{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,7]],"date-time":"2026-10-07T02:38:29Z","timestamp":1791340709975,"version":"4.3.1"},"reference-count":87,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2025,6,27]],"date-time":"2025-06-27T00:00:00Z","timestamp":1750982400000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,6,27]],"date-time":"2025-06-27T00:00:00Z","timestamp":1750982400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat&amp;#65533;Care"],"published-print":{"date-parts":[[2025,11]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Familial and social support for patients with life-limiting conditions is crucial, especially in resource-poor settings. However, limited knowledge exists about patients\u2019 and caregivers\u2019 experiences within these informal networks in such contexts.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aims:<\/jats:title>\n                    <jats:p>This systematic review aimed to (i) synthesise the experiences of patients and caregivers regarding familial and social support in resource-poor settings, and (ii) understand the challenges they face in order to provide evidence for more compassionate, culturally congruent palliative care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>Systematic review and meta-synthesis registered on PROSPERO (CRD42023486219).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>We searched CINAHL, MEDLINE, PsycINFO, and Scopus using keywords such as \u201cfamilial and social support\u201d and \u201cchronic debilitating conditions\u201d in low- and middle-income countries. Only English-language qualitative studies exploring familial and social support were included. Thomas and Harden\u2019s approach was used for data synthesis, and the Joanna Briggs Institute\u2019s critical appraisal checklist was used to assess the studies\u2019 quality.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>We report our findings using the Enhancing Transparency in Reporting the Synthesis of Qualitative Research (ENTREQ) guidelines. Following screening, 39 studies were retained from 9157 search results. Five key themes emerged: (1) Bearing the weight of financial strain; (2) Psychosocial support as a \u201clifeline\u201d for care; (3) Hands-on help and guidance; (4) Cultural and social obligations; and (5) Developing a \u201cthick skin\u201d and having faith as a coping mechanism. The findings show that caregiving in the context of life-limiting illnesses is influenced by financial burdens, emotional challenges, and cultural obligations, with caregivers depending on spiritual and social networks. However, resource availability is inconsistent, underscoring the need for tailored interventions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Culturally specific palliative care strategies are necessary to ease caregiver burdens, improve resource distribution, and support the well-being of patients and caregivers in resource-poor settings.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/26323524251349840","type":"journal-article","created":{"date-parts":[[2025,6,27]],"date-time":"2025-06-27T06:42:33Z","timestamp":1751006553000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":16,"title":["Patients\u2019 and caregivers\u2019 experiences of familial and social support in resource-poor settings: A systematically constructed review and meta-synthesis"],"prefix":"10.1177","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5523-3010","authenticated-orcid":false,"given":"Yakubu","family":"Salifu","sequence":"first","affiliation":[{"name":"Division of Health Research, International Observatory on End of Life Care (IOELC), Faculty of Health and Medicine, Lancaster University, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9122-4135","authenticated-orcid":false,"given":"Emmanuel","family":"Ekpor","sequence":"additional","affiliation":[{"name":"School of Psychology, Deakin University, Melbourne, VIC, Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jonathan","family":"Bayuo","sequence":"additional","affiliation":[{"name":"School of Nursing, The Hong Kong Polytechnic University, Kowloon, Hong Kong"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Samuel","family":"Akyirem","sequence":"additional","affiliation":[{"name":"Yale School of Nursing, Yale University, West Haven, CT, USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2991-8160","authenticated-orcid":false,"given":"Kennedy","family":"Nkhoma","sequence":"additional","affiliation":[{"name":"Cicely Saunders Institute, King\u2019s College London, UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,6,27]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0885-3924(02)00440-2"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1016\/S2214-109X(18)30386-3"},{"key":"e_1_3_3_4_2","volume-title":"World health statistics 2021: Monitoring health for the SDGs, sustainable development goals","author":"World Health Organization","year":"2021","unstructured":"World Health Organization. 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