{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T01:53:30Z","timestamp":1777859610524,"version":"3.51.4"},"reference-count":20,"publisher":"SAGE Publications","issue":"1-2","license":[{"start":{"date-parts":[[2025,1,1]],"date-time":"2025-01-01T00:00:00Z","timestamp":1735689600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/100000056","name":"National Institute of Nursing Research","doi-asserted-by":"publisher","award":["K23 NR017899"],"award-info":[{"award-number":["K23 NR017899"]}],"id":[{"id":"10.13039\/100000056","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000050","name":"National Heart, Lung, and Blood Institute","doi-asserted-by":"publisher","award":["R01 HL133896"],"award-info":[{"award-number":["R01 HL133896"]}],"id":[{"id":"10.13039\/100000050","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric Hematology\/Oncology Nursing"],"published-print":{"date-parts":[[2025,1]]},"abstract":"<jats:p>\n                    <jats:bold>Background:<\/jats:bold>\n                    Effective education is an important component of optimal care for sickle cell anemia. The purpose of this article is to describe the development and process evaluation of an educational initiative for stroke risk screening, including perspectives from providers, coordinators, and caregivers as well as lessons learned for future initiatives.\n                    <jats:bold>Method:<\/jats:bold>\n                    A new term, \u201cSickle Stroke Screen,\u201d and an infographic for stroke risk screening were developed using patient\/family input and branding expertise. A pamphlet and poster were developed via iterative feedback with hematological providers. Thirteen sites implemented the educational initiative as part of a multicomponent intervention study over 2 years. Evaluation included surveys and interviews with 13 site providers and six coordinators and surveys with 80 caregivers. Descriptive statistics were used for survey results, and content analysis was used for interviews.\n                    <jats:bold>Results:<\/jats:bold>\n                    Providers and coordinators commented on processes, successes, and barriers to the intervention. Key process themes included\n                    <jats:italic toggle=\"yes\">methods of delivering information<\/jats:italic>\n                    and\n                    <jats:italic toggle=\"yes\">refining processes<\/jats:italic>\n                    . Key successes included intervention\n                    <jats:italic toggle=\"yes\">impact<\/jats:italic>\n                    ,\n                    <jats:italic toggle=\"yes\">helpfulness<\/jats:italic>\n                    , and\n                    <jats:italic toggle=\"yes\">ease of use<\/jats:italic>\n                    .\n                    <jats:italic toggle=\"yes\">Inconsistency<\/jats:italic>\n                    was a core barrier reported across the study with some improved success over time. Caregivers felt positively about the educational materials, including liking, understanding, and feeling motivated to act based on the new education.\n                    <jats:bold>Discussion:<\/jats:bold>\n                    Patient\/family feedback and branding expertise were critical to developing an educational initiative that was well received by providers, coordinators, and other families. Inconsistency was a barrier worsened by healthcare complexity and the pandemic, though flexible delivery methods and commitment to education helped sites to be successful over time.\n                  <\/jats:p>","DOI":"10.1177\/27527530251319294","type":"journal-article","created":{"date-parts":[[2025,4,28]],"date-time":"2025-04-28T02:49:11Z","timestamp":1745808551000},"page":"5-18","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Development and Process Evaluation of Sickle Stroke Screen: A Patient Educational Initiative to Improve Transcranial Doppler Screening in Sickle Cell Anemia"],"prefix":"10.1177","volume":"42","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1106-5016","authenticated-orcid":false,"given":"Alyssa M.","family":"Schlenz","sequence":"first","affiliation":[{"name":"University of Colorado School of Medicine"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Shannon M.","family":"Phillips","sequence":"additional","affiliation":[{"name":"Medical University of South Carolina"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jeanine","family":"Dumas","sequence":"additional","affiliation":[{"name":"Department of Medicine, Division of Hematology\/Oncology, University of Alabama at Birmingham"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Julie","family":"Kanter","sequence":"additional","affiliation":[{"name":"Department of Medicine, Division of Hematology\/Oncology, University of Alabama at Birmingham"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"179","published-online":{"date-parts":[[2025,4,27]]},"reference":[{"key":"e_1_3_3_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0197-2456(97)00099-8"},{"key":"e_1_3_3_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.22780"},{"key":"e_1_3_3_4_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.27722"},{"key":"e_1_3_3_5_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12878-018-0106-3"},{"key":"e_1_3_3_6_1","doi-asserted-by":"publisher","DOI":"10.1182\/bloodadvances.2023010676"},{"key":"e_1_3_3_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/drev.10241"},{"key":"e_1_3_3_8_1","doi-asserted-by":"publisher","DOI":"10.1186\/1748-5908-4-50"},{"key":"e_1_3_3_9_1","doi-asserted-by":"publisher","DOI":"10.1182\/bloodadvances.2019001142"},{"key":"e_1_3_3_10_1","doi-asserted-by":"publisher","DOI":"10.1002\/pbc.22048"},{"key":"e_1_3_3_11_1","doi-asserted-by":"crossref","unstructured":"Kanter J. Phillips S. Schlenz A. M. Mueller M. Dooley M. Sirline L. Nickel R. Brown R. C. Hilliard L. Melvin C. L. & Adams R. J. (2021). Transcranial Doppler screening in a current cohort of children with sickle cell anemia: Results from the DISPLACE study. Journal of Pediatric Hematology\/Oncology 43(8) e1062-e1068. https:\/\/doi.org\/10.1097\/MPH.0000000000002103","DOI":"10.1097\/MPH.0000000000002103"},{"key":"e_1_3_3_12_1","doi-asserted-by":"publisher","DOI":"10.1002\/ajh.25635"},{"key":"e_1_3_3_13_1","unstructured":"National Cancer Institute. (2001). Making health communication programs work (NIH Publication No. 04-5145). https:\/\/stacks.cdc.gov\/view\/cdc\/24017"},{"key":"e_1_3_3_14_1","doi-asserted-by":"crossref","unstructured":"Phillips S. M. Schlenz A. M. Mueller M. Melvin C. L. Adams R. J. & Kanter J. (2021). Identified barriers and facilitators to stroke risk screening in children with sickle cell anemia: Results from the DISPLACE consortium. 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