumpur, Malaysia 11"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lee","family":"Schwamm","sequence":"additional","affiliation":[{"name":"Yale School of Medicine, New Haven, CT, USA 12"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bo","family":"Norrving","sequence":"additional","affiliation":[{"name":"Department of Clinical Sciences, Sk\u00e5ne University Hospital, Lund University, Lund, Sweden 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