{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T08:09:25Z","timestamp":1777882165646,"version":"3.51.4"},"reference-count":78,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2025,11,1]],"date-time":"2025-11-01T00:00:00Z","timestamp":1761955200000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,11,1]],"date-time":"2025-11-01T00:00:00Z","timestamp":1761955200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100000272","name":"national institute for health and care research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat\ufffdCare"],"published-print":{"date-parts":[[2025,11]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>People living with dementia have complex needs, which will eventually lead to increasing demand for palliative care. However, there is limited evidence on the priority setting in palliative care specifically for people with dementia and carers.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives:<\/jats:title>\n                    <jats:p>This study aimed to identify priorities for dementia palliative care research in the West Midlands of England.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>A mixed methods consensus study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>Following a rapid review of recommendations on priorities for palliative or dementia care research, we identified 54 priorities across 11 domains, which were discussed with 20 key stakeholders (clinicians, researchers, local government representatives, and experts by experience) at a stakeholder consultation workshop. Then a list of 45 topics was developed and informed the development of an online cross-sectional survey. Consensus-building techniques were used where these topics were rated for importance and ranked to indicate top priorities for dementia palliative care in the region. Descriptive statistics was used to analyse the survey quantitative data and content analysis for free text responses.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Forty-three stakeholders completed the online survey. The top 10 priorities include symptom assessment and management (e.g. pain, nausea, vomiting, acute, and\/or chronic breathlessness); staff training and cultural competence; treatment and support for distress and delirium; care for people with advanced dementia at the end of life and their carers in all settings; the needs of young people with dementia and their carers; food and nutrition (e.g. difficulty in swallowing); supporting carers of people with dementia living at home; the needs of people who live alone; advance care planning and other approaches incorporating individual preferences; and home care and coordination of services.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Our results suggest the top priorities for dementia palliative care research, thus informing future practice, policy, and research.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/26323524251392625","type":"journal-article","created":{"date-parts":[[2025,11,22]],"date-time":"2025-11-22T05:25:31Z","timestamp":1763789131000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Priority setting in dementia palliative care research for people living with dementia and carers: A mixed methods consensus study"],"prefix":"10.1177","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0979-7047","authenticated-orcid":false,"given":"Ping","family":"Guo","sequence":"first","affiliation":[{"name":"Department of Nursing and Midwifery, School of Health Sciences, College of Medicine and Health, University of Birmingham, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5811-8982","authenticated-orcid":false,"given":"Nikolaos","family":"Efstathiou","sequence":"additional","affiliation":[{"name":"Department of Nursing and Midwifery, School of Health Sciences, College of Medicine and Health, University of Birmingham, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cara","family":"Bailey","sequence":"additional","affiliation":[{"name":"Department of Nursing and Midwifery, School of Health Sciences, College of Medicine and Health, University of Birmingham, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Peyman\u00e9","family":"Adab","sequence":"additional","affiliation":[{"name":"Department of Applied Health Research, School of Health Sciences, College of Medicine and Health, University of Birmingham, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3960-7988","authenticated-orcid":false,"given":"Jon","family":"Glasby","sequence":"additional","affiliation":[{"name":"Department of Social Work and Social Care, School of Social Policy and Society, College of Social Sciences, University of