{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T08:09:41Z","timestamp":1777882181787,"version":"3.51.4"},"reference-count":44,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,2,21]],"date-time":"2026-02-21T00:00:00Z","timestamp":1771632000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,2,21]],"date-time":"2026-02-21T00:00:00Z","timestamp":1771632000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100015539","name":"australian government","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100015539","id-type":"DOI","asserted-by":"publisher"}]},{"name":"End-of-Life Care Program, Western Australian Department of Health"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat&amp;#65533;Care"],"published-print":{"date-parts":[[2026,3]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>An independent evaluation sought to understand the broader impacts of the West Australian National Partnership Agreement for Comprehensive Palliative Care in Aged Care projects on residents and their families.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>This study aimed to gain a bereaved carer perspective on palliative care in Western Australian residential aged care homes (RACHs), identify challenges\/gaps in care provision, and consider how service delivery can be improved to meet community needs and expectations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design:<\/jats:title>\n                    <jats:p>An online survey of bereaved family carers of people who died in RACHs from 2021 to 2024.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>The questionnaire was structured according to the six strategic priorities outlined in Western Australia\u2019s End-of-Life and Palliative Care Strategy (2018\u20132028). Descriptive analyses were conducted.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>Three hundred and seventeen bereaved carers across 46 RACHs responded. 40.6% of carers reported their relative accessed visiting palliative care services during their residential aged care stay, 30.6% did not access, and 28.8% did not know. Overall, bereaved carers whose relatives accessed palliative care reported better experiences for residents and themselves compared with those who did not. However, the respondents called for a more person-centred care system encompassing residents\u2019 needs, more timely information, better communication, and appropriate resources to feel supported before and after bereavement. They also wanted to be more involved in care decisions undertaken within RACH. These needs were reflected in priorities 2 (care is person-centred) and 4 (families and carers are supported), which were rated the lowest among the six priorities.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>This study makes three contributions to ageing policy discourse. First, it provides empirical evidence that despite policy directives towards person-centred care, residential aged care continues operating through institutional \u201ccaring for\u201d rather than relational \u201ccaring about\u201d frameworks. Second, it reveals implementation gaps in palliative care policies, particularly in bereavement support and family involvement in care decisions. Third, it proposes a compassionate communities approach to care as a social practice and policy framework addressing both quality concerns and sustainability challenges.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/26323524251413627","type":"journal-article","created":{"date-parts":[[2026,2,21]],"date-time":"2026-02-21T12:23:42Z","timestamp":1771676622000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Shifting the aged care culture from caring \u201cfor\u201d residents to caring \u201cabout\u201d residents: Advocating for a compassionate communities approach to care"],"prefix":"10.1177","volume":"20","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4073-4805","authenticated-orcid":false,"given":"Samar","family":"Aoun","sequence":"first","affiliation":[{"name":"University of Western Australia, Perth, WA, Australia"},{"name":"Perron Institute for Neurological and Translational Science, Perth, WA, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0330-0143","authenticated-orcid":false,"given":"Yong Hao","family":"Ng","sequence":"additional","affiliation":[{"name":"University of Western Australia, Perth, WA, Australia"},{"name":"Perron Institute for Neurological and Translational Science, Perth, WA, Australia"},{"name":"Department of Social Work, Faculty of Arts and Social Sciences, National University of Singapore, Singapore"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kirsten","family":"Auret","sequence":"additional","affiliation":[{"name":"Rural Clinical School of Western Australia, University of Western