{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T08:09:47Z","timestamp":1777882187472,"version":"3.51.4"},"reference-count":33,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,4,1]],"date-time":"2026-04-01T00:00:00Z","timestamp":1775001600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,4,1]],"date-time":"2026-04-01T00:00:00Z","timestamp":1775001600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100015539","name":"australian government","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100015539","id-type":"DOI","asserted-by":"publisher"}]},{"name":"Western Australian Department of Health"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat\ufffdCare"],"published-print":{"date-parts":[[2026,4]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Bereaved carers\u2019 perspectives on the quality of end-of-life care in residential aged care homes (RACHs) provide critical insights into person-centred care delivery and support provision. Understanding bereaved carers\u2019 experiences of formal and informal support, and their perceptions of staff responsiveness to residents\u2019 values and preferences, is essential for improving end-of-life care standards.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives:<\/jats:title>\n                    <jats:p>To capture bereaved carers\u2019 perspectives on formal and informal support received and the delivery of person-centred care within RACHs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods:<\/jats:title>\n                    <jats:p>A descriptive qualitative study used free-text responses from an online survey for bereaved carers whose loved ones died in a RACH between 2021 and 2024 in Western Australia. Questions were structured according to the six priorities of the Western Australian End-of-Life and Palliative Care Strategy 2018\u20132028. Open-ended items allowed participants to expand on their experiences of social support before and after death and to comment on the extent to which residents\u2019 and families\u2019 values were taken into consideration. Thematic analysis examined carers\u2019 perceptions of informal and formal support received and care provided.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings:<\/jats:title>\n                    <jats:p>Among 317 respondents representing 46 RACHs, five themes reflected carers\u2019 perspectives: (1) Stretched thin: carer concerns about unmet needs; (2) Navigating gaps: carer experiences with end-of-life care; (3) Seeking involvement: carers\u2019 role in care decisions; (4) Navigating decline: challenges in dementia care; and (5) Caring for the carer: the impact of RACHs and community support.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion:<\/jats:title>\n                    <jats:p>Bereaved carers perceived significant variability in person-centred support for themselves and the residents within RACHs, with quality often dependent on individual staff skills, confidence and communication style, and timely access to doctors or palliative care services. However, carers spoke positively about the support from the wider community. The expressed feeling to be cared \u201cabout\u201d rather than just cared \u201cfor\u201d could be explored by a collaborative compassionate communities approach to care integrated in RACHs. This may strengthen the capacity of the wider community to support carers before and after bereavement.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/26323524261426397","type":"journal-article","created":{"date-parts":[[2026,4,11]],"date-time":"2026-04-11T06:58:02Z","timestamp":1775890682000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Voices that matter: Bereaved carers\u2019 perspectives of support and person-centred care in residential aged care homes"],"prefix":"10.1177","volume":"20","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9256-3932","authenticated-orcid":false,"given":"Julie M.","family":"Brose","sequence":"first","affiliation":[{"name":"University of Western Australia, Perth, Western Australia, Australia"},{"name":"Perron Institute for Neurological and Translational Science, Perth, Western Australia, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0330-0143","authenticated-orcid":false,"given":"Yong Hao","family":"Ng","sequence":"additional","affiliation":[{"name":"University of Western Australia, Perth, Western Australia, Australia"},{"name":"Perron Institute for Neurological and Translational Science, Perth, Western Australia, Australia"},{"name":"Department of Social Work, Faculty of Arts and Social Sciences, National University of Singapore, Singapore"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kirsten","family":"Auret","sequence":"additional","affiliation":[{"name":"Rural Clinical School of Western Australia, University of Western Australia, Albany, Western Australia, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Bruce","family":"Rumbold","sequence":"additional","affiliation":[{"name":"Perron Institute for Neurological and Translational Science, Perth, Western Australia, Australia"},{"name":"School of Psychology and Public Health, La Trobe University, Melbourne, Victoria, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4073-4805","authenticated-orcid":false,"given":"Samar","family":"Aoun","sequence":"additional","affiliation":[{"name":"University of Western Australia, Perth, Western Australia, Australia"},{"name":"Perron Institute for Neurological and Translational Science, Perth, Western Australia, Australia"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2026,4,10]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1155\/2024\/9888828"},{"key":"e_1_3_3_3_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12912-022-01139-y"},{"key":"e_1_3_3_4_2","doi-asserted-by":"publisher","DOI":"10.1017\/S1041610216001654"},{"key":"e_1_3_3_5_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12877-025-05916-7"},{"key":"e_1_3_3_6_2","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/gnad052"},{"key":"e_1_3_3_7_2","unstructured":"Australian Commission on Safety and Quality in Health Care. Person-centred care https:\/\/www.safetyandquality.gov.au\/our-work\/partnering-consumers\/person-centred-care (2022 accessed 21 October 2025)."