{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,8]],"date-time":"2026-05-08T05:13:03Z","timestamp":1778217183642,"version":"3.51.4"},"reference-count":33,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2023,1,1]],"date-time":"2023-01-01T00:00:00Z","timestamp":1672531200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000654","name":"Marie Curie","doi-asserted-by":"publisher","award":["MCSGS-21-401"],"award-info":[{"award-number":["MCSGS-21-401"]}],"id":[{"id":"10.13039\/501100000654","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat\ufffdCare"],"published-print":{"date-parts":[[2023,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>People experiencing homelessness have limited access to palliative care support despite high levels of ill health and premature mortality. Most research exploring these challenges in the United Kingdom has focused on people living in hostels or temporary accommodation. People with uncertain or restricted immigration status are often unable to access this accommodation due to lack of entitlement to benefits. There is little research about the experiences of those in the United Kingdom who cannot access hostels or temporary accommodation due to restricted or uncertain immigration status with regards to palliative and end-of-life care access.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim:<\/jats:title>\n                    <jats:p>To explore the barriers to palliative and end-of-life care access for people with uncertain or restricted immigration status, who are experiencing homelessness and have advanced ill health, and the experiences of UK hospices of supporting people in this situation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>A multi-method cross-sectional study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting\/participants:<\/jats:title>\n                    <jats:p>An online survey for hospice staff followed by online focus groups with staff from inclusion health, homelessness and palliative care services, charities and interviews with people experiencing homelessness.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Fifty hospice staff responded to the online survey and 17 people participated in focus groups and interviews (focus groups: n\u2009=\u200910; interviews: n\u2009=\u20097). The survey demonstrated how hospices are not currently supporting many people with restricted or uncertain immigration status who are homeless and that hospice staff have received limited training around eligibility for entitlements or National Health Service (NHS) care. Interview and focus group data demonstrated high levels of unmet need. Reasons for this included a lack of consistency around eligibility for support from local authorities, issues relating to NHS charging, and mistrust and limited knowledge of the UK health and social care system. These barriers leave many people unable to access care toward the end of their lives.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>To advocate for and provide compassionate palliative and end-of-life care for people with uncertain immigration status, there is need for more legal literacy, with training around people\u2019s entitlement to care and support, as well as easier access to specialist legal advice.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/26323524231216993","type":"journal-article","created":{"date-parts":[[2023,12,23]],"date-time":"2023-12-23T06:05:12Z","timestamp":1703311512000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":4,"title":["Palliative care, homelessness, and restricted or uncertain immigration status"],"prefix":"10.1177","volume":"17","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2907-1764","authenticated-orcid":false,"given":"Briony F.","family":"Hudson","sequence":"first","affiliation":[{"name":"Marie Curie, One Embassy Gardens, 8 Viaduct Gardens, London SW11 7BW, UK"},{"name":"Division of Psychiatry, Marie Curie Palliative Care Research Department, University College London, 6th Floor, Maple House, 149 Tottenham Court Road, London W1T 7NF, UK Pathway, London, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Elizabeth","family":"Dzeng","sequence":"additional","affiliation":[{"name":"Department of Global Health and Social Medicine, King\u2019s College London, London, UK"},{"name":"Division of Hospital Medicine, Department of Medicine, University of California San Francisco, San Francisco, CA, USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Angela","family":"Burnett","sequence":"additional","affiliation":[{"name":"Independent, London"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michelle","family":"Yeung","sequence":"additional","affiliation":[{"name":"Department of Primary Care Health Sciences, Radcliffe Observatory Quarter, University of Oxford, Oxford, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Caroline","family":"Shulman","sequence":"additional","affiliation":[{"name":"Division of Psychiatry, Marie Curie Palliative Care Research Department, University College London, London, UK"},{"name":"Pathway, London, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2023,12,23]]},"reference":[{"key":"bibr1-26323524231216993","unstructured":"NHSE. 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The National Health Service (charges to overseas visitors) regulations 2015, SI 2015\/238. https:\/\/www.legislation.gov.uk\/uksi\/2015\/238\/contents\/made (2015, accessed 1 June 2022)."},{"key":"bibr3-26323524231216993","author":"BMA","year":"2022","journal-title":"BMA view on charging overseas visitors"},{"key":"bibr4-26323524231216993","doi-asserted-by":"publisher","DOI":"10.1080\/13623690701596775"},{"key":"bibr5-26323524231216993","volume-title":"A home for all: understanding migrant homelessness in Great Britain","author":"Boobis S","year":"2019"},{"issue":"1","key":"bibr6-26323524231216993","first-page":"201","volume":"1","author":"Fitzpatrick S","year":"2007","journal-title":"Eur J Homelessness"},{"key":"bibr7-26323524231216993","volume-title":"Local Authority responses to people with NRPF during the pandemic: interim project findings briefing","author":"Jolly A","year":"2020"},{"key":"bibr8-26323524231216993","author":"Anitha S","year":"2015","journal-title":"Open Democracy"},{"issue":"1","key":"bibr9-26323524231216993","first-page":"31","volume":"6","author":"Fitzpatrick S","year":"2012","journal-title":"Eur J Homelessness"},{"key":"bibr10-26323524231216993","volume-title":"2020 rough sleeping snapshot statistics :an analysis of the 2020 rough sleeping snapshot estimates","author":"HomelessLink","year":"2020"},{"key":"bibr11-26323524231216993","volume-title":"Delays and destitution: an audit of Doctors of the World\u2019s Hospital Access Project","author":"DOTW","year":"2020"},{"key":"bibr12-26323524231216993","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2018-025192"},{"key":"bibr13-26323524231216993","volume-title":"Deaths of homeless people in England and Wales: 2021 registrations","author":"ONS","year":"2022"},{"key":"bibr14-26323524231216993","doi-asserted-by":"publisher","DOI":"10.1177\/0269216317717101"},{"key":"bibr15-26323524231216993","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-018-0320-6"},{"key":"bibr16-26323524231216993","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2017-017502"},{"key":"bibr17-26323524231216993","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-019-0396-7"},{"key":"bibr18-26323524231216993","doi-asserted-by":"publisher","DOI":"10.1177\/02692163211006318"},{"key":"bibr19-26323524231216993","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2021-003020"},{"key":"bibr20-26323524231216993","unstructured":"Hertzberg D, Boobis S. The unhealthy state of homelessness 2022, https:\/\/homelesslink-1b54.kxcdn.com\/media\/documents\/Homeless_Health_Needs_Audit_Report.pdf (2022, last accessed 10 august 2022)."},{"key":"bibr21-26323524231216993","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2021-053185"},{"key":"bibr22-26323524231216993","unstructured":"HomelessLink. 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