Birmingham, UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2025,11,21]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1016\/S2214-109X(19)30172-X"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1177\/02692163221118230"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph182212233"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.3399\/bjgp11X561195"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.3389\/fpubh.2023.1286479"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2016-012546"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2023.2280925"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2020-002242"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.envint.2021.107027"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1111\/eci.14154"},{"key":"e_1_3_3_12_2","article-title":"Healthcare disparities among older adults: exploring social determinants of health and cognition levels","author":"Rahemi Z","year":"2024","unstructured":"Rahemi Z, Bacsu JR, Shalhout SZ, et al. Healthcare disparities among older adults: exploring social determinants of health and cognition levels. medRxiv, 2024.","journal-title":"medRxiv"},{"key":"e_1_3_3_13_2","first-page":"393","article-title":"Inequalities in receipt of mental and physical healthcare in people with dementia in the UK","volume":"46","author":"Cooper C","year":"2016","unstructured":"Cooper C, Lodwick R, Walters K, et al. Inequalities in receipt of mental and physical healthcare in people with dementia in the UK. Age Ageing 2016; 46: 393\u2013400.","journal-title":"Age Ageing"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-025-05805-z"},{"key":"e_1_3_3_15_2","doi-asserted-by":"publisher","DOI":"10.1192\/bjp.bp.107.045187"},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.1080\/01488376.2024.2369115"},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-019-1189-9"},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.1002\/gps.1830"},{"key":"e_1_3_3_19_2","doi-asserted-by":"publisher","DOI":"10.1111\/jgs.17345"},{"key":"e_1_3_3_20_2","doi-asserted-by":"publisher","DOI":"10.3389\/fpubh.2020.00231"},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1108\/JAP-09-2024-0056"},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.14104"},{"key":"e_1_3_3_23_2","doi-asserted-by":"publisher","DOI":"10.1093\/ageing\/afz154"},{"key":"e_1_3_3_24_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2014-000813"},{"key":"e_1_3_3_25_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12889-019-7762-5"},{"key":"e_1_3_3_26_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-018-0983-0"},{"key":"e_1_3_3_27_2","doi-asserted-by":"publisher","DOI":"10.1177\/14713012241237673"},{"key":"e_1_3_3_28_2","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(20)30367-6"},{"key":"e_1_3_3_29_2","unstructured":"Alzheimer\u2019s Society. Left to Cope Alone: the unmet support needs after a dementia diagnosis https:\/\/www.alzheimers.org.uk\/about-us\/policy-and-influencing\/left-cope-alone-unmet-support-needs-after-dementia-diagnosis (2022 accessed 15 April 2025)."},{"key":"e_1_3_3_30_2","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610215000824"},{"key":"e_1_3_3_31_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216317743433"},{"key":"e_1_3_3_32_2","doi-asserted-by":"publisher","DOI":"10.1177\/1471301218816250"},{"key":"e_1_3_3_33_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12912-021-00566-7"},{"key":"e_1_3_3_34_2","unstructured":"Morris C. Universal Health Coverage and Palliative Care: do not leave those suffering behind http:\/\/www.thewhpca.org\/images\/resources\/publications-reports\/Universal_health_coverage_report_final_2014.pdf (2014 accessed 7 September 2023)."},{"key":"e_1_3_3_35_2","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2017.1334038"},{"key":"e_1_3_3_36_2","doi-asserted-by":"publisher","DOI":"10.1186\/s41687-021-00325-x"},{"key":"e_1_3_3_37_2","doi-asserted-by":"publisher","DOI":"10.1186\/s40900-021-00297-8"},{"key":"e_1_3_3_38_2","doi-asserted-by":"publisher","DOI":"10.32481\/djph.2021.09.012"},{"key":"e_1_3_3_39_2","doi-asserted-by":"publisher","DOI":"10.1177\/02692163211019897"},{"key":"e_1_3_3_40_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-021-00802-6"},{"key":"e_1_3_3_41_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1553-2712.2011.01088.x"},{"key":"e_1_3_3_42_2","doi-asserted-by":"publisher","DOI":"10.1186\/1741-7015-11-111"},{"key":"e_1_3_3_43_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijsu.2014.07.013"},{"key":"e_1_3_3_44_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12874-019-0889-3"},{"key":"e_1_3_3_45_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216313493685"},{"key":"e_1_3_3_46_2","unstructured":"James Lind Alliance Priority Setting Partnerships. Dementia top 10 priorities Dementia NIHR JLA (2013 accessed 15 July 2024)."},{"key":"e_1_3_3_47_2","unstructured":"James Lind Alliance Priority Setting Partnerships. Palliative and end of life care top 10 priorities Palliative and end of life care NIHR JLA (2015 accessed 15 July 2024)."