{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T08:09:32Z","timestamp":1777882172437,"version":"3.51.4"},"reference-count":54,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,1,1]],"date-time":"2026-01-01T00:00:00Z","timestamp":1767225600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,1,1]],"date-time":"2026-01-01T00:00:00Z","timestamp":1767225600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100002347","name":"Bundesministerium f\u00fcr Bildung und Forschung","doi-asserted-by":"publisher","award":["01KX2121"],"award-info":[{"award-number":["01KX2121"]}],"id":[{"id":"10.13039\/501100002347","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat\ufffdCare"],"published-print":{"date-parts":[[2026,1]]},"abstract":"<jats:p>Due to the COVID-19 pandemic, various infection control measures were introduced that had a profound effect on caregiving dynamics and created burdens in the daily lives of informal caregivers (ICs). A scoping review was conducted to identify burden and support factors for ICs during and beyond the pandemic. Studies were included when they examined ICs\u2019 care work during the official time period of the COVID-19 pandemic (March 2020\u2013May 2023) and care hours worked per day or week were specified. Only studies with adult participants and studies in German or English language were incorporated. The scoping review considered quantitative cross-sectional and longitudinal studies involving randomized\/quasi-randomized controlled trials, cohort studies, case studies, mixed-methods, and qualitative studies as well as reviews and meta-analyses. The electronic databases PubMed, the Cochrane COVID-19 Study Register, and EBSCO Host were systematically searched. The search was limited to articles published between 2020 and 2024. The scoping review was conducted in accordance with the Joanna Briggs Institute methodology for scoping reviews. Overall, 42 studies with 51,183individuals met the inclusion criteria and were included in the scoping review. Main findings suggested that the pandemic-related measures caused additional care burden for ICs and worsened the already poor situation of informal care. In particular, the lack of support from health services and the increase in care hours were described as burdensome. Additionally, studies indicated an increase in rates of depression and overall poor mental health, particularly affecting female ICs. Social and formal care support were mentioned as main support factors. Consequently, preparation of future crises should focus on formal health services and structures to promote social support and mental health of ICs during pandemics.<\/jats:p>","DOI":"10.1177\/26323524251399233","type":"journal-article","created":{"date-parts":[[2026,1,31]],"date-time":"2026-01-31T16:14:21Z","timestamp":1769876061000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Unraveling the complexities: A scoping review of the collateral effects on informal caregivers during and beyond the COVID-19 pandemic"],"prefix":"10.1177","volume":"20","author":[{"ORCID":"https:\/\/orcid.org\/0009-0000-4885-1603","authenticated-orcid":false,"given":"Miriam","family":"Nicolai","sequence":"first","affiliation":[{"name":"Department for Psychosomatic Medicine and Psychotherapy, University Medical Center of the Johannes Gutenberg-University Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anneke","family":"Ullrich","sequence":"additional","affiliation":[{"name":"Palliative Care Unit, Department of Oncology, Hematology and BMT, University Medical Center Hamburg-Eppendorf, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jessica","family":"Ruck","sequence":"additional","affiliation":[{"name":"Department of General Practice, University Hospital W\u00fcrzburg, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Birgit","family":"Jaspers","sequence":"additional","affiliation":[{"name":"Department of Palliative Medicine, University Hospital Bonn, Germany"},{"name":"Department of Palliative Medicine, University Medicine G\u00f6ttingen, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7145-1330","authenticated-orcid":false,"given":"Arndt","family":"Bialobrzeski","sequence":"additional","affiliation":[{"name":"Department of Palliative Medicine, University Hospital Bonn, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0000-3310-8518","authenticated-orcid":false,"given":"Rebecca","family":"Degutsch","sequence":"additional","affiliation":[{"name":"Department of Palliative Medicine, University Hospital Bonn, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karin","family":"Oechsle","sequence":"additional","affiliation":[{"name":"Palliative Care Unit, Department of Oncology, Hematology and BMT, University Medical Center Hamburg-Eppendorf, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lukas","family":"Radbruch","sequence":"additional","affiliation":[{"name":"Department of Palliative Medicine, University Hospital Bonn, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ildiko","family":"G\u00e1gyor","sequence":"additional","affiliation":[{"name":"Department of General Practice, University Hospital W\u00fcrzburg, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nora","family":"Hettich-Damm","sequence":"additional","affiliation":[{"name":"Department for Psychosomatic Medicine and Psychotherapy, University Medical Center of the Johannes Gutenberg-University Mainz, Germany"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2026,1,31]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.3390\/su13116314"},{"key":"e_1_3_3_3_2","volume-title":"Families caring for an aging America","author":"Committee on Family Caregiving for Older Adults, Board on Health Care Services; Health and Medicine Division; National Academies of Sciences, Engineering, and Medicine, et al","unstructured":"Committee on Family Caregiving for Older Adults, Board on Health Care Services; Health and Medicine Division; National Academies of Sciences, Engineering, and Medicine, et al. 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