{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,17]],"date-time":"2026-07-17T17:04:08Z","timestamp":1784307848781,"version":"3.55.0"},"reference-count":39,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2026,7,1]],"date-time":"2026-07-01T00:00:00Z","timestamp":1782864000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,7,1]],"date-time":"2026-07-01T00:00:00Z","timestamp":1782864000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"name":"The Norwegian Directorate of Heath"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliat\ufffdCare"],"published-print":{"date-parts":[[2026,7]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Parents of children receiving palliative care often experience significant caregiving responsibilities and unmet support needs, emphasising the importance of systematic assessments and tailored interventions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>This study examined the feasibility of the Carer Support Needs Assessment Tool Intervention Paediatric (CSNAT-I Paediatric) within a national unit for children\u2019s palliative care in Norway. It further explored the support needs of parents of children with severe neurological impairments, including neurometabolic conditions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>A non-randomised, multi-method feasibility study.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Feasibility was examined across domains of acceptability, demand, implementation, practicality, integration, and adaptation. Cognitive interviews with parents (n=34) were conducted to examine acceptability and needs for adaptation. Overall feasibility from parents\u2019 perspectives were measured using an electronic questionnaire (n=12), and data on parents\u2019 support needs were extracted from the children\u2019s medical records. Intervention providers\u2019 perspectives on acceptability, demand, practicality, implementation and integration were explored in a focus group interview (n=6).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Parents found the CSNAT-I Paediatric acceptable and all domains of the assessment tool were considered relevant, although they suggested adaptations to better capture care coordination and the child\u2019s daytime activities. Parents\u2019 support needs were heterogeneous and often required action from multiple parties. Intervention providers viewed the CSNAT-I Paediatric as useful for tailoring services to families but identified practical and implementation challenges in following up on identified needs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>The CSNAT-I Paediatric is feasible in children\u2019s palliative care settings. Effective implementation requires interprofessional and intersectional collaboration among stakeholders to meet families\u2019 complex support needs, and further refinement could enhance its utility.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/26323524261469594","type":"journal-article","created":{"date-parts":[[2026,7,15]],"date-time":"2026-07-15T15:03:23Z","timestamp":1784127803000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Tailoring support for parents of children in palliative care: Feasibility of the carer support needs assessment tool intervention paediatric in a Norwegian context"],"prefix":"10.1177","volume":"20","author":[{"ORCID":"https:\/\/orcid.org\/0009-0007-8579-4709","authenticated-orcid":false,"given":"Gro","family":"Trae","sequence":"first","affiliation":[{"name":"Frambu Foundation"},{"name":"Oslo Metropolitan University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anette","family":"Winger","sequence":"additional","affiliation":[{"name":"Oslo Metropolitan University"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marianne","family":"Nordstr\u00f8m","sequence":"additional","affiliation":[{"name":"Frambu Foundation"},{"name":"Frambu Resource Centre for Rare Disorders"},{"name":"Frambu Foundation"},{"name":"Oslo University Hospital"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2026,7,15]]},"reference":[{"key":"e_1_3_8_2_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2016.08.020"},{"key":"e_1_3_8_3_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216320975308"},{"key":"e_1_3_8_4_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2021.12.031"},{"key":"e_1_3_8_5_2","doi-asserted-by":"publisher","DOI":"10.1186\/s12887-015-0514-5"},{"key":"e_1_3_8_6_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216319892825"},{"key":"e_1_3_8_7_2","doi-asserted-by":"publisher","DOI":"10.1177\/0269216320967593"},{"key":"e_1_3_8_8_2","doi-asserted-by":"publisher","DOI":"10.12968\/ijpn.2015.21.11.542"},{"key":"e_1_3_8_9_2","doi-asserted-by":"publisher","DOI":"10.1111\/hex.70452"},{"key":"e_1_3_8_10_2","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2019-001766"},{"key":"e_1_3_8_11_2","first-page":"2022\/03","article-title":"It Is a Whole Different Life from the Life I Used to Live\u201d: Assessing Parents' Support Needs in Paediatric Palliative Care","volume":"9","author":"Aoun SM","year":"2022","unstructured":"Aoun SM, Stegmann R, Deleuil R, et al. It Is a Whole Different Life from the Life I Used to Live\u201d: Assessing Parents' Support Needs in Paediatric Palliative Care. Children (Basel) 2022; 9: 2022\/03\u201326. https:\/\/doi.org\/10.3390\/children9030322","journal-title":"Children (Basel)"},{"key":"e_1_3_8_12_2","doi-asserted-by":"publisher","DOI":"10.1177\/02692163231214471"},{"key":"e_1_3_8_13_2","first-page":"733","article-title":"What individual needs do family caregivers have in palliative home care and how are they supported? A qualitative study of a supportive intervention","volume":"32","author":"Kreyer C","year":"2024","unstructured":"Kreyer C, Stecher B, Pleschberger S, et al. What individual needs do family caregivers have in palliative home care and how are they supported? A qualitative study of a supportive intervention. 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