},{"key":"e_1_3_3_48_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216319854154"},{"key":"e_1_3_3_49_2","doi-asserted-by":"publisher","DOI":"10.5662\/wjm.v11.i4.116"},{"key":"e_1_3_3_50_2","doi-asserted-by":"publisher","DOI":"10.1097\/MD.0000000000032829"},{"key":"e_1_3_3_51_2","doi-asserted-by":"publisher","DOI":"10.3389\/fpubh.2020.00457"},{"key":"e_1_3_3_52_2","doi-asserted-by":"publisher","DOI":"10.1002\/nur.22227"},{"key":"e_1_3_3_53_2","doi-asserted-by":"publisher","DOI":"10.1080\/01612840.2024.2318603"},{"key":"e_1_3_3_54_2","doi-asserted-by":"publisher","DOI":"10.1177\/08258597241264455"},{"key":"e_1_3_3_55_2","article-title":"Pain in dementia","volume":"5","author":"Achterberg W","year":"2020","unstructured":"Achterberg W, Lautenbacher S, Husebo B, et al. Pain in dementia. Pain Rep 2020; 5: e803.","journal-title":"Pain Rep"},{"key":"e_1_3_3_56_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.gerinurse.2018.04.010"},{"key":"e_1_3_3_57_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpain.2022.12.014"},{"key":"e_1_3_3_58_2","doi-asserted-by":"publisher","DOI":"10.1177\/20494637221119588"},{"key":"e_1_3_3_59_2","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.17771"},{"key":"e_1_3_3_60_2","doi-asserted-by":"publisher","DOI":"10.3399\/bjgpopen20X101040"},{"key":"e_1_3_3_61_2","article-title":"Non-pharmacological pain management practice and associated factors among nurses working at comprehensive specialized hospitals","volume":"9","author":"Tsegaye D","year":"2023","unstructured":"Tsegaye D, Yazew A, Gedfew M, et al. Non-pharmacological pain management practice and associated factors among nurses working at comprehensive specialized hospitals. SAGE Open Nurs 2023; 9: 23779608231158979.","journal-title":"SAGE Open Nurs"},{"key":"e_1_3_3_62_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.xcrm.2025.101940"},{"key":"e_1_3_3_63_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12916-023-03076-2"},{"key":"e_1_3_3_64_2","doi-asserted-by":"publisher","DOI":"10.1177\/14713012241249796"},{"key":"e_1_3_3_65_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12939-024-02290-5"},{"key":"e_1_3_3_66_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.healthpol.2023.104736"},{"key":"e_1_3_3_67_2","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2020.1787336"},{"key":"e_1_3_3_68_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2023.104674"},{"key":"e_1_3_3_69_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-022-07875-w"},{"key":"e_1_3_3_70_2","doi-asserted-by":"publisher","DOI":"10.1177\/14713012241244982"},{"key":"e_1_3_3_71_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-022-00965-w"},{"key":"e_1_3_3_72_2","article-title":"The empirical evidence underpinning the concept and practice of person-centred care for serious illness: a systematic review","volume":"5","author":"Alessandra G","year":"2020","unstructured":"Alessandra G, Kennedy N, Ruwayda P, et al. The empirical evidence underpinning the concept and practice of person-centred care for serious illness: a systematic review. BMJ Global Health 2020; 5: e003330.","journal-title":"BMJ Global Health"},{"key":"e_1_3_3_73_2","article-title":"Advance care planning in dementia: recommendations for healthcare professionals","volume":"12","author":"Harrison Dening K","year":"2019","unstructured":"Harrison Dening K, Sampson EL, De Vries K. Advance care planning in dementia: recommendations for healthcare professionals. Palliat Care 2019; 12: 1178224219826579.","journal-title":"Palliat Care"},{"key":"e_1_3_3_74_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ssmmh.2025.100426"},{"key":"e_1_3_3_75_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12913-020-05873-4"},{"key":"e_1_3_3_76_2","unstructured":"Vinter R. \u2018Diversity is a beautiful thing\u2019: the view from Leicester and Birmingham https:\/\/www.theguardian.com\/uk-news\/2022\/nov\/29\/leicester-birmingham-first-super-diverse-uk-cities-census (2022 accessed 6 December 2023)."},{"key":"e_1_3_3_77_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-019-0418-5"},{"key":"e_1_3_3_78_2","doi-asserted-by":"publisher","DOI":"10.21037\/apm-23-270"},{"key":"e_1_3_3_79_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12911-021-01555-1"}],"container-title":["Palliative Care and Social Practice"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/26323524251392625","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/26323524251392625","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/26323524251392625","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T01:04:05Z","timestamp":1777597445000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/26323524251392625"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,11]]},"references-count":78,"alternative-id":["10.1177\/26323524251392625"],"URL":"https:\/\/doi.org\/10.1177\/26323524251392625","relation":{},"ISSN":["2632-3524","2632-3524"],"issn-type":[{"value":"2632-3524","type":"print"},{"value":"2632-3524","type":"electronic"}],"subject":[],"published":{"date-parts":[[2025,11]]},"article-number":"26323524251392625"}}