{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,14]],"date-time":"2026-05-14T14:43:53Z","timestamp":1778769833524,"version":"3.51.4"},"reference-count":27,"publisher":"SAGE Publications","license":[{"start":{"date-parts":[[2022,1,1]],"date-time":"2022-01-01T00:00:00Z","timestamp":1640995200000},"content-version":"unspecified","delay-in-days":0,"URL":"https:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["journals.sagepub.com"],"crossmark-restriction":true},"short-container-title":["Chron Respir Dis"],"published-print":{"date-parts":[[2022,1]]},"abstract":"<jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>The patient\u2019s experience of treatment is a cornerstone of high-quality healthcare, along with clinical safety and effectiveness. We aimed to evaluate the patients\u2019 perspectives regarding home mechanical ventilation (HMV) follow up in an outpatient setting and ascertain differences between patients that started HMV in the outpatient setting compared to other settings.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This cross-sectional study was conducted with patients with chronic respiratory failure under HMV in the Outpatient Ventilation Clinic. Patients filled in a patient experience questionnaire and the S3-NIV questionnaire.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>The study included 235 patients (127, 54% male), median 70 [25\u201375 percentiles 64\u201376]\u00a0years) and about half were adapted to HMV in the outpatient setting (117, 49.8%). Patients had a daily ventilator usage of 8.0 [6.0\u201310.0]\u00a0hours and have been on ventilator for a median of 35.0 [12.0\u201366.0] months. Patients reported an overall good experience regarding education at initiation (209 [88.9%] considered the information given was enough), short time to adaptation [104 (44.3%) felt adapted after some hours], with perceived benefits (171 [72.8%] reported less shortness of breath, 158 (67.2%) improved quality of life and 150 (63.8%) less tiredness). Benefits overcame the treatment side-effects (158 [67.2%] reported mucosal dryness, 109 (46.4%) mask sores and 96 (40.9%) leaks). There was no difference in terms of reported health gains, side effects or time to adaptation between adaptation settings, but patients starting HMV in the outpatient setting reported better communication and education at adaptation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Outpatient setting was perceived as a positive experience, both in HMV initiation and follow up, with good patient-physician communication leading to significant health reported gains, improvement of health status and well-being and good treatment adherence.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1177\/14799731221137082","type":"journal-article","created":{"date-parts":[[2022,11,23]],"date-time":"2022-11-23T14:02:38Z","timestamp":1669212158000},"update-policy":"https:\/\/doi.org\/10.1177\/sage-journals-update-policy","source":"Crossref","is-referenced-by-count":20,"title":["Patients experience regarding home mechanical ventilation in an outpatient setting"],"prefix":"10.1177","volume":"19","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8270-3687","authenticated-orcid":false,"given":"Carla","family":"Ribeiro","sequence":"first","affiliation":[{"name":"Pulmonology Department, Centro Hospitalar de Vila Nova de Gaia\/Espinho, Vila Nova de Gaia, Portugal"}]},{"given":"Cristina","family":"J\u00e1come","sequence":"additional","affiliation":[{"name":"CINTESIS@RISE, MEDCIDS, Faculty of Medicine of the University of Porto, Porto, Portugal"}]},{"given":"Pedro","family":"Oliveira","sequence":"additional","affiliation":[{"name":"ISPUP-EPI Unit, Instituto de Ci\u00eancias Biom\u00e9dicas de Abel Salazar, Universidade do Porto, Portugal"}]},{"given":"Sara","family":"Conde","sequence":"additional","affiliation":[{"name":"Pulmonology Department, Centro Hospitalar de Vila Nova de Gaia\/Espinho, Vila Nova de Gaia, Portugal"}]},{"given":"Wolfram","family":"Windisch","sequence":"additional","affiliation":[{"name":"Faculty of Health\/School of Medicine, Department of Pneumology, Cologne Merheim Hospital, Kliniken der Stadt K\u00f6ln gGmbH, Witten\/Herdecke University, Cologne, Germany"}]},{"given":"Rui","family":"Nunes","sequence":"additional","affiliation":[{"name":"Faculty of Medicine, University of Porto, Porto, Portugal"}]}],"member":"179","published-online":{"date-parts":[[2022,11,23]]},"reference":[{"key":"bibr1-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1183\/13993003.01003-2019"},{"key":"bibr2-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1016\/j.chest.2020.02.064"},{"key":"bibr3-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.05.00066704"},{"key":"bibr4-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1136\/thoraxjnl-2019-214204"},{"issue":"12","key":"bibr5-14799731221137082","doi-asserted-by":"crossref","first-page":"942","DOI":"10.1055\/a-1509-7014","volume":"75","author":"Schwarz SB","year":"2021","journal-title":"Pneumologie"},{"key":"bibr6-14799731221137082","doi-asserted-by":"publisher","DOI":"10.2147\/COPD.S104238"},{"key":"bibr7-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1016\/S2213-2600(14)70153-5"},{"key":"bibr8-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1136\/thoraxjnl-2019-213303"},{"key":"bibr9-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1016\/j.chest.2020.07.007"},{"key":"bibr10-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1016\/j.rmed.2014.07.008"},{"key":"bibr11-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1159\/000484569"},{"key":"bibr12-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1016\/j.chest.2020.08.004"},{"key":"bibr13-14799731221137082","volume-title":"European Union 2020. People-reported experience and quality of health care., in Health at a Glance: Europe 2020: State of Health in the EU Cycle","author":"OECD"},{"key":"bibr14-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1183\/23120541.00015-2017"},{"key":"bibr15-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1164\/rccm.166.4.518"},{"key":"bibr16-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1159\/000488667"},{"key":"bibr17-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.00066407"},{"key":"bibr18-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1183\/13993003.011822018"},{"key":"bibr19-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1016\/j.pulmoe.2020.11.006"},{"issue":"3","key":"bibr20-14799731221137082","first-page":"139","volume":"23","author":"Ribeiro C","year":"2017","journal-title":"Rev Port Pneumol (2006)"},{"key":"bibr21-14799731221137082","doi-asserted-by":"publisher","DOI":"10.2147\/COPD.S314826"},{"key":"bibr22-14799731221137082","doi-asserted-by":"publisher","DOI":"10.3109\/15412555.2015.1108960"},{"key":"bibr23-14799731221137082","doi-asserted-by":"publisher","DOI":"10.3390\/jcm8040555"},{"key":"bibr24-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1016\/j.pulmoe.2021.05.010"},{"issue":"3","key":"bibr25-14799731221137082","first-page":"142","volume":"67","author":"Vitacca M","year":"2007","journal-title":"Monaldi Arch Chest Dis"},{"key":"bibr26-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1016\/j.rmed.2007.11.005"},{"key":"bibr27-14799731221137082","doi-asserted-by":"publisher","DOI":"10.1186\/s12890-018-0768-4"}],"container-title":["Chronic Respiratory Disease"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/14799731221137082","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/full-xml\/10.1177\/14799731221137082","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/journals.sagepub.com\/doi\/pdf\/10.1177\/14799731221137082","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T16:47:32Z","timestamp":1777394852000},"score":1,"resource":{"primary":{"URL":"https:\/\/journals.sagepub.com\/doi\/10.1177\/14799731221137082"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,1]]},"references-count":27,"alternative-id":["10.1177\/14799731221137082"],"URL":"https:\/\/doi.org\/10.1177\/14799731221137082","relation":{},"ISSN":["1479-9731","1479-9731"],"issn-type":[{"value":"1479-9731","type":"print"},{"value":"1479-9731","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,1]]},"article-number":"14799731221137082"}}