{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,5]],"date-time":"2026-05-05T12:25:44Z","timestamp":1777983944168,"version":"3.51.4"},"reference-count":16,"publisher":"BMJ","issue":"3","license":[{"start":{"date-parts":[[2024,8,5]],"date-time":"2024-08-05T00:00:00Z","timestamp":1722816000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"Scleroderma Manitoba"},{"DOI":"10.13039\/501100023332","name":"Scleroderma Victoria","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100023332","id-type":"DOI","asserted-by":"crossref"}]},{"name":"Scl\u00e9rodermie Qu\u00e9bec"},{"DOI":"10.13039\/501100023446","name":"Scleroderma Association of British Columbia","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100023446","id-type":"DOI","asserted-by":"crossref"}]},{"DOI":"10.13039\/501100000024","name":"canadian institutes of health research","doi-asserted-by":"publisher","award":["GA4177764"],"award-info":[{"award-number":["GA4177764"]}],"id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000024","name":"Canadian Institutes of Health Research","doi-asserted-by":"publisher","award":["VR4172745"],"award-info":[{"award-number":["VR4172745"]}],"id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Scleroderma New South Wales"},{"DOI":"10.13039\/501100019175","name":"Scleroderma Society of Ontario","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100019175","id-type":"DOI","asserted-by":"crossref"}]},{"name":"Scleroderma Queensland"},{"name":"Scleroderma Canada"},{"name":"Scleroderma SASK"},{"DOI":"10.13039\/501100023335","name":"Scleroderma Atlantic","doi-asserted-by":"crossref","id":[{"id":"10.13039\/501100023335","id-type":"DOI","asserted-by":"crossref"}]},{"name":"McGill Interdisciplinary Initiative in Infection and Immunity Emergency COVID19 Research Fund"},{"name":"Scleroderma Australia"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Scleroderma and Related Disorders"],"published-print":{"date-parts":[[2024,10]]},"abstract":"<jats:sec>\n                    <jats:title>Introduction\/objective:<\/jats:title>\n                    <jats:p>We investigated (1) work status changes during COVID-19, (2) financial resource adequacy, (3) preferences for work requirements (e.g. remote, workplace, mixed) and (4) work requirements versus preferences, among people with systemic sclerosis.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>This was a cross-sectional study of participants in the Scleroderma Patient-centered Intervention Network COVID-19 Cohort, which enrolled participants from the ongoing Scleroderma Patient-centered Intervention Network Cohort and externally in April 2020. In August 2022, participants completed questions on work status, financial well-being using the Consumer Financial Protection Bureau Financial Well-Being Scale, work requirements and work requirement preferences.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>A total of 298 participants with systemic sclerosis were included. Mean age was 58.6\u2009years (SD\u2009=\u200911.4). There were 101 (34%) participants working at the start of the pandemic and still working in August 2022, 179 (60%) not working at the start of the pandemic and still not working, 10 (3%) who stopped working after April 2020 and 8 (3%) who started working. Mean financial well-being did not change from April 2020 to August 2022 (difference: 0.2 points; 95% confidence interval: \u22121.1 to 0.7). Working participants (N\u2009=\u2009109) preferred flexible work requirements (N\u2009=\u200934, 31%) or working entirely remotely (N\u2009=\u200932, 29%), but most were required to work entirely at a workplace (N\u2009=\u200935, 32%) or combined workplace and remotely with a fixed schedule (N\u2009=\u200931, 28%).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Work status and financial well-being did not change substantively among people with systemic sclerosis during the pandemic. Flexible work policies may support people with systemic sclerosis to work.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/23971983241262655","type":"journal-article","created":{"date-parts":[[2024,8,5]],"date-time":"2024-08-05T03:06:27Z","timestamp":1722827187000},"page":"242-247","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Changes in work and adequacy of financial resources during COVID-19 among people with systemic sclerosis: A Scleroderma Patient-centered Intervention Network study"],"prefix":"10.1136","volume":"9","author":[{"given":"Claire","family":"Adams","sequence":"first","affiliation":[{"name":"Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada"},{"name":"Department of Psychiatry, McGill University, Montreal, QC, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Elsa-Lynn","family":"Nassar","sequence":"additional","affiliation":[{"name":"Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada"},{"name":"Department of Psychology, McGill University, Montreal, QC, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Marie-Eve","family":"Carrier","sequence":"additional","affiliation":[{"name":"Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Linda","family":"Kwakkenbos","sequence":"additional","affiliation":[{"name":"Department of Clinical