},{"key":"e_1_3_3_8_2","doi-asserted-by":"publisher","DOI":"10.1111\/ajag.13345"},{"key":"e_1_3_3_9_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.profnurs.2024.05.011"},{"key":"e_1_3_3_10_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2021.103878"},{"key":"e_1_3_3_11_2","doi-asserted-by":"publisher","DOI":"10.1111\/jep.13961"},{"key":"e_1_3_3_12_2","doi-asserted-by":"publisher","DOI":"10.1080\/07481187.2024.2329755"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2023.2280925"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1177\/1744987117753275"},{"key":"e_1_3_3_15_2","unstructured":"Relations FF. Project agreement for comprehensive palliative care in aged care https:\/\/federalfinancialrelations.gov.au\/sites\/federalfinancialrelations.gov.au\/files\/2022-01\/CPCiAC%20NPA%20signed%20all.pdf (2019 accessed 21 October 2025)."},{"key":"e_1_3_3_16_2","volume-title":"National Partnership Agreement comprehensive palliative care in aged care: WA deep dive impact evaluation full report","author":"Aoun S.","year":"2024","unstructured":"Aoun S. National Partnership Agreement comprehensive palliative care in aged care: WA deep dive impact evaluation full report. Perron Institute, 2024."},{"key":"e_1_3_3_17_2","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-69909-7_3470-2"},{"key":"e_1_3_3_18_2","doi-asserted-by":"publisher","DOI":"10.1177\/1077800413513733"},{"key":"e_1_3_3_19_2","first-page":"1","article-title":"Shifting the aged care culture from caring \u201cfor\u201d residents to caring \u201cabout\u201d residents: advocating for a Compassionate Communities approach to care","volume":"20","author":"Aoun SM","year":"2026","unstructured":"Aoun SM, Ng YH, Auret K, et al. Shifting the aged care culture from caring \u201cfor\u201d residents to caring \u201cabout\u201d residents: advocating for a Compassionate Communities approach to care. Palliat Care Soc Pract. 2026; 20: 1\u201317.","journal-title":"Palliat Care Soc Pract"},{"key":"e_1_3_3_20_2","volume-title":"WA end-of-life and palliative care strategy 2018\u20132028","author":"Western Australian Department of Health","year":"2018","unstructured":"Western Australian Department of Health. WA end-of-life and palliative care strategy 2018\u20132028. WA Cancer and Palliative Care Network, 2018."},{"key":"e_1_3_3_21_2","doi-asserted-by":"publisher","DOI":"10.1177\/15586898241257546"},{"key":"e_1_3_3_22_2","doi-asserted-by":"publisher","DOI":"10.1177\/02692163241234800"},{"key":"e_1_3_3_23_2","doi-asserted-by":"publisher","DOI":"10.1177\/10966218251361465"},{"key":"e_1_3_3_24_2","doi-asserted-by":"publisher","DOI":"10.12927\/cjnl.2019.25975"},{"key":"e_1_3_3_25_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-023-01239-9"},{"key":"e_1_3_3_26_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216319840275"},{"key":"e_1_3_3_27_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.archger.2024.105473"},{"key":"e_1_3_3_28_2","doi-asserted-by":"publisher","DOI":"10.1089\/jpm.2010.0471"},{"key":"e_1_3_3_29_2","doi-asserted-by":"publisher","DOI":"10.1080\/07481187.2020.1762263"},{"key":"e_1_3_3_30_2","doi-asserted-by":"publisher","DOI":"10.3390\/healthcare9121615"},{"key":"e_1_3_3_31_2","article-title":"The Compassionate Communities Connectors programme: experiences of supported families and referring healthcare providers","volume":"17","author":"Aoun SM","year":"2023","unstructured":"Aoun SM, Rosenberg J, Richmond R, et al. The Compassionate Communities Connectors programme: experiences of supported families and referring healthcare providers. Palliat Care Soc Pract 2023; 17: 26323524231173705.","journal-title":"Palliat Care Soc Pract"},{"key":"e_1_3_3_32_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216318774995"},{"key":"e_1_3_3_33_2","unstructured":"Office of the Inspector-General of Aged Care. Fact sheet: social emotional and spiritual care \u2013 2025 progress report https:\/\/www.igac.gov.au\/sites\/default\/files\/2025-09\/social-emotional-and-spiritual-care-2025-progress-report.pdf (2025 accessed 21 October 2025)."},{"key":"e_1_3_3_34_2","article-title":"Demystifying compassionate communities","volume":"19","author":"Ng YH","year":"2025","unstructured":"Ng YH, Aoun S. Demystifying compassionate communities. Palliat Care Soc Pract 2025; 19: 26323524251396992.","journal-title":"Palliat Care Soc Pract"}],"container-title":["Palliative Care and Social Practice"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/26323524261426397","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/26323524261426397","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/26323524261426397","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T01:04:40Z","timestamp":1777597480000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/26323524261426397"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,4]]},"references-count":33,"alternative-id":["10.1177\/26323524261426397"],"URL":"https:\/\/doi.org\/10.1177\/26323524261426397","relation":{},"ISSN":["2632-3524","2632-3524"],"issn-type":[{"value":"2632-3524","type":"print"},{"value":"2632-3524","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,4]]},"article-number":"26323524261426397"}}