Australia, Albany, WA, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9256-3932","authenticated-orcid":false,"given":"Julie M.","family":"Brose","sequence":"additional","affiliation":[{"name":"University of Western Australia, Perth, WA, Australia"},{"name":"Perron Institute for Neurological and Translational Science, Perth, WA, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Bruce","family":"Rumbold","sequence":"additional","affiliation":[{"name":"Perron Institute for Neurological and Translational Science, Perth, WA, Australia"},{"name":"School of Psychology and Public Health, La Trobe University, Melbourne, VIC, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2026,2,21]]},"reference":[{"key":"e_1_3_3_2_2","unstructured":"World Health Organization. Ageing and health https:\/\/www.who.int\/news-room\/fact-sheets\/detail\/ageing-and-health (2024 accessed 14 August 2025)."},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1111\/ajag.13345"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.3390\/brainsci13060920"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-021-02680-2"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.11124\/01938924-201513070-00018"},{"key":"e_1_3_3_7_2","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2017.23.5.238"},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216319840275"},{"key":"e_1_3_3_9_2","article-title":"Developing and evaluating Compassionate Workplace Programs to promote health and wellbeing around serious illness, dying and loss in the workplace (EU-CoWork): a transdisciplinary, cross-national research project","volume":"18","author":"Vanderstichelen S","year":"2024","unstructured":"Vanderstichelen S, De Moortel D, Nielsen K, et al. Developing and evaluating Compassionate Workplace Programs to promote health and wellbeing around serious illness, dying and loss in the workplace (EU-CoWork): a transdisciplinary, cross-national research project. Palliat Care Soc Pract 2024; 18: 26323524241281070.","journal-title":"Palliat Care Soc Pract"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.13352"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1177\/0733464812468503"},{"key":"e_1_3_3_12_2","unstructured":"Federal Financial Relations. Project agreement for comprehensive palliative care in aged care https:\/\/federalfinancialrelations.gov.au\/sites\/federalfinancialrelations.gov.au\/files\/2022-01\/CPCiAC%20NPA%20signed%20all.pdf (2019 accessed 14 August 2025)."},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare9101286"},{"key":"e_1_3_3_14_2","unstructured":"Australian Government My Aged Care. What aged care homes provide https:\/\/www.myagedcare.gov.au\/aged-care-homes\/what-do-aged-care-homes-provide#:~:text=you%20live%20in.- Day-to-day%20needs Utilities (2025 accessed 27 October 2025)."},{"key":"e_1_3_3_15_2","unstructured":"Australian Government Department of Health Disability and Ageing. About residential aged care https:\/\/www.health.gov.au\/our-work\/residential-aged-care\/about#:~:text=Residential%20respite%20care- What%20residential%20aged%20care%20is provide%20accommodation%20and%20help%20with (2025 accessed 27 October 2025)."},{"key":"e_1_3_3_16_2","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare9121615"},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.4324\/9780203519196-15"},{"key":"e_1_3_3_18_2","unstructured":"Government of Western Australia. WA End-of-Life and Palliative Care Strategy 2018\u20132028 https:\/\/www.health.wa.gov.au\/~\/media\/Corp\/Documents\/Health-for\/End-of-Life\/WA-End-of-life-and-Palliative-Care-Strategy-2018-2028.pdf (2018 accessed 14 August 2025)."},{"key":"e_1_3_3_19_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.archger.2024.105473"},{"key":"e_1_3_3_20_2","unstructured":"Government of Western Australia. Residential aged care services guideline https:\/\/www.wacountry.health.wa.gov.au\/~\/media\/WACHS\/Documents\/About-us\/Policies\/Residential-Aged-Care-Services-Guideline.pdf (2023 accessed 14 August 2025)."},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1177\/07334648241309761"},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.1177\/0969733020983394"},{"key":"e_1_3_3_23_2","doi-asserted-by":"publisher","DOI":"10.1177\/1049909118814240"},{"key":"e_1_3_3_24_2","doi-asserted-by":"publisher","DOI":"10.1080\/07481187.2022.2135044"},{"key":"e_1_3_3_25_2","doi-asserted-by":"publisher","DOI":"10.1016\/S2468-2667(24)00030-6"},{"key":"e_1_3_3_26_2","doi-asserted-by":"publisher","DOI":"10.1080\/02682621.2015.1115185"},{"key":"e_1_3_3_27_2","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0184750"},{"key":"e_1_3_3_28_2","unstructured":"Australian Government Department of Health Disability and Ageing. New aged care https:\/\/www.health.gov.au\/our-work\/aged-care-act (2025 accessed 14 August 2025)."