Psychology, Behavioural Science Institute, Radboud University, Nijmegen, The Netherlands"},{"name":"Department of IQ Health, Radboud University Medical Center, Nijmegen, The Netherlands"},{"name":"Centre for Mindfulness, Department of Psychiatry, Radboud University Medical Center, Nijmegen, The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Richard S","family":"Henry","sequence":"additional","affiliation":[{"name":"Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada"},{"name":"Department of Psychiatry, McGill University, Montreal, QC, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Gabrielle","family":"Virgili-Gervais","sequence":"additional","affiliation":[{"name":"Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sophie","family":"Hu","sequence":"additional","affiliation":[{"name":"Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Susan J","family":"Bartlett","sequence":"additional","affiliation":[{"name":"Department of Medicine, McGill University, Montreal, QC, Canada"},{"name":"The Research Institute of the McGill University Health Centre, Montreal, QC, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Catherine","family":"Fortun\u00e9","sequence":"additional","affiliation":[{"name":"Ottawa Scleroderma Support Group, Ottawa, ON, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amy","family":"Gietzen","sequence":"additional","affiliation":[{"name":"National Scleroderma Foundation, Tri-State Chapter, Binghamton, NY, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karen","family":"Gottesman","sequence":"additional","affiliation":[{"name":"National Scleroderma Foundation, Los Angeles, CA, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Genevi\u00e8ve","family":"Guillot","sequence":"additional","affiliation":[{"name":"Scl\u00e9rodermie Qu\u00e9bec, Montreal, QC, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6718-2468","authenticated-orcid":false,"given":"Marie","family":"Hudson","sequence":"additional","affiliation":[{"name":"Lady Davis Institute for Medical Research, Jewish General Hospital, Montreal, QC, Canada"},{"name":"Department of Medicine, McGill University, Montreal, QC, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Amanda","family":"Lawrie-Jones","sequence":"additional","affiliation":[{"name":"Scleroderma Australia, Melton, VIC, Australia"},{"name":"Scleroderma Victoria, Fitzroy, VIC, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nancy","family":"Lewis","sequence":"additional","affiliation":[{"name":"The Scleroderma Patient-centered Intervention Network, Montreal, QC, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Vanessa","family":"Malcarne","sequence":"additional","affiliation":[{"name":"Department of Psychology, San Diego State University, San Diego, CA, USA"},{"name":"San Diego State University and University of California, San Diego, CA, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maureen D","family":"Mayes","sequence":"additional","affiliation":[{"name":"University of Texas McGovern School of Medicine, Houston, TX, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Scott B","family":"Patten","sequence":"additional","affiliation":[{"name":"Department of Community Health Sciences, University of Calgary, Calgary, AB, Canada"},{"name":"Hotchkiss Brain Institute, University of Calgary, Calgary, AB, Canada"},{"name":"O\u2019Brien Institute for Public Health, University of Calgary, Calgary, AB, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michelle","family":"Richard","sequence":"additional","affiliation":[{"name":"Scleroderma Atlantic, Halifax, NS, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Maureen","family":"Sauv\u00e9","sequence":"additional","affiliation":[{"name":"Scleroderma Society of Ontario, Hamilton, ON, Canada"},{"name":"Scleroderma Canada, Hamilton, ON, Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"John","family":"Varga","sequence":"additional","affiliation":[{"name":"Division of Rheumatology, Department of Medicine, University of Michigan, Ann Arbor, MI, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Joep","family":"Welling","sequence":"additional","affiliation":[{"name":"NVLE Dutch patient organization for systemic autoimmune diseases, Utrecht, The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Robyn","family":"Wojeck","sequence":"additional","affiliation":[{"name":"The University of Rhode Island, Kingston, RI, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Luc","family":"Mouthon","sequence":"additional","affiliation":[{"name":"Centre de R\u00e9f\u00e9rence Maladies Autoimmunes Syst\u00e9miques Rares d\u2019Ile de France, Service de M\u00e9decine Interne, H\u00f4pital Cochin, Assistance Publique-H\u00f4pitaux de Paris (AP-HP), Paris, France"},{"name":"APHP-CUP, H\u00f4pital Cochin, Universit\u00e9 de Paris, Paris, France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Andrea","family":"Benedetti","sequence":"additional","affiliation":[{"name":"Department of Medicine, McGill University, Montreal, QC, Canada"},{"name":"The Research Institute of the McGill University Health Centre, Montreal, QC, Canada"},{"name":"Department of Epidemiology, Biostatistics, and 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