{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T23:44:36Z","timestamp":1777679076211,"version":"3.51.4"},"reference-count":52,"publisher":"SAGE Publications","issue":"10","license":[{"start":{"date-parts":[[2024,11,22]],"date-time":"2024-11-22T00:00:00Z","timestamp":1732233600000},"content-version":"vor","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2024,11,22]],"date-time":"2024-11-22T00:00:00Z","timestamp":1732233600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/journals.sagepub.com\/page\/policies\/text-and-data-mining-license"}],"funder":[{"DOI":"10.13039\/501100001871","name":"Funda\u00e7\u00e3o para a Ci\u00eancia e a Tecnologia","doi-asserted-by":"publisher","award":["PD\/BD\/150582\/2020"],"award-info":[{"award-number":["PD\/BD\/150582\/2020"]}],"id":[{"id":"10.13039\/501100001871","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["J Health Psychol"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:p>Systemic lupus erythematosus (SLE) has a high detrimental impact on individuals\u2019 quality of life. Identifying key factors associated with SLE adjustment is crucial for intervention development, yet there is no previous research exploring the perspectives of individuals with SLE regarding illness adjustment\u2019 facilitating or hindering factors. In this qualitative study, 16 individual semi-structured interviews with Portuguese adults with SLE (13 women) were conducted to explore perceived facilitators and barriers to illness adjustment. A reflexive thematic analysis revealed that efforts toward maintaining a normal life, optimism, keeping engaged in meaningful activities, accessing reliable illness-related information, and having supportive relationships were core facilitators of SLE adjustment. Main barriers included inability to maintain normality, engaging in excessive activity, pessimism, being unsupported or stigmatized, and not having access to reliable illness-related information. These findings unveil potential targets for psychosocial and behavioral interventions aimed at enhancing the quality of life for individuals with SLE.<\/jats:p>","DOI":"10.1177\/13591053241296190","type":"journal-article","created":{"date-parts":[[2024,11,22]],"date-time":"2024-11-22T05:19:38Z","timestamp":1732252778000},"page":"2767-2780","update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":0,"title":["Maintaining a sense of normality with the help of others: Lived experiences of facilitators and barriers to Lupus adjustment"],"prefix":"10.1177","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9654-2757","authenticated-orcid":false,"given":"Sofia","family":"Silva-Ribeiro","sequence":"first","affiliation":[{"name":"Centre for Psychological Research and Social Intervention (CIS-Iscte), Iscte-University Institute of Lisbon, Lisbon, Portugal"}]},{"given":"S\u00f3nia F","family":"Bernardes","sequence":"additional","affiliation":[{"name":"Centre for Psychological Research and Social Intervention (CIS-Iscte), Iscte-University Institute of Lisbon, Lisbon, Portugal"}]},{"given":"Marta M","family":"Marques","sequence":"additional","affiliation":[{"name":"NOVA National School of Public Health, Public Health Research Centre, Comprehensive Health Research Center, CHRC, NOVA University Lisbon, Lisbon, Portugal"}]},{"given":"Cristina A","family":"Godinho","sequence":"additional","affiliation":[{"name":"NOVA National School of Public Health, Public Health Research Centre, Comprehensive Health Research Center, CHRC, NOVA University Lisbon, Lisbon, Portugal"}]}],"member":"179","published-online":{"date-parts":[[2024,11,22]]},"reference":[{"key":"e_1_3_3_2_1","doi-asserted-by":"publisher","DOI":"10.1177\/0961203318770016"},{"key":"e_1_3_3_3_1","doi-asserted-by":"publisher","DOI":"10.1177\/0961203318763082"},{"key":"e_1_3_3_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.apmr.2012.05.029"},{"key":"e_1_3_3_5_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.40930"},{"key":"e_1_3_3_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-43035-5"},{"key":"e_1_3_3_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/0961203318817826"},{"key":"e_1_3_3_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.invent.2023.100619"},{"key":"e_1_3_3_9_1","doi-asserted-by":"publisher","DOI":"10.1080\/14427591.2006.9686565"},{"key":"e_1_3_3_10_1","doi-asserted-by":"publisher","DOI":"10.1097\/j.pain.0000000000001033"},{"key":"e_1_3_3_11_1","doi-asserted-by":"publisher","DOI":"10.1177\/2333393617742282"},{"key":"e_1_3_3_12_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_3_3_13_1","doi-asserted-by":"publisher","DOI":"10.1080\/2159676X.2019.1628806"},{"key":"e_1_3_3_14_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-319-69909-7_3470-2"},{"key":"e_1_3_3_15_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-015-1151-z"},{"key":"e_1_3_3_16_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.24649"},{"key":"e_1_3_3_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpain.2016.12.013"},{"key":"e_1_3_3_18_1","doi-asserted-by":"publisher","DOI":"10.1136\/annrheumdis-2019-215089"},{"key":"e_1_3_3_19_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732305275167"},{"key":"e_1_3_3_20_1","doi-asserted-by":"publisher","DOI":"10.5014\/ajot.2019.028555"},{"key":"e_1_3_3_21_1","doi-asserted-by":"publisher","DOI":"10.1136\/ard.2005.037077"},{"key":"e_1_3_3_22_1","doi-asserted-by":"publisher","DOI":"10.1007\/978-3-030-23022-7_9"},{"key":"e_1_3_3_23_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.20279"},{"key":"e_1_3_3_24_1","first-page":"42","volume-title":"The Self-Regulation of Health and Illness Behaviour","author":"Leventhal H","year":"2003","unstructured":"Leventhal H, Brissette I, Leventhal E (2003) The common-sense model of self-regulation of health and illness. In: Cameron L, Leventhal H (eds) The Self-Regulation of Health and Illness Behaviour. Milton Park: Routledge, pp.42\u201365."