},{"key":"e_1_3_3_29_2","unstructured":"Australia Government\u2019s Office of the Inspector-General of Aged Care. 2025 Progress report implementation of the recommendations of the Royal Commission into Aged Care Quality and Safety: social emotional and spiritual care https:\/\/www.igac.gov.au\/sites\/default\/files\/2025-09\/social-emotional-and-spiritual-care-2025-progress-report.pdf (2025 accessed 31 October 2025)."},{"key":"e_1_3_3_30_2","doi-asserted-by":"publisher","DOI":"10.1177\/02692163221096606"},{"key":"e_1_3_3_31_2","doi-asserted-by":"publisher","DOI":"10.1080\/07481187.2024.2329755"},{"key":"e_1_3_3_32_2","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/gnac034"},{"key":"e_1_3_3_33_2","doi-asserted-by":"publisher","DOI":"10.21037\/apm.2018.03.04"},{"key":"e_1_3_3_34_2","article-title":"The Compassionate Communities Connectors model for end-of-life care: implementation and evaluation","volume":"16","author":"Aoun SM","year":"2022","unstructured":"Aoun SM, Richmond R, Gunton K, et al. The Compassionate Communities Connectors model for end-of-life care: implementation and evaluation. Palliat Care Soc Pract 2022; 16: 26323524221139655.","journal-title":"Palliat Care Soc Pract"},{"key":"e_1_3_3_35_2","article-title":"The Compassionate Communities Connectors programme: experiences of supported families and referring healthcare providers","volume":"17","author":"Aoun SM","year":"2023","unstructured":"Aoun SM, Rosenberg J, Richmond R, et al. The Compassionate Communities Connectors programme: experiences of supported families and referring healthcare providers. Palliat Care Soc Pract 2023; 17: 26323524231173705.","journal-title":"Palliat Care Soc Pract"},{"key":"e_1_3_3_36_2","article-title":"The Compassionate Communities Connectors program: effect on healthcare usage","volume":"17","author":"Aoun SM","year":"2023","unstructured":"Aoun SM, Bear N, Rumbold B. The Compassionate Communities Connectors program: effect on healthcare usage. Palliat Care Soc Pract 2023; 17: 26323524231205323.","journal-title":"Palliat Care Soc Pract"},{"key":"e_1_3_3_37_2","volume-title":"Palliative and end-of-life care framework","author":"Bupa Aged Care Australia","year":"2025","unstructured":"Bupa Aged Care Australia. Palliative and end-of-life care framework, Bupa Aged Care Australia, 2025."},{"key":"e_1_3_3_38_2","doi-asserted-by":"publisher","DOI":"10.21037\/apm-23-553"},{"key":"e_1_3_3_39_2","article-title":"Demystifying compassionate communities","volume":"19","author":"Ng YH","year":"2025","unstructured":"Ng YH, Aoun S. Demystifying compassionate communities. Palliat Care Soc Pract 2025; 19: 26323524251396992.","journal-title":"Palliat Care Soc Pract"},{"key":"e_1_3_3_40_2","doi-asserted-by":"publisher","DOI":"10.3389\/fpubh.2023.1180571"},{"key":"e_1_3_3_41_2","unstructured":"Australian Institute of Health and Welfare. People using aged care aged care use by age https:\/\/www.gen-agedcaredata.gov.au\/topics\/people-using-aged-care#Aged_care_use_by_age (2023 accessed 14 August 2025)."},{"key":"e_1_3_3_42_2","unstructured":"Australian Institute of Health and Welfare. Dementia in Australia: residential aged care https:\/\/www.aihw.gov.au\/reports\/dementia\/dementia-in-aus\/contents\/aged-care-and-support-services-used-by-people-with\/residential-aged-care (2022 accessed 14 August 2025)."},{"key":"e_1_3_3_43_2","unstructured":"Australian Institute of Health and Welfare. Providers services and places in Australia https:\/\/www.gen-agedcaredata.gov.au\/topics\/providers -services-and-places-in-aged-care (2023 14 August 2025)."},{"key":"e_1_3_3_44_2","unstructured":"Australian Institute of Health and Welfare. Interfaces between the aged care and health systems in Australia \u2013 where do older Australians die? https:\/\/www.aihw.gov.au\/reports\/aged-care\/where-do-older-australians-die\/summary (2021 14 August 2025)."},{"key":"e_1_3_3_45_2","unstructured":"Australian Institute of Health and Welfare. People leaving aged care https:\/\/www.gen-agedcaredata.gov.au\/topics\/people-leaving-aged-care (2023 14 August 2025)."}],"container-title":["Palliative Care and Social Practice"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/26323524251413627","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/26323524251413627","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/26323524251413627","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T01:04:33Z","timestamp":1777597473000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/26323524251413627"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,2,21]]},"references-count":44,"alternative-id":["10.1177\/26323524251413627"],"URL":"https:\/\/doi.org\/10.1177\/26323524251413627","relation":{},"ISSN":["2632-3524","2632-3524"],"issn-type":[{"value":"2632-3524","type":"print"},{"value":"2632-3524","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,2,21]]},"article-number":"26323524251413627"}}