{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,3]],"date-time":"2026-11-03T17:40:42Z","timestamp":1793727642690,"version":"4.6.1"},"reference-count":28,"publisher":"SAGE Publications","issue":"1","license":[{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Palliative Medicine Reports"],"published-print":{"date-parts":[[2025,6,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background:<\/jats:title>\n                    <jats:p>Stress due to a child\u2019s serious medical condition affects the entire family. The cumulative stress burden (\u201callostatic load\u201d) has deleterious health and economic effects.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective:<\/jats:title>\n                    <jats:p>Demonstrate adequate caregiver willingness to disclose health care utilization and work\/school attendance.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting\/Subjects:<\/jats:title>\n                    <jats:p>\n                      We enrolled caregivers of well children (WC), children with medical complexity (CMC), and children receiving palliative care (PC) (\n                      <jats:italic toggle=\"yes\">N<\/jats:italic>\n                      = 15; 5 per group) in a midwestern United States pediatric hospital.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Measurements:<\/jats:title>\n                    <jats:p>A novel allostatic load questionnaire and the Family Appraisal of Caregiving Questionnaire for Palliative Care were used.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results:<\/jats:title>\n                    <jats:p>All caregivers (100% female) completed the study, with 9% of data missing. PC participants reported greater child health care appointments and admissions compared with WC and CMC.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions:<\/jats:title>\n                    <jats:p>Caregivers will disclose sensitive information for health care research, providing evidence for subsequent, adequately powered studies to inform policy-making. While underpowered for between-group analyses, results suggest pediatricians should routinely assess caregiver burden even at well-child visits.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/26892820251390489","type":"journal-article","created":{"date-parts":[[2025,10,24]],"date-time":"2025-10-24T15:04:12Z","timestamp":1761318252000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":1,"title":["Allostatic Load Borne by Caregivers of Children with Serious Conditions: Acceptability of Self-Reported Data"],"prefix":"10.1177","volume":"6","author":[{"given":"Daniel H.","family":"Grossoehme","sequence":"first","affiliation":[{"name":"Haslinger Family Pediatric Palliative Care Center, Akron Children\u2019s Hospital, Akron, Ohio, USA."},{"name":"Rebecca D. Considine Research Institute, Akron Children\u2019s Hospital, Akron, Ohio, USA."},{"name":"Department of Family &amp; Community Medicine, Northeast Ohio Medical University, Rootstown, Ohio, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Friebert","sequence":"additional","affiliation":[{"name":"Haslinger Family Pediatric Palliative Care Center, Akron Children\u2019s Hospital, Akron, Ohio, USA."},{"name":"Rebecca D. Considine Research Institute, Akron Children\u2019s Hospital, Akron, Ohio, USA."},{"name":"Department of Pediatrics, Northeast Ohio Medical University, Rootstown, Ohio, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rachel","family":"Jenkins","sequence":"additional","affiliation":[{"name":"Haslinger Family Pediatric Palliative Care Center, Akron Children\u2019s Hospital, Akron, Ohio, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jonathan H.","family":"Pelletier","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Northeast Ohio Medical University, Rootstown, Ohio, USA."},{"name":"Division of Critical Care Medicine, Akron Children\u2019s Hospital, Akron, Ohio, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"P. Cooper","family":"White","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Northeast Ohio Medical University, Rootstown, Ohio, USA."},{"name":"Akron Children\u2019s Pediatrics, Akron, Ohio, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael L.","family":"Forbes","sequence":"additional","affiliation":[{"name":"Rebecca D. Considine Research Institute, Akron Children\u2019s Hospital, Akron, Ohio, USA."},{"name":"Department of Pediatrics, Northeast Ohio Medical University, Rootstown, Ohio, USA."},{"name":"Division of Critical Care Medicine, Akron Children\u2019s Hospital, Akron, Ohio, USA."}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"179","published-online":{"date-parts":[[2025,10,24]]},"reference":[{"key":"e_1_3_3_2_2","doi-asserted-by":"publisher","DOI":"10.1377\/hlthaff.2014.0828"},{"key":"e_1_3_3_3_2","unstructured":"FastStats [Internet]. 2023 [cited 2023 Oct 4]. 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Financial toxicity among cancer patients, survivors and their families in the United Kingdom: A scoping review. J Public Health (Oxf), 2023; 45(4):e702\u201313\u2013e713.","journal-title":"J Public Health (Oxf)"},{"key":"e_1_3_3_13_2","doi-asserted-by":"publisher","DOI":"10.1002\/pon.5112"},{"key":"e_1_3_3_14_2","doi-asserted-by":"publisher","DOI":"10.1177\/1367493513485825"},{"issue":"7","key":"e_1_3_3_15_2","first-page":"97","article-title":"The role of resilience in the sibling experience of pediatric palliative care: What is the theory and evidence","volume":"5","author":"Chin WL","year":"2018","unstructured":"Chin WL, , Jaaniste T, , Trethewie S. The role of resilience in the sibling experience of pediatric palliative care: What is the theory and evidence? 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