},{"key":"e_1_3_3_25_1","doi-asserted-by":"publisher","DOI":"10.1007\/BF01173486"},{"key":"e_1_3_3_26_1","volume-title":"Naturalistic Inquiry","author":"Lincoln Y","year":"1995","unstructured":"Lincoln Y, Guba E (1995) Naturalistic Inquiry. Thousand Oaks,\u2009CA: Sage Publications."},{"key":"e_1_3_3_27_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pain.2006.11.016"},{"key":"e_1_3_3_28_1","doi-asserted-by":"publisher","DOI":"10.1177\/0961203317749746"},{"key":"e_1_3_3_29_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjhp.12072"},{"key":"e_1_3_3_30_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12888-022-03739-z"},{"key":"e_1_3_3_31_1","doi-asserted-by":"publisher","DOI":"10.1159\/000276370"},{"key":"e_1_3_3_32_1","doi-asserted-by":"publisher","DOI":"10.1177\/0961203313517154"},{"issue":"2","key":"e_1_3_3_33_1","first-page":"34","article-title":"Issues of validity and reliability in qualitative research","volume":"18","author":"Noble H","year":"2015","unstructured":"Noble H, Smith J (2015) Issues of validity and reliability in qualitative research. Evidence-Based Nursing 18(2): 34\u201335.","journal-title":"Evidence"},{"key":"e_1_3_3_34_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijwd.2018.01.002"},{"key":"e_1_3_3_35_1","doi-asserted-by":"publisher","DOI":"10.1002\/ejp.1944"},{"key":"e_1_3_3_36_1","doi-asserted-by":"publisher","DOI":"10.1111\/bjhp.12584"},{"key":"e_1_3_3_37_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.24639"},{"issue":"1","key":"e_1_3_3_38_1","article-title":"Acceptance and commitment therapy (ACT): the foundation of the therapeutic model and an overview of its contribution to the treatment of patients with chronic physical diseases","volume":"33","author":"Prevedini A","year":"2011","unstructured":"Prevedini A, Presti G, Rabitti E, et al. (2011) Acceptance and commitment therapy (ACT): the foundation of the therapeutic model and an overview of its contribution to the treatment of patients with chronic physical diseases. Sleep 33(1): A53\u2013A63.","journal-title":"Sleep"},{"key":"e_1_3_3_39_1","doi-asserted-by":"publisher","DOI":"10.1136\/lupus-2022-000700"},{"key":"e_1_3_3_40_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpsychores.2012.09.023"},{"key":"e_1_3_3_41_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2022.830363"},{"key":"e_1_3_3_42_1","article-title":"Psychological, social and behavioral factors associated with disease\/illness activity and adjustment to Lupus: A systematic review and meta-analysis","author":"Silva-Ribeiro S","year":"2022","unstructured":"Silva-Ribeiro S, Godinho C, Camilo C, et al. (2022) Psychological, social and behavioral factors associated with disease\/illness activity and adjustment to Lupus: A systematic review and meta-analysis. Manuscript submitted for publication.","journal-title":"Manuscript submitted for publication"},{"key":"e_1_3_3_43_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00296-020-04726-x"},{"key":"e_1_3_3_44_1","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2018.1522550"},{"key":"e_1_3_3_45_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.22032"},{"key":"e_1_3_3_46_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr2.11117"},{"key":"e_1_3_3_47_1","doi-asserted-by":"publisher","DOI":"10.1177\/09612033211022816"},{"key":"e_1_3_3_48_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2004.11.001"},{"issue":"2","key":"e_1_3_3_49_1","first-page":"89","article-title":"Association of sunlight exposure and photoprotection measures with clinical outcome in systemic lupus erythematosus","volume":"18","author":"Vil\u00e1 LM","year":"1999","unstructured":"Vil\u00e1 LM, Mayor AM, Valent\u00edn AH, et al. (1999) Association of sunlight exposure and photoprotection measures with clinical outcome in systemic lupus erythematosus. Puerto Rico Health Sciences Journal 18(2): 89\u201394.","journal-title":"Puerto Rico Health Sciences Journal"},{"key":"e_1_3_3_50_1","doi-asserted-by":"publisher","DOI":"10.1136\/lupus-2020-000444"},{"key":"e_1_3_3_51_1","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.4055"},{"key":"e_1_3_3_52_1","doi-asserted-by":"publisher","DOI":"10.1111\/1756-185X.13033"},{"key":"e_1_3_3_53_1","doi-asserted-by":"publisher","DOI":"10.1177\/0961203312447667"}],"container-title":["Journal of Health Psychology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13591053241296190","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/13591053241296190","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/13591053241296190","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,29]],"date-time":"2026-04-29T08:31:35Z","timestamp":1777451495000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/13591053241296190"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,11,22]]},"references-count":52,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2025,9]]}},"alternative-id":["10.1177\/13591053241296190"],"URL":"https:\/\/doi.org\/10.1177\/13591053241296190","relation":{},"ISSN":["1359-1053","1461-7277"],"issn-type":[{"value":"1359-1053","type":"print"},{"value":"1461-7277","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,11,22]]}}}