{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,12]],"date-time":"2026-02-12T16:00:24Z","timestamp":1770912024019,"version":"3.50.1"},"reference-count":19,"publisher":"SAGE Publications","issue":"3","license":[{"start":{"date-parts":[[2007,3,1]],"date-time":"2007-03-01T00:00:00Z","timestamp":1172707200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Clin Rehabil"],"published-print":{"date-parts":[[2007,3]]},"abstract":"<jats:p> Objectives: To compare results on the 40-item Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40) with those gained on the short-form five-item Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-5) in a longitudinal study. <\/jats:p><jats:p> Design: Postal survey. Copies of the ALSAQ-40 which incorporates the five items of the ALSAQ-5, were completed on two occasions. Respondents were also asked to indicate how much change they had experienced since baseline on each of the five domains of the questionnaire. <\/jats:p><jats:p> Setting: The database of all patient members of the Motor Neurone Disease Association for England, Wales and Northern Ireland. <\/jats:p><jats:p> Subjects: Nine hundred and twenty-seven patient members returned questionnaires at baseline, and 764 completed questionnaires at both baseline and follow-up. <\/jats:p><jats:p> Results: Results on the five dimensions of the ALSAQ-40 and ALSAQ-5 were found to be highly correlated, and 95% confidence intervals on mean scores were found to overlap for each dimension. The instruments both provide a similar picture of change in terms of their responsiveness. For example, effect sizes were calculated for patients who claimed their health had deteriorated a little since baseline, and gave almost identical results (e.g. for the Physical functioning domain effect sizes of 0.12 and 0.11 were found on the long and short measures respectively). <\/jats:p><jats:p> Conclusions: Results suggests that the ALSAQ-5 provides similar results to the ALSAQ-40 yet with considerable economy. In instances where a very brief health status measure is required then the ALSAQ-5 may be the instrument of choice. <\/jats:p>","DOI":"10.1177\/0269215506071123","type":"journal-article","created":{"date-parts":[[2007,2,28]],"date-time":"2007-02-28T10:38:47Z","timestamp":1172659127000},"page":"266-272","source":"Crossref","is-referenced-by-count":15,"title":["Comparison of the 40-item Amyotrophic Lateral Sclerosis Assessment Questionnaire (ALSAQ-40) with a short-form five-item version (ALSAQ-5) in a longitudinal survey"],"prefix":"10.1177","volume":"21","author":[{"given":"C","family":"Jenkinson","sequence":"first","affiliation":[{"name":"Department of Public Health, University of Oxford; Harris Manchester College, Oxford"}]},{"given":"R","family":"Fitzpatrick","sequence":"additional","affiliation":[{"name":"Department of Public Health, University of Oxford, London"}]},{"given":"M","family":"Swash","sequence":"additional","affiliation":[{"name":"Department of Neurology, Royal London Hospital, Queen Mary-University of London, London"}]},{"given":"G","family":"Jones","sequence":"additional","affiliation":[{"name":"School of Health and Related Research, University of Sheffield, Sheffield, UK"}]}],"member":"179","published-online":{"date-parts":[[2007,3,1]]},"reference":[{"key":"atypb1","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.60.2.127"},{"issue":"3","key":"atypb2","doi-asserted-by":"crossref","first-page":"16","DOI":"10.1007\/BF03161085","volume":"246","author":"Jenkinson C","year":"1999","journal-title":"J Neurol"},{"key":"atypb3","doi-asserted-by":"publisher","DOI":"10.1080\/146608299300080022"},{"key":"atypb4","doi-asserted-by":"publisher","DOI":"10.1016\/S0022-510X(00)00420-2"},{"key":"atypb5","volume-title":"ALSAQ User Manual","author":"Jenkinson C","year":"2001"},{"key":"atypb6","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.70.1.70"},{"key":"atypb7","doi-asserted-by":"publisher","DOI":"10.1136\/jnnp.74.2.242"},{"key":"atypb8","doi-asserted-by":"publisher","DOI":"10.1023\/B:QURE.0000040786.75103.3a"},{"key":"atypb9","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/32.9.807"},{"key":"atypb10","doi-asserted-by":"publisher","DOI":"10.1093\/ageing\/26.5.353"},{"key":"atypb11","doi-asserted-by":"publisher","DOI":"10.1080\/08870449708406741"},{"key":"atypb12","doi-asserted-by":"publisher","DOI":"10.1191\/0269215503cr624oa"},{"key":"atypb13","doi-asserted-by":"publisher","DOI":"10.1097\/00005650-199603000-00003"},{"key":"atypb14","doi-asserted-by":"publisher","DOI":"10.1023\/B:QURE.0000021316.79349.af"},{"key":"atypb15","volume-title":"SF-12 How to score the SF-12 Physical and Mental Health Summary Scales","author":"Ware JE","year":"1994"},{"key":"atypb16","volume-title":"A manual for users of the SF-8 health survey","author":"Ware J","year":"2001"},{"key":"atypb17","doi-asserted-by":"publisher","DOI":"10.1097\/00005650-199206000-00002"},{"key":"atypb18","volume-title":"Measuring functioning and well-being: the medical outcomes study approach","author":"Stewart AL","year":"1992"},{"key":"atypb19","doi-asserted-by":"publisher","DOI":"10.1097\/00005650-198903001-00015"}],"container-title":["Clinical Rehabilitation"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/0269215506071123","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/0269215506071123","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,3,2]],"date-time":"2025-03-02T02:10:52Z","timestamp":1740881452000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/0269215506071123"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2007,3]]},"references-count":19,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2007,3]]}},"alternative-id":["10.1177\/0269215506071123"],"URL":"https:\/\/doi.org\/10.1177\/0269215506071123","relation":{},"ISSN":["0269-2155","1477-0873"],"issn-type":[{"value":"0269-2155","type":"print"},{"value":"1477-0873","type":"electronic"}],"subject":[],"published":{"date-parts":[[2007